DYNC1H1 Association
Nonprofit 501(c)(3) patient advocacy organization working to find safe, effective treatments for individuals with DYNC1H1-Related Disorders
@biorxiv-biochem.bsky.social
@fda.gov
Yes, it’s really us! Our posts are FDA-approved! Visit us at https://www.fda.gov
@thecrid.bsky.social
https://TheCRID.org More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
@therddr.bsky.social
https://TheRDDR.org RDDR is an invaluable resource dedicated to the storage, organization, and dissemination of rare disease research datasets.
@rdndlab.bsky.social
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions. https://tinyurl.com/rdndkcl
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app