hEDSErica (Barnacles)
Hypermobile, achy, clumsy, fatigued, brain-foggy, and more. I was finally diagnosed with hEDS after many painful years. #EDS #hEDS #Hypermobility #chronicpain
@penthewriter.bsky.social
Novelist (Bella Books & Nine Star Press) and writer. This is my happy place. Find photos of cats & Cornwall, good news, funny things, snippets & updates of writing, and always ALT TEXT! #writersky No alt text, no follow. http://penelopefriday.com
@chronicillnessfc.bsky.social
An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF #EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD Mental health advocate, indigenous #LGBTQIA+🍉 Sign up at the form below🤍✨
@juliehulme-psyc.bsky.social
Professor of Psychology Education at Nottingham Trent University; Chartered Psychologist; National Teaching Fellow; fascinated by all things inclusive in higher education. Find me at https://www.ntu.ac.uk/staff-profiles/social-sciences/julie-hulme
@lexidh.catpasity.com
I'm a Norwegian childfree crazy cat lady, married to a crazy dog man, trying to juggle chronic pain with too many hobbies and being a functional adult. Crafting, reading, gardening, Lego, naps, all so much more fun than managing my rentals and investments.
@ferrygodmother.com
#VR #Rollerskating #event space spotlighting #TouretteSyndrome, #Neurodivergent, #AuDHD, #ADHD, #Autism. Has a #Veterans art gallery & VIP loft. For #businesses, org. #clubs, #community #groups. We are artists, 2d/3d animators, programmers. No Soliciting
@themaskedsingeruk.bsky.social
👀🎭 Who's Behind The Mask! @ITV 🤩🎭 Catch up on @ITVX 📺✨ #MaskedSingerUK & #MaskedDancerUK
@findingk8.bsky.social
One day at a time, golden retriever at my side. hEDS & all its friends (POTS, MCAS, CCI) Retired flight RN, aspiring NP? Hope isn’t found, it’s built - through action, perspective, and connection. 📍South Central PA
@chaoticnature.bsky.social
Democrat, Texan, weather enthusiast, cat and people mom/ grandma. Mostly retired special educator. Stop buying nonessentials! I’m tired of people being willfully ignorant. Things are NOT okay! RESIST! 🚫DMs
@conchitascanvas.bsky.social
Acrylic and watercolor paintings by Conchita Le BA in Sculpture and Design Artista Latina viviendo en San Diego Disabled artist, wheelchair user youtube.com/@conchitascanvas
@niamhgarvey.bsky.social
Autistic Author Editor of Bestselling 'Wired Our Own Way; An Anthology of Autistic Irish Voices'. @newislandbooks Author of: 'Looking After Your Autistic Self' JKP For kids: 'Being Autistic (and what that actually means)' JKP She/her niamhgarvey.com
@hmsacharity.bsky.social
We're a UK, patient-led charity supporting people with all kinds of symptomatic hypermobility to self-manage their condition where possible, educate professionals on how to support patients, and raise awareness generally. We like cake too hypermobility.org
@juliachilds.bsky.social
Uni lecturer (English for specific purposes), English for academic purposes tutor and mentor to neurodivergent students. MEd (Inclusive Practice). Ex special school teacher. Living with #hEDS. I am @pig_witch on the bird-site!
@10rowsaday.bsky.social
I’m Maryna – a knitting instructor, author and a lifelong knitter. I make tutorials and write books about simple ways to knit without stress to help you make beautiful knits. Club www.10rowsaday.com/club YouTube www.youtube.com/@10rowsaday
@foggymac.bsky.social
My thoughts are my own. I sometimes let them out to play #Scottishindependence #hEDs. I mostly look on the bright side of life. Mostly. I collect dust. I do #crafts and walk and socialise on Thursdays. This might change to Tuesdays.
@elenichambers.bsky.social
Disabled researcher/activist. Inclusion, access, involvement and co-production (mainly, but also wildlife, gardening, music, modern art, photography...) Works for different UK H&SC organisations, particularly likes Disabled People’s Organisations (DPOs).
@isabellefk.bsky.social
MEd MRes Interested in narratives of neurodiversity, inclusive education, double empathy, EOTAS, neuroqueering. She/her.
@gingerjanethebendy.bsky.social
Mom, wife, liberal AF. I make weird things. INFP. Ally. Living with hypermobile Ehlers-Danlos syndrome. Formerly @McGingerdwarf in the bad place. #hEDS #Ehlers-DanlosSyndrome #MCAS Crypto gets an immediate block
@just-only-me.bsky.social
North Texan from the Midwest Mom of five preK elementary middle school college and one in trades-excavator 4-22 Ehlers-Danlos ADHD POTS MCAS Occipital Neuralgia General Hospital Never Trump Liberal Leaning Independent Library and Education Supporter
@holistichv.bsky.social
🇬🇧Holistic, inclusive, trauma-informed, neurodivergent experience and inequalities aware, paediatric Nurse, Health Visitor &researcher (with lived experience of ADHD, hEDS,CRPS & SEND parenting). Think KPI (not ✅ box)- Keeping People Included! Views my own.
@k3lseyhardst0ne.bsky.social
Kelsey. Writer. Ohio. 30+ I will probably be posting a lot about: health care, chronic illness/disability (hEDS/HSD & more), politics, human rights, cats, gardening/plants, & Stray Kids.
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@cppedsa.bsky.social
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions. https://chronicpainpartners.com
@ka81.bsky.social
Data Scientist & AI PhD @UclanEng 🤓 @LpoolMakefest boss. Celebrated teacher 🏆 #Tes #Bima100. Crafting a unique #Autistic #ADHD & #Disabled edu/tech narrative
@dmdav.bsky.social
Interests Education /Carer/Employment /Arts /Inclusion/Autism/ADHD/Dyslexia. DSA Mentor/Academic Tutor. Freelance Specialist 1:1 tutor /consultant.
@gsspider.bsky.social
“Woman of a certain age” Hate Johnson/ Tories with a passion Rejoin EU #FBPE Anti Brexit Anti Trump ⭐️ There’s a crack in *everything*. That’s how the light gets in ⭐️ Family friends cooking good food walking books Twiglets & wine explain typos
@jnetrogers.bsky.social
Texas Democrat. Lifetime PTA Achievement Award recipient. DFW Boxer Rescue foster home and Adoption Advocate. Type 3 Ehlers-Danlos ♿️💙🐾 #voteblue #edsawareness #adoptdontshop
@eoineochaill.bsky.social
Former Health & Wellbeing Advisor, PT, Martial Artist, DJ/Presenter/Producer/Editor. Now, bedbound, chronic illness. MECFS, Long Covid, POTS, MCAS, EDS. Awestruck by stars, captivated by nature, perturbed for the future 🌍 AuDHD. Always learning 🧠 ☯️
@trutiffany.bsky.social
35. Disciple. Poet. Swiftie. KCN2. INFP. 4w5. Chronic pain/illness. #EhlersDanlosSyndrome. Opinions my own. https://www.amazon.com/hz/wishlist/ls/168TED9HBCEAL
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed) https://ohtwist.com
@ack025.bsky.social
Links+follows related to: Ehlers-Danlos + Lyme + MEcfs + Autoimmune (Myasthenia Gravis, Sjogren’s, Hashimoto’s) + POTS + Mast Cell + ApoE (4/4) + Bilateral Vestibulopathy + BPPV + SIBO + migraine + mito myopathy + Long COVID + LMCA & Celiac Artery Stenosis
@whywhy.bsky.social
Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp
@ehlersdanlosdaily.bsky.social
Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@sailorgirl2017.bsky.social
Life is in flux. Right now, I live aboard a sailboat. Liberal politics, the environment, & watching woodworking videos are some of my interests. I will build those kitchen cabinets, my Love, in our little dream house in NS! I promise you that. xox
@pennicat.bsky.social
Shy, disabled, queer, autistic. Requires alt text to follow you. Writer of contemporary m/m/m and lesbian historical novels. Book related stuff found mostly at @penthewriter.bsky.social Cornwall dweller. May actually be the cat in the picture
@binkysmum55.bsky.social
political junkie/believer in science 😷 2x guillain-barré syndrome survivor big fan of critical thinking #NeverVoteConservative
@andiwheeler.bsky.social
Being the best *me* I can be Living with Chronic Invisible Illnesses (Hypermobility, POTS, CFS, Endometriosis) Adopted Scot, general geek & dog lover. If you can be anything in this world BE KIND!!
@diaryofasickgrl.bsky.social
Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
@thepotspostman.bsky.social
Just a mailman with #POTS Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
@bendybrain.bsky.social
#hypermobility (and related conditions) brain-body neuro #research @bsmsmedschool UK | Dr Jessica Eccles | http://Linktr.ee/bendybrain | views own | https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #NEISVoid #MedEd for EDS/HSD & co 🔗 conditions go to: 👉 https://gptoolkit.ehlers-danlos.org/ 👈
@sedsconnective.org
The foremost hypermobility neurodivergence community charity BrainBodyMind AUTISM ADHD DYSPRAXIA TS DYSLEXIA EDS HSD pain Chair @JGjanegreenmbe.bsky.social Patron @bendybrain.bsky.social Web: www.sedsconnective.org Link: https://linktr.ee/JaneGreenSEDS
@stickmancomms.bsky.social
Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
@hedsphysicist.bsky.social
X @hEDS_Physicist | Insta @hypermobile_physicist #Bisexual PhD Physicist & industry engineer journeying and blogging through #ChronicPain with #hEDS #MCAS #dysautonomia. Posts not medical advice. #BLM https://linktr.ee/hypermobilephysicist
@blokeonwheels.bsky.social
Can't stand the Tories, passionate about disability rights and especially #RightToLove Football: NUFC and Brackley Town Also @aifantasy19.bsky,Social (NSFW) Pink One: @Sharronhoney@bsky.social
@jgjanegreenmbe.bsky.social
Founder @SEDSConnective.org Fellow FCCT / UK Rep. EFNA CAB / exAHT / MA Ed / exnational lead ND / Keynote CONNECTIONS neurodivergence Hypermobility Disabled often discombobulated / Parent / carer MBE for services to neurodivergent hypermobility folk 202
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app