Clare OโRourke
Mummy, Maternity Nanny and Advocate to all Children but especially all our San Filippo Syndrome babies and families ๐๐๐๐๐๐๐๐๐
@haidynshope.bsky.social
Advocate. Author. Mama. โขCure Sanfilippo Syndromeโข
@valorofveda.bsky.social
Fighting to cure Sanfilippo Syndrome ๐ SavingVeda.com https://www.tiktok.com/@valor_of_veda?_t=8rn5mt2LyTW&_r=1 https://www.instagram.com/savingveda?igsh=cjk3MGYwOXlsM2x2
@bsky.app
official Bluesky account (check username๐) Bugs, feature requests, feedback: [email protected]