@ngoshyuan.bsky.social
@altnih4science.bsky.social
Facts & strategy, in an authoritarian takeover. Rightwing billionaires want to privatize NIH and use it to control universities. We work to cure diseases like cancer. Pers views. #science #medicine Signal: altnih4science.79
@endpts.com
We're where the business of medicine gets answers. An independent news media organization covering biotech, pharma, science, policy, finance, venture capital and markets, and how they drive the life sciences industry. Read us at www.endpts.com.
@burnedhaystack.bsky.social
I study words in real life. Writing in humor, feminism, applied rhetoric, and dating dynamics. Ph. D. in rhetoric. Professor @ UW Green Bay.
@mndaus-research.bsky.social
Motor Neurone Disease Australia is the peak body for the MND community in Australia. We have built & sustained Australian MND research for 40 yrs and partner with other Australian and international MND/ALS organisations.
@superstephsunshine.bsky.social
Living with ALS diagnosed 2011. Tracheostomy free. Knitter, seamstress, reader of books. 92270 for warmth.
@nikki7.bsky.social
@antoniousblock.bsky.social
Son, brother, cousin, husband, father, & uncle. Pilgrim and Puritan. Hopeful. ALS diagnosis the summer of 2022. Texas Aggie.
@vpresearchals.bsky.social
VP Research & Strategic Partnerships @ ALS Canada. Science brain, advocate heart.
@jcny79.bsky.social
Just a girl diagnosed with ALS 3/30/22. Living life day by day while I continue to adapt and process this journey I was given
@andreaalsstrategy.bsky.social
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
@onein300.bsky.social
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. onein300.com
@drpaulwicks.bsky.social
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
@lynnbr2.bsky.social
Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org. Designed & built a custom AAC eye gaze computer. BCI candidate to drive my exoskeleton. Python & CoPilot noob. Interested in EAPs. #MedSky
@michaelwheelson.bsky.social
Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.
@jeanc9orf72.bsky.social
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@arrestalsnow.bsky.social
In the fight for the long haul until #EndALS. Fighting ALS injustice including Healthcare. Seek equality & quality ALS patient services & care. #NeverStopFighting #DontQuit
@ammaralchalabi.bsky.social
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
@saritaapril.bsky.social
Physical Therapist and Assistive Technology Professional at the MDA/ALS Center of Hope. Advocate. ALS Hope Foundation. Philadelphia Fan.
@bskyamelie.bsky.social
Brit, resident in France. Retired. So glad to be able to fulfil what was a long-time ago dream.
@alsadvocacy.bsky.social
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous. https://x.com/alsadvocacy
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app