CAPA
The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.
@codieprimeau.bsky.social
🇨🇦🏳️🌈 EN/FR • Physio & Research - #arthritis, #pain, #rehab, #LGBTQ+, #engagement • Assistant Professor - Western University • Arthritis Research Canada 📍 Anishinaabek, Haudenosaunee, Lūnaapéewak and Attawandaron territory - colonially London, ON
@alexhaagaard.bsky.social
Opinions = mine Shouting into the void about chronic illness, philosophy of medicine and design. If I want advice, I'll ask for it. If I want to hear about the merits of a biopsychosocial framework, my account has been hacked.
@profkarimkhan.bsky.social
@blindcanadians.bsky.social
The Alliance for Equality of Blind Canadians (AEBC) is a national charitable organization of primarily blind, deafblind, or partially sighted members. For more about us visit our website at www.blindcanadians.ca
@arthritisdietitian.bsky.social
Arthritis Dietitian | Living with Sjogren's/RA | Speaker | Blogger | Views my own 🇨🇴🇨🇦
@creakyjoints.bsky.social
Community of people living with arthritis & rheumatic disease. EST 1999.
@jrheumatol.bsky.social
The Journal of Rheumatology features peer-reviewed research articles on clinical subjects from scientists working in #rheumatology and related fields.
@schroeder-uhn.bsky.social
🦴 The Schroeder Arthritis Institute are researchers, clinicians and educators focused on new treatments, diagnostic tests, and models of care for arthritis. 🔗 https://linktr.ee/schroederarthritisinstitute
@acejointhealth.bsky.social
JointHealth™ — Your science-based source for easy-to-read arthritis info on treatments, research, and health policy. Visit us at www.jointhealth.org Follow us on Facebook: facebook.com/ACEJointHealth
@arthritischeryl.bsky.social
❤️ RA patient and Occupational Therapist helping others live life to the fullest *with* arthritis. 🎤 Arthritis Life Podcast ❤️ Rheum to THRIVE: evidence based self management & support program. https://arthritis.theenthusiasticlife.com
@arthritisresearch.bsky.social
Leading Research. Finding Answers. Saving Lives. Canada’s largest clinical arthritis research centre. arthritisresearch.ca
@iasp.bsky.social
International, member-supported, non-profit association that brings together scientists, clinicians, healthcare providers, and policymakers to stimulate and support the study of pain and to translate that knowledge into improved pain relief worldwide.
@disaballiancebc.bsky.social
A cross-disability voice in BC. Promoting a more inclusive & equitable society for people with all disabilities through direct services, community partnerships, systemic advocacy, research & publications. Since 1977. https://disabilityalliancebc.org/
@virginiamci.bsky.social
Executive Director @PeoplePainNetwork |Chair @CanadianPain PWLE com | @canadian_pain NAC | Public Speaker | USASP PWLE Comm | Views my own #ChronicPain https://linktr.ee/VirginaMcI?utm
@arthritisaction.org.uk
We're the UK charity helping people with arthritis to live fuller lives with less pain. www.arthritisaction.org.uk
@impactrials.bsky.social
We are a community of mentors and partner organizations dedicated to Increasing capacity for Maternal and Paediatric Clinical Trials (IMPaCT) in Canada. To learn more visit impactrials.ca
@migrainecanada.bsky.social
Migraine Awareness, Advocacy and Education 🇨🇦 Nonprofit organization Migraine impacts 5 Million Canadians. Help us Eliminate Stigma. 🧠 https://migrainecanada.org/
@cantrain.bsky.social
CANadian Consortium of Clinical Trial TRAINing platform • Better Prepared. Better Care. Together • Research Institute of the McGill University Health Centre (RI-MUHC) Montreal, QC • https://wecantrain.ca
@lhunter1310.bsky.social
Retired nurse and healthcare executive; now a patient partner in research. Live life with #spinalstenosis #arthritis #fibromyalgia #DDD #IBS #endometriosis “Turning negatives into positives daily” 🇨🇦
@ferprogram.bsky.social
We train, mentor, and mobilize today’s advocates, champions, and leaders in family engagement.
@lli-1.bsky.social
Professor of Physical Therapy | Harold Robinson Chair in Arthritic Diseases @UBC @Arthritis-UBC | health services & implementation scientist https://arthritis.rehab.med.ubc.ca/
@arthritis-ubc.bsky.social
We focus on research in #Arthritis #PhysicalActivity #eHealth #KnowledgeTranslation #ImplementationScience #PatientEngagement https://arthritis.rehab.med.ubc.ca/
@sporalliance.bsky.social
The Strategy for Patient-Oriented Research (SPOR) Evidence Alliance is a pan-Canadian research initiative designed to promote evidence-informed health policy and practice changes, with patient and public partner engagement embedded throughout.
@vinamohabir.bsky.social
just a girl who likes to yap about pediatric pain, stigma, graduate school, cancer, disability, patient partnership, justice, and the internet 🌺 settler on stolen land (tkaronto/toronto)🧡
@kidsinpain.bsky.social
Improving children’s pain mngmt by mobilizing evidence-based solutions through coordination & collaboration. Join the conversation #ItDoesntHaveToHurt linktr.ee/kidsinpain
@jameslindalliance.bsky.social
Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address. Visit our website: https://www.jla.nihr.ac.uk/
@peoplepainnetwork.bsky.social
The People in Pain Network believes that people living with pain can improve their quality of life by taking control of the management of their pain. #PSMES
@buffer.com
Create and share social media content anywhere, consistently. Built with 💙 by a global, remote team. ⬇️ Learn more about Buffer & Bluesky https://buffer.com/bluesky
@dawnrichards.bsky.social
Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement, #PPI. Opinions my own.
@proulxlaurie.bsky.social
All about patient engagement, especially in pharmaceutical policy & research. Living with juvenile rheumatoid arthritis since I was 14. Writer, cat lover, and classical music nerd 🧐
@jillianengages.bsky.social
Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer. She/her
@pxphub.bsky.social
👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.
@hettymulhall.bsky.social
Associate Scientific Director at CIHR-IMHA | Views my own, reposts not endorsements | Non-practising Veterinary Surgeon
@anetto.bsky.social
Patient partner keenly interested in patient and caregiver inclusion in research priority setting and healthcare system decisions at every level including governance. #MedX a formative experience. #PatientExperience
@piper-uhn.bsky.social
PiPER is a strategic research initiative at the University Health Network. Our mission is to make engaging patients, families, and care partners in research a new culture that can enhance health research, outcomes, and care experiences for all.
@disabilitywithanna.bsky.social
🏳️🌈🇵🇰🇨🇦 🗣️ chronic illness and mental health awareness ♿️ AS | FM | PMDD | dermatillomania | & more ✍🏽 writer and editor 🏥 patient research partner
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app