Marissa
#CDKL5 🧬 | Former school social worker turned stay-at-home medical mama | 🎙️Producer, content creator, & co-host of the CDKL5 in Color Podcast @cdkl5incolor.bsky.social
www.CDKL5inColor.com
@weeklyshowpodcast.bsky.social
On Mondays Jon Stewart hosts The Daily Show, but on Thursdays he hosts The Weekly Show. Listen wherever you get your podcasts.
@mwheelermd.bsky.social
Physician-scientist @stanford medicine, AHFTC, genomics of rare disease, cardiovascular genetics, exercise multiomics, cardiomyopathy, novel therapeutics and data. #motrpac #UDN #Gregor #CFDE . Husband, kids and cats, mountains and snow. Resist hate.
@joan.aldea.social
Padre de Maléfica y Mazinger. Todo lo que aspiro en la vida es a querer, ser querido y hacer reír a alguien de vez en cuando. Feminista, transinclusivo, neurodivergente, geek, rojo, autónomo, informático, campista y un poco intensito a veces.
@neuroandme.bsky.social
@andreaap.bsky.social
Family Advocate @Little Lobbyists, health care advocate, PR and Comms professional, Michigan mom, caregiver, and “emotional support human” to my dog. My views are mine and mine alone.
@littlelobbyists.com
Family-led group advocating for our kids with complex medical needs and disabilities. Little Lobbyists Action Network is a 501(c)(4) org.
@petebuttigieg.bsky.social
Husband, dad, veteran, writer, and proud Midwesterner. 19th US Secretary of Transportation and former Mayor of South Bend.
@sanders.senate.gov
Sen. Sanders of Vermont, Ranking Member of the U.S. Senate Committee on Health, Education, Labor & Pensions, is the longest-serving independent in congressional history.
@wbur.org
WBUR is Boston’s NPR. A public media leader committed to exceptional journalism on-air, online, on-demand and on stage.
@sfdirewolf.bsky.social
Author, editor, activist, cat lover. Founder of the Disability Visibility Project. #DisabilityJustice feed I created: https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho More about me https://linktr.ee/disability_visibility
@voicesofhealthcare.org
We're focused on lifting up people with personal health care stories via social media & holding accountable the elected officials voting against our health care
@meetthepress.com
Meet the Press is the longest-running television show in history. If it's Sunday, it's Meet the Press.
@momsrising.org
A movement of 1M+ people rising for all families to thrive. All content from MomsRising Together 501c4 social welfare org unless otherwise stated. Home of the #MomSky: Truth. Action. Care.
@elenahung.bsky.social
I ❤️ Medicaid @littlelobbyists.com Executive Director & Co-founder advocating for children with complex medical needs and disabilities. Fighting for disability justice, health equity, and tater tots for all.
@hcrichardson.bsky.social
Historian. Author. Professor. Budding Curmudgeon. I study the contrast between image and reality in America, especially in politics.
@ourlittlekartoffel.bsky.social
kartoffel.substack.com Just writing what comes to mind. Mostly about life as a parent to a child with a rare medical condition.
@fndsociety.bsky.social
The Functional Neurological Disorder Society is a professional society of clinicians, scientists, other healthcare professionals, students, and members of the lay public who are interested in functional neurological disorders.
@joy.msnbc.com
#TheReidOut with @joyannreid.bsky.social aired weeknights at 7 pm ET on MSNBC. View top clips on YouTube 👉 MSNBC.com/Joy. Visit the former blog: MSNBC.com/reidoutblog.
@standupforscience.bsky.social
Because Science is for everyone! 🧪🌎 Learn more ⬇️ http://linktr.ee/standupforscience 👯sister org: @sciforgood.bsky.social
@warren.senate.gov
U.S. Senator, Massachusetts. She/her/hers. Official Senate account.
@katestarbird.bsky.social
Researcher of online rumors & disinformation. Former basketball player. Prof at University of Washington, HCDE. Co-founder of the UW Center for an Informed Public. Personal account: Views may not reflect those of my employer. #RageAgainstTheBullshitMachine
@ehaswell.bsky.social
Writing & Editing @ www.thesustainableprofessor.com 🌱Co-host, The Taproot Podcast 🌱Former midwestern biology professor finding her way as a writer and bon vivant in the PNW 🌱Check out what I'm up to or contact me: https://elizabethhaswell.carrd.co
@altnih4science.bsky.social
Facts & strategy, in an authoritarian takeover. Rightwing billionaires want to privatize NIH and use it to control universities. We work to cure diseases like cancer. Pers views. #science #medicine Signal: altnih4science.79
@asgct.bsky.social
Advancing knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.
@disabilityscoop.bsky.social
Disability Scoop is the premier source for developmental disability news
@pikehouse.bsky.social
Pikehouse Originals specializes in fabric creations for babies and special needs. Bibs, burp cloths, waterproof bed and chair mats, sensory quilts, ribbon quilts, slippers, g-tube pads and many other items. A portion of the proceeds supports CDKL5 DD.
@eheinzen.bsky.social
@mousemousecatcat.bsky.social
@flashes.blue
A photo viewing client for u from the creator of @skeetsapp.com & @bluescreen.blue iOS: https://t1p.de/b3o4x Android: Not available yet ❓ FAQS: https://t1p.de/24kj0 🐞 Bug Reports: https://t1p.de/phwii 💡 Feature Requests: https://t1p.de/8tmnc
@brwamples.bsky.social
Proud mom to a rare boy 💙 ARHGEF9 *epilepsy awareness *rare disease awareness *autism awareness *disability awareness Unfortunately, a Chicago Bears fan 🏈
@gbdownes.bsky.social
Dad of two, Professor of Biology @UMass, rare disease researcher and advocate, SPINES @MBL director, and runner. I use zebrafish to study the genetic control of locomotion and epilepsy genes. 🧪🧬🧠
@faithjoc.bsky.social
Mum of a profoundly disabled teen with a rare genetic condition, sadly lost to epilepsy. #sazberrywashere #sazberry. Geotech engineer. Maths geek. Wokerati. Anti-Tory. Pro 🇪🇺. Refugee from Twitter. ProgressiveAlliance.
@gamedevcharly.bsky.social
Experienced Technical Designer @ Playtonic, ex Sumo, ex Rare | #ActuallyAutistic | 💜 #Epilepsy Awareness 💜 | #Childfree | #Atheist | Mod Author | Physicist | Views are my own!
@cosmicity.bsky.social
Synthpop artist (cosmicity.com), proud Democrat, Producer in advertising, special needs parent, wannabe writer.
@lignanilab.bsky.social
UCL/ Neuroscience/ Epilepsy/ Gene therapy/ Brain Dynamics/ Dravet Syndrome/ CRISPR/ Homeostatic plasticity
@jlhatcher.bsky.social
Narrative medicine author north of Boston. Once a wildlife researcher in Kenya & Columbia University. Mission to interest doctors-in-training in epilepsy psychology (tackingonthestyx.com). Between cats. Gene flow research & invisible illnesses don't mix
@jngai58.bsky.social
Neuroscientist, BRAIN enthusiast, photographer, husband, dad. All views are my own.
@activityuplift.bsky.social
Fun activities for Dementia & Alzheimer's Caregivers, Seniors, and Activity Professionals. https://activityuplift.com
@epilepsy-sci.bsky.social
Physician Scientist in Epilepsy Hertie Institute Tübingen Precision Therapy l RNA-Seq KCNA2, KCNA1 and SCN1A
@amyneumann.bsky.social
Tech Optimist, Keynote Speaker, Author, Trainer, Artist, Reiki Master. #AI #nonprofits #empoweryournonprofit #thriveinai #nptech #LGBTQIA+ Ally | Insatiably Curious About Human Behavior | empoweryournonprofit.org ThriveInAI.ai