Cure EB
Raising funds for #EpidermolysisBullosa research and clinical trials. Please support us by joining our fundraising initiatives 🦋 Together we can #cureEB. https://www.cure-eb.org
@therddr.bsky.social
https://TheRDDR.org RDDR is an invaluable resource dedicated to the storage, organization, and dissemination of rare disease research datasets.
@rdndlab.bsky.social
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions. https://tinyurl.com/rdndkcl
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@curesyngap1.bsky.social
SRF, est 2018, exists to improve the quality of life of SynGAP patients through the research and development.
@jcchildsfund.bsky.social
Official Blue Sky account of Jane Coffin Childs Memorial Fund. Follow for updates on JCC fellows, alumni, and scientific board members. jccfund.org
@cancerresearchuk.org
We’re the world's leading independent cancer charity dedicated to saving lives through research, influence and information. cancerresearchuk.org
@seeability.bsky.social
Supporting people to live, love, thrive and belong for 225 years. https://www.seeability.org/ #WeSeeAbility
@mysociety.org
Our pro-democracy technology puts more power in more people's hands. Subscribe to our updates at https://www.mysociety.org/subscribe/
@techforgoodcast.bsky.social
We work with charities and social impact orgs to help them harness the full power of digital - and with funders & partners to create an environment of support. www.wearecast.org.uk
@rnib.bsky.social
We’re the Royal National Institute of Blind People. Profile pic: Our logo, bold black capital letters spelling RNIB, with a bold pink underline.
@madlinsudn.bsky.social
Digital Impact Consultant. Helps charities with digital comms, content strategy and other things that follow. One half of @RadioLento.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app