Benjamin Stecher
Associate Director of the Silverstein Foundation for Parkinson's with GBA as well as Chair of the Patient Advisory Board to Rune Labs.
@ponderingpd.bsky.social
*Educator/Learner *Reader/Writer *Fan/Critic (Go Bills!) *Parent/Child *Wife/Partner *Healthy/Diseased (Dx:Parkinson's 2017) Blog: ponderingpd.ca
@wecanthrivepd.bsky.social
Dx’d #Parkinsons 2020. 🥊 Psychologist 🧠 Doing my best to thrive! 💯 💯 This account is focused on and follows Parkinson’s-related and medical/health content. Here to learn ✏️ and to give and receive support 🦋🦋🦋.
@philjerky.bsky.social
Tall, beardy, stand-up comedian with Young-onset Parkinson's based in Brum. All views expressed are my own.
@scienceofpd.bsky.social
Personal account of the Director of Research at Cure Parkinson's - All views my own - Kiwi - Kia kaha - 侘寂 - https://scienceofparkinsons.com/
@rachelreidwrites.bsky.social
Author of the GAME CHANGERS series and TIME TO SHINE. New book: THE SHOTS YOU TAKE out March 4, 2025. Living that Early Onset Parkinson’s life in Nova Scotia. she/her
@parkinsonseurope.bsky.social
🌷The leading voice for #Parkinson's in Europe since 1992 🌷Supporting the 1.2m Europeans with #Parkinsons and their families 🌷Founder of #WorldParkinsonsDay
@pdmama.bsky.social
From the mighty North East, living in Surrey. Mother of 2. Dx #yopd 2013 aged 29. DBS Jan 2024, removal June 2024. Re-implantation imminent...
@matteagles.bsky.social
Parkinson’s for 50 years, positivity activist ⚒️lifelong Hammers fan
@meigasfora.bsky.social
Formerly meigas_fora, once a cyborg 🤖 always a cyborg #DBS • #Translator (UAX & MIIS) and Parkinson’s activist, often at the same time: parkinsonic.com
@elegantfowl.bsky.social
Writer, editor, historian, cricketer and Parkinsonian. YOPD, OED, PhD. Co-author of Spycraft. petelangman.com
@paulacroxson.bsky.social
Neuroscientist & science communicator. President at @stellatecomms.bsky.social, Senior Producer for @storycollider.bsky.social, musician and open-water swimmer.
@ricketywarrior.bsky.social
60-year-old Parkinson's Warrior diagnosed in 2018. Parkinson's advocate and volunteer. Devoted husband of @HelenJane369 #parkinsons #parkinsonscommunity #pdcommunity
@seanstillman.bsky.social
https://linktr.ee/seanstillman Author (SPCK) | Minister |Broadcaster | Here to connect with fellow PWP #Parkinsons, share news about Zac’s Place in Swansea & reflect on faith, love, justice, mercy, grace … Still learning how to cuss without cussing.
@sarahsayshi.bsky.social
Retired teacher, l love my family and friends, poetry, art, writing, and Mother Nature.🌸 Supporter of peace, love, and caring for each other and the planet.💗 English/Dutch. ⚡️⚡️PD makes life a big challenge at times. Still grateful 🙏
@groveayers.bsky.social
Amalgamist Stage 2 Chronic Volunteerism Living on my feet, 12 words at a time. Keep Moving.
@tspiresjones.bsky.social
Neuroscientist. 🧠 Professor at the University of Edinburgh Current President of the British Neuroscience Association FENS-Kavli Network Alumna Mom to 2 teens, a cat, and a rescue dog. 🐈⬛🐕🐾 SciFi/fantasy nut - book recommendations welcome! 👽🚀🛸
@lushlobster.bsky.social
Beermonster Pro-Europe Anti-Corrupt Tories. Anti-Hunting. Cancer & Parkinsons advocate 2024 and still no social care provision
@nooyawkaff.bsky.social
Liberal Irish-Catholic NYC native, former firefighter now battling #Parkinsons Alaskan Malamute doggie dad, Staten Islander, Fordham Grad #YOPD #MLB #Baseball #Mets #LGM #BlueCrew #NeverTrump #Resist #FBR 🚫MAGAts
@helenjane369.bsky.social
Passionate about reading, genealogy, crafting, gardening and wellness. Advocate for the Parkinson’s community and devoted wife to @RicketyWarrior. #parkinsons #parkinsonscommunity #pdcommunity
@dranniehickox.bsky.social
Clinical Psychologist, Neuropsychologist, PhD (Neurosciences). Therapist in private practice. I blog occasionally on Medium about mental illness, families, mental health shaming and stigma. My blogs: https://medium.com/@anniehickox
@grahamjackson.bsky.social
Living a full life with Parkinson's in Shropshire UK. Retired Physics and chemistry teacher. Love fell walking in the Lake District.
@floydskloot.bsky.social
Married to Beverly Hallberg. Author of 21 books-poetry, essays, memoirs, and fiction. Father of NYT bestselling author Rebecca Skloot. #Parkinsons diagnosis 2018. "Dancing in the Cosmos: New and Selected Poems" LSU Press Fall 2025 floydskloot.com
@bbplover.bsky.social
PNW Birder, Artist. Married to author @floydskloot.bsky.social who has #Parkinsons, Stepmother to NYT bestselling writer Rebecca Skloot.
@seffyg.bsky.social
Counsellor | Morris Folk Choir | Living with Parkinson's & ADHD | Crystal Palace FC | Fighting Fit FC | England PD Walking Football | LGBTQ+ Ally | Black Lives Matter | He/him
@kevq.bsky.social
Mainly visual stargazer/takes the occasional phone snaps. Has Parkinson's. Has written a few astronomy/stargazing books : https://tinyurl.com/y3jpm9wt
@allparkedout.bsky.social
I have a camera. I have a pen. Sometimes I use them. Dx YOPD / ADHD.
@shakinginmyboots.bsky.social
Wife, mom, Activist YOPD Ambassador Parkinson’s Foundation Board Member. Past life hospital Quality Director MSHA, CPHQ El Paso, TX 🏠 https://linktr.ee/elabibkiyarash
@bonnieht.bsky.social
Writer. Retired teacher. Lay Buddhist Leader. XX. INFJ. LFL. Parkinson's, arthritis, osteoporosis. Wife, mother, Nana, step-mom, auntie. North Canada. Vegan. YouTuber. Ancestors rich & poor, conquered & conquerors. No DMs.
@puckfarkinsons.bsky.social
Sort of blogging about life with young onset Parkinson's disease (amongst other stuff) www.puckfarkinsons.uk Latest fundraising: https://www.givewheel.com/fundraising/5606/100-mile-grand-slam-thats-4-x-100-miles/
@phdmarie.bsky.social
Interested in all science, but particularly neuroscience and neurorehabilitation! Science communicator, consultant, & podcast host (People Behind the Science, Changing What's Possible: The Disability Innovation Podcast, The Anti-Doping Podcast).
@dempseytwo.bsky.social
Observer of things. Writer of words. Thinker of thoughts. These are them. For Justice, Democracy, voting rights, neurology, pugs. Truth is an objective standard of reality. Feel free to browse. I read the documents.
@momfisch3.bsky.social
Living with #Parkinson’s/ Disciple of Jesus/ Wife/Mom/ Grandma/ Reforming Couch Potato/ Peds Dental Assistant/Dog lover/ Interested in helping others traverse medical journeys
@carobellum.bsky.social
✨Cerebellum✨, Neuroimaging, Brain Stimulation, ML & NLP Postdoc at Western University 🇨🇦 Formerly at University of Cambridge 🇬🇧 PhD at University of Oxford 🇬🇧 https://www.caroline-nettekoven.com
@martijn-arns.bsky.social
Founder Brainclinics Foundation & Visiting Scholar Stanford Brain Stimulation Lab | Neuroscientist | Entrepreneur | Stratified Psychiatry | TMS | Depression | Heart-Brain Coupling | Psychedelics | ADHD | Sleep | Chronobiology | Marathon running | Guitar |
@srheilbronner.bsky.social
nonjudgmental neuroanatomist https://sites.google.com/view/heilbronnerlab
@jclauneuro.bsky.social
Neurosurgeon. Anatomy • Informatics • Modulation • Surgery. AIMS Lab.🧠🎯 Collaborative Medicine. Collaborative Science. Multisport.🏊🚴🏃 https://scholar.google.com/citations?user=69lqJ4AAAAAJ
@alikwidge.bsky.social
Neural engineer, stealth mode neuro-entrepreneur, interventional psychiatrist, sometimes neuroscientist, dad. Making brains work better. https://www.tnelab.org
@tilldembek.bsky.social
Clinical Neuroscientist focussed on Deep Brain Stmulation, currently in Boston.
@jamesgis.bsky.social
Geography/GIS educator FRCGS FRGS. Climate SLR. #Dal #SMU #QE2PlatMedal. Semple GeogEd Award. Apoplectic-adorable. Shot 67. Book addict (socialtechfuture) CBCIdeas. Sci-fi. Old movies. WHU COYI. Parkinsons sucks | michaeljfox.org | Mi’kma’ki (Nova Scotia)
@cllremmaedwards.bsky.social
Councillor for Bishopston and Ashley Down and Green Group leader on Bristol City Council. Transport geek. Loves trams and dogs. She/her
@dkindc.bsky.social
PD Dx 2016 (selective in following people due to time constraints) "..the symptom of gastroparesis in a Parkinson patient is delayed onset of a dose of levodopa." https://www.neurologylive.com/view/effects-of-gi-dysmotility-with-parkinson-medicati
@parkytracks.bsky.social
Writer, #Parkinsons 5.5 years, tackling with fresh air, #exercise, music, humour and fabulous support from family and friends www.parkytracks.com #BuryStEdmunds #NeuroHeroes #ParkinsonsExcellenceNetwork
@lynnley.bsky.social
Sickened and horrified by what’s happening in our country▪️Owned by four rescue cats who are trying to keep me sane 🐈⬛🐈⬛🐈⬛🐈⬛▪️ LGBTQIA+ Ally 🏳️🌈🏳️⚧️▪️#RaiderNation #RN4L 🏴☠️☠️▪️Sometimes funny▪️Old, liberal hag ▪️Living with Parkinson’s▪️SF Bay Area▪️Retired
@sin-gra.bsky.social
Lawyer living with yopd since 2023 but symptomatic for at least 5 years prior. Trying to slow it with exercise cold plunging - anything that might !