alana
life on pause. mostly here for #LongCovid #MECFS community. currently very severe. other interests may include climate, music, sports, queer stuff (she/her)
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@0slersweb.bsky.social
Hillary Johnson, author of The Why: The Historic ME/CFS call to Arms. 92 pp. Audio, Ebook + paperback at Amazon. Untold morbidity, unspeakable suffering, a pandemic ignored. A case history of what went wrong. "Indispensable." "Jaw-dropping."
@maosbot.bsky.social
Parent, spouse, Australian, Professor of Machine Learning in Oxford. Bayesian ML, Long Covid, trans rights, photos of dog, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb
@jacysonne.bsky.social
Disability Advocacy ♿️ #FMMECFS #Migraineur #POTS #Dystonia #Spoonie #MyotonicDystrophy Rare brain tumor survivor Too many med dx to list here Domestic Violence and the Disabled Pro: Science LGBTQ BIPOC AAPI
@creativetiff78.bsky.social
I'm in N. California, 46 y/o Married, Chronically Ill ( #SmallFiberNeuropathy, #mecfs, #migraine, #dysautonomia, #hEDS, #fibromyalgia, #HS) LCSW, disabled #artist #knitter #witch #advocate #writer Bi 🌈🧙♀️🦥🥄🧶🎨🌻💙🌊 https://linktr.ee/CreativeTiff78
@stutteringloudly.bsky.social
Person who stutters. OCD. ADHD. #TEFL English Teacher in Training. #SocialWork student. Former #MentalHealth Worker (2015-2022). #HighRiskCOVID19 / #immunocompromised😷 #AplasticAnemia🦴🩸🤍 #COVIDinformed😷 #DisabilityJustice🗣️ #ProWrestling enthusiast
@tatianatrifan.bsky.social
Life is full of surprises, but never when you need one. Completely allergic to any form of racism, sexism, genderism. #StandWithUkraine Views are my own
@sallybourliakas.bsky.social
Mum, scientist, Sci-Fi reader Studio Ghibli fan☮️ 🐈 🪄 ! I’ve had #LongCovid for 4+years Covid is Airborne wear FFP2/3 masks! Air filtration needed in schools & workplaces now. #Teamclots #RejoinEU #FreePalestine
@susanss1980.bsky.social
I LOVE the feel of a book, the snuggle of a cat/child, and the love of a good man from Australia, now living in Indiana! NO DMs! This is NOT a dating site!! Never Trumper and dislike for repugnants and MAGAS! I do suffer from long covid! It is not pretty!!
@apostraphehehe.bsky.social
@skateintraffic.bsky.social
trying to understand how this is all put together so we can craft a just and flourishing society when capitalism falls 🏴 he/him longboarder 🛹 gardener 🌱 scavenger ♻️ tool collecting 🧰 sewing ✂️ 3D printing 👨💻 electronics repair 📲
@drdevinguthrie.bsky.social
Existential Psychologist, ACT Coach, Death Doula. (They/Them) LifeandDeathCoaching.com Work centers neurodiversity, disability, climate crisis, queerness, & meaning in life in spite of the inevitability of death. Currently accepting new clients!
@thisistheillme.bsky.social
🇬🇧: Severe ME & long covid 🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus) 🏳️🌈
@scholenveilig.bsky.social
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com 🌍The Netherlands
@adrianfarrellat.bsky.social
Alexander Technique teacher and author of Effortless Guitar (Amazon & Audible). #pwME https://www.alexander-technique.london/
@jaseygalore.bsky.social
Disabled by #MyalgicEncephalomyeltis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° Free Palestine ° Dutton can kiss my dot ° #doomer in #Lutruwita I mostly repost things because my mind isn't sharp and lively anymore
@m-i-hermit.bsky.social
• Slipping through the cracks = Medically Induced Hermit • I enjoy Nature & Wildlife Photography 📷 • Spoonie • Healthcare worker until disabled many years ago with multiple chronic illnesses, including #ME/CFS • Armchair Traveler • HERmit •
@roryq.bsky.social
(Ethno) botanist | Final year "mature" UG | Autistic/ADHD/ME | Queer | Ex-(ethno)musicologist | Excited about taxonomy, mosses, fantasy plants, Tolkien | also @historicalplant.substack.com on here
@sportyspoonie.bsky.social
Enjoying my active and other hobbies while coping with a variety of chronic illnesses. She/they, bi, spoonie, vegan, rodent mom, SASS witch. Martial arts, hiking, strength training, video & tabletop gaming, Toki Pona, the color pink and more.
@pinkopalrose.bsky.social
I love art & music & cooking & baking & reading & animals & am nuerospicy lol. I have chronic health problems & PTSD. Democrat, obviously. I don't post much but follow lots because I'm isolated & lonely 😔
@sannibenke.bsky.social
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community. Sharing #bookrewievs and #liMEricks.
@buds-disability.bsky.social
A community of disabled people working together to remove the barriers that disable us. Registered Charity 1102511 #Fair4All #Reach4Work
@jemmabrown.bsky.social
Blind accessibility advocate and influencer living neurospicy and chronic illness life. https://linktr.ee/jemmabrown
@acap42.bsky.social
Surviving on spite & Eurovision hype She/her 💖💜💙 @acap42 on Twitter @[email protected] 😷🛡️🥄🦓
@ecogeekmama.bsky.social
native bees 🐝 / nature / macro photography / cats 💕 🐈 🐈⬛ / actually autistic and adhd #AuDHD / MCAS 😷 / #covid #climatechange / scrambling for *a way forward*
@autistic-me.bsky.social
Autistic and chronically ill. Interested in disability, education, research and change. And cute animals and music 🐧🐶
@longcovidresource.bsky.social
The Long COVID Resource is dedicated to providing information and resources on Long COVID and summaries of studies. Long COVID Resource: https://longcovidresource.com
@medicalgaslighting.bsky.social
Exposing medical gaslighting. Advocating for ME/CFS awareness & justice. Disrupting neglect, demanding change. Voices ignored, now amplified. #pwME #MECFS #millionsmissing #GreatestMEdicalScandal
@leateagarden.bsky.social
union carpenter/civil engineer/dog lover/bird lover/gardener/ anti-fascist to the core...hence the cussing. appalachian living in south cackalacka salting the vibes while fighting severe phenotype of long covid since 3/2020
@simonthelikeable.bsky.social
Dad, Sailor, Intronaught Bit of a smelly Lefty Covid Zero Long Fibromyalgia Also neurodivergent..... so excuse my spelling 😊 No DMs unless you know me please
@beckisliving.bsky.social
22 yo w/ ME, PoTS, MCAS & ASD wheelchair user covid cautious previously severe, now moderate-severe she/he, genderfluid lesbian http://lifeasbeck.wordpress.com
@buddug.bsky.social
@bilgecetin.bsky.social
Living in the Netherlands. M.E. since 2019. Here to connect with the ME folks and researchers. english, dutch and turkish
@sonyajean.bsky.social
Perimenopausal neurodivergent philomath disabled by Long Covid induced ME/CFS & POTS I miss hiking, gardening, crafting, & baking. Other interests: native plants of New England, graphic design, autoimmune & rare diseases, gut health & audiobooks
@globaldeafresearch.org
GDRI is a deaf-led research non-profit organization founded with the goal of bettering the lives of deaf people and their communities around the world through the collection, analysis and effective dissemination of robust data. (www.globaldeafresearch.org)
@nanccan.bsky.social
Mom, Wife, Grandma, Teacher, Friend. I did it my way even when Myalgic Encephalomyelitis forced me to slow down and rest (pacing yourself is extremely difficult when there's so much you still want to do!!!).
@mikeseumarathons.bsky.social
I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 32 countries so far. £51k raised. Next race: #33 Belfast, N.Ireland (04.05.25) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons
@missusbb.bsky.social
@coastalthinking.bsky.social
Sea-creature, shore-dweller, gardener. #LongCovid #MECFS #POTS. Engaged Buddhism. i used to think read write teach (literatures of the South/Africa/Australasia/Indian Ocean & climate, colonialism, environment, littorals, the sea, water, women’s stories)
@coldon1983.bsky.social
Aberdeen fan. Passionate about an independent Scotland. SNP member. Live by the sea and a Loch. ME for 11 years #pwME #rejoin #FBPE 🏴