Ceci with Sjögren ♿
Española learning and sharing about Sjögren'sD. Con NeuroSjögren desde 2023
@undeadminotaur.bsky.social
Offering web services for #pwLC and #pwME advocates. Visit cloud.healthnexus.online for access.
@chronicpain247.bsky.social
I’m a wife and mummy, disabled spoonie 🥄chronically ill, trying to advocate for remote work for disabled people in media 🫶♿️
@hjdunagan.bsky.social
Amateur drummer, political nerd, tech support geek, and GOPACKGO. Long COVID sucks. 🏳️🌈She/Her/Ella @hdunagan@mastodon.social on Mastodon
@janetmarx.bsky.social
🦋Lupus/Sjogrens/Fibromyalgia Warrior & Patient Advocate 🌊Liberal🇺🇦Support Ukraine 🚺Prochoice🏳️🌈LGTBQ Ally😀”You Rise By Lifting Others!”🚫No MAGA cult , fakes, scams,bots, trolls, porn, DMs
@csic.es
Cuenta del Consejo Superior de Investigaciones Científicas, el mayor organismo público de investigación de España. www.csic.es
@sjogrensmom333.bsky.social
I'm new to Bluesky...be patient with me. I'm a patient advocate, co-group leader of a support group. Mom and grandma, pet mom. #Adoptdontshop #spayneuter #sjogrens #invisibleillnesses
@kbishof.bsky.social
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org 🔵 Pw/ #LongCOVID, #IACCS, #Disability 🔵 Fmr. Firefighter/Paramedic 🔵 Fmr. Educator, Coach, & Dir. of Athletics 🔵 B.S. (ex science & health promotion) 🔵 #StillCOVIDING #COVIDConscious #Mask
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@rpdiscapacidad.bsky.social
Te contamos la acción del Ministerio de Derechos Sociales, Consumo y Agenda 2030 @msocialgob.bsky.social para que las personas con #discapacidad disfruten de sus #DDHH.
@autoimmuneaware.bsky.social
@immuneconfidentmd.bsky.social
4x boarded immune system 🕵️ Sjögren’s & dysautonomia patient Midwest Mom 👧🏻👧🏻👦🏻 Elder millennial, recovering people-pleaser, low-key rebel Telehealth 🔜
@epierce80.bsky.social
Mom of great kids, Hekatean hedge witch, intuitive, nurse to the chronically ill community, nonconformist, aspiring village crazy lady. Ready for what's next! 💜🤍🗝️🌒🌔🌘
@sociedadsemi.bsky.social
🩺 Perfil oficial de la SEMI con información de su actividad, grupos de trabajo, publicaciones y de los médicos #internistas de España 📲 #orgullodeserinternista | www.fesemi.org
@consalud.bsky.social
Diario online más influyente del sector #salud en España. Toda la #ActualidadSanitaria. #ConSalud
@ladaorg.bsky.social
Improving access to care and quality of life by wielding the patient and care partner voice as a catalyst to advance advocacy, education, awareness and research efforts.
@lupusencyclopedia.bsky.social
Rheumatologist empowering patients with knowledge #lupus #Sjogrens #MCTD #UCTD Tweets are my own. 🏳️🌈💜
@chronicillnessmeme.bsky.social
Just a place where a bunch of chronically ill peeps can come to laugh through the pain together and maybe earn some extra spoons 🥄 instagram.com/chronicallyillmemes
@debwald.bsky.social
@arthritisdietitian.bsky.social
Arthritis Dietitian | Living with Sjogren's/RA | Speaker | Blogger | Views my own 🇨🇴🇨🇦
@fiona1979.bsky.social
Living my best life thanks to the NHS. Anyone else with CVID and Sjögren’s please get in touch. Love comedy, tennis and playing bridge! Faculty Head of Additional Support for Learning. Keen to learn more about any of the above while 🦋 remains sane.
@loriinreallife.bsky.social
Wife, Mom, former therapist, executive coach & OD consultant. Sidelined due to Sjögren’s, Autonomic Neuropathy, ME/CFS, & PEM. #Guardians #Buckeyes #Browns
@otskiff.bsky.social
Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #MECFS, #ChronicMigraine, #HSD, #MCAS & #TeamClots 🫁 AHP Committee @LongCovidPhysio. Swiftie 🫶, F1 🏎, cricket 🏏 fan London, UK
@polybiorf.bsky.social
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
@rheumepi.bsky.social
epidemiology and population health research in rheumatic autoimmune disease (lupus and more), pregnancy, and bias in medicine | standard disclaimer: views are my own
@staceylclardy.bsky.social
Autoimmune Neurologist. Physician Scientist. Editor, Neurology Podcast & Neurology Minute.
@lupusmadrid.bsky.social
🌟 Asociación Madrileña de Lupus 🌟 🦋 Apoyo, visibilidad y recursos para personas con lupus. 📢 Difundimos información fiable y promovemos la investigación. 🌍 Únete a nuestra comunidad y ayúdanos a marcar la diferencia. www.lupusmadrid.org
@klstenhouse.bsky.social
🍁🇨🇦🍁 #MS, MS rehab, neuroplasticity #EBV, #postviral, #PASC, personalized medicine@ genetics, Covid cautious, play detective, ex-research chemist and #biochemicalpathway 🤓. #TheMSGym. Opinions are mine. Also native gardening, knitting, more. she/her
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@arianek.bsky.social
Co-founder Textillia.com! ✂️💕• SFU Geog • Public health/urban planning/open source nerd • Sick AF #Sjogrens #Dysautonomia #IVIG #IatrogenicIllness • ♿️🌈🇦🇲🦆🐶🖖📚💌🌿 • Vancouver • she/her • C4C🇨🇦 FB: https://www.facebook.com/groups/care4complexcanada/
@thepotspostman.bsky.social
Just a mailman with #POTS Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
@leopardgizmo.bsky.social
Psych Clinician (30yrs+) practices interpersonal neurobiology, rinzai zen, silversmithing. #Lupus, #Bronchiastasis & #LongCovid Passionate about climate change, public health, women’s rights, climate, birds of all sorts — and REASON. INTP
@meadvocacyproject.bsky.social
The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID. Unceded Canada
@sarahschafermd.bsky.social
Medical educator, MD-patient. I debunk Sjögrens myths. www.sjogrensadvocate.com - I show people with Sjogren's how to use credible resources to advocate for timely diagnosis and comprehensive care for this complex, multisystem disease.
@doctorstrive.bsky.social
Doing my best to live well with #sjogrens. Mind and body can't be separated.
@inflammatory.bsky.social
Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a rare heterogeneous, but treatable autoimmune mediated peripheral neuropathy characterized by demyelination. #CIDP #immunosky #Neurology #NeuroSky #NeuroSkyence #ankylosingspondylitis #ms
@lauramiers.bsky.social
Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
@neurosjogrens.bsky.social
Advocate for NeuroSjogrens & assorted other chronic illnesses. Posts articles & re-posts items this acct is interested in. Advocacy rather than advice.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app