Deborah Robins
Advocate for Duchenne muscular dystrophy healthcare and research. I champion patient partnership and co-design, direct democracy and ukulele.
@patientled.bsky.social
Patient-Led Research for #LongCovid! http://patientledresearch.com
@oligogirl.bsky.social
Translating science from bench to bedside and from jargon to lay language
@breathewithmd.bsky.social
We are a 501(c)(3) nonprofit public charity that educates and raises awareness about breathing muscle weakness in Neuromuscular Disease (NMD). We promote a proactive approach to respiratory care. Our mission focuses on noninvasive ventilation (NIV).
@thebunyip75.bsky.social
Born Wellington, NZ 1949. Author/Illustrator of 176+ Children’s Books. First published 1972. Theatre, Art, & TV work since 1967. Monster Promotions. Melbourne, Australia 🐈⬛ Presents Creative Online Primary School Sessions. www.michaelsalmon.com.au
@mrcctu.bsky.social
We carry out innovative #ClinicalTrials and develop new #Methodology that has global impact, improving health worldwide. #MedSky #StatsSky
@scifri.bsky.social
Entertaining & educational conversations about science, tech, + more. Hosted by Ira Flatow and Flora Lichtman. From WNYCStudios #SciFriBookClub 📚 ' Everything Is Tuberculosis' by John Green
@molgen.mpg.de
The Max Planck Institute for Molecular Genetics in Berlin. We want to understand how the genome works and how it is regulated, especially during embryonic development & disease. Imprint: https://www.molgen.mpg.de/impressum
@asgct.bsky.social
Advancing knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.
@melanomamum.bsky.social
D/Chair @Melanoma Patients Australia, Chair @Cancer Voices SA Senior Policy @South Australian Business Chamber Mum of 3, #melanoma #supportivecare #cancer #immunotherapy #survivorship #cancerresearch #clinicaltrials #prevention #HTA
@worldduchenne.bsky.social
Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement 🔗 https://www.worldduchenne.org/
@duchennenl.bsky.social
Duchenne Parent Project vecht voor genezing of behandeling van spierziekte Duchenne, betere zorg&hulpmiddelen! Doe mee via http://duchenne.nl NL15INGB0000818818
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app