ERDERA
Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
🔗 erdera.org
Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
@chanzuckerberg.bsky.social
@frontiersin.bsky.social
We publish groundbreaking discoveries by the world's top experts. #openaccess https://fro.ntiers.in/aboutUs
@radboudumc.bsky.social
Het Radboudumc is een universitair medisch centrum voor patiëntenzorg, onderzoek en onderwijs, gevestigd in Nijmegen.
@amsterdamumc.bsky.social
Wij zijn Amsterdam UMC. We reiken de hand aan Amsterdam & omstreken en aan iedereen die met ons een gezond leven wil bevorderen.
@consilium.europa.eu
27 EU governments making decisions together in the European Council & Council of the EU. Learn, participate, share. Latest news @press.consilium.europa.eu #eucouncil #euco
@europarl.europa.eu
Your voice in the EU 🇪🇺 Updates, news, and insights from the European Parliament - the heart of European democracy. Privacy policy: https://www.europarl.europa.eu/pdf/data_protection/data-protection-notice-bluesky-en.pdf
@ombudsman.europa.eu
The EU Ombudsman promotes good EU administration by investigating complaints and systemic issues. Account managed by the comms team. europa.eu/!bc33kQ Website: ombudsman.europa.eu/en/home
@science.org
The world's leading outlet for cutting-edge research in all areas of science. https://www.science.org
@nature.com
Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
@natrevdrugdiscov.nature.com
Editorial team of Nature Reviews Drug Discovery www.nature.com/nrd
@ema.europa.eu
EU regulatory authority working for public and animal health. We ensure that all medicines available on the EU market are high quality, safe and effective. Based in Amsterdam. https://www.ema.europa.eu/
@ihi-synthia.bsky.social
SYNTHIA (Synthetic data generation framework for integrated validation of use cases and AI healthcare applications) is a multidisciplinary collaboration of 32 Partners. Focus on 6 diseases. Funded by the Innovative Health Initiative. www.ihi-synthia.eu
@eshg.bsky.social
The ESHG is a non-profit organization. Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims.
@ghga.bsky.social
The GHGA Consortium operates a national infrastructure for secure management of genomic data in Germany.
@rd-rn.bsky.social
An online hub supporting patient driven research ideas to be realised & flourish. Open to all. Join the #RareDisease #Research revolution at www.rd-rn.org * connections * resources *mentoring NIHR funded, co-created by CamRARE, PLRH & patient experts
@bbmrieric.bsky.social
Pan-European network to support biobanking and biomolecular research. Co-funded by 🇪🇺 within EU Horizon 2020 Research Infrastructures programme
@erneurogen.bsky.social
The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/
@unituebingen.bsky.social
Offizieller Account der Universität Tübingen. Impressum: https://uni-tuebingen.de/impressum/ Datenschutz: https://uni-tuebingen.de/impressum/bluesky-hinweise/
@who.int
We (The World Health Organization) are the United Nations’ health agency championing Health For All. Always check the latest posts for updated advice/information. We will remove misinformation, spam and hate speech here. www.oneworldhealthforall.org
@eurohealthnet.bsky.social
A European partnership of public health bodies working to reduce health inequalities and improve health and wellbeing for all.
@erc.europa.eu
European Research Council, set up by the EU, funds top researchers of any nationality, helping them pursue great ideas at the frontiers of knowledge. #HorizonEU
@eupha.bsky.social
The European Public Health Association, or EUPHA, is an umbrella organisation for public health associations and institutes in Europe.
@rdndlab.bsky.social
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions. https://tinyurl.com/rdndkcl
@ern-rnd.bsky.social
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://www.ern-rnd.eu/education-training/webinars/
@jardinjointaction.bsky.social
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
@medicalsciencesncl.bsky.social
Established 1834. World-leading researchers & clinicians teaching the doctors, dentists & medical scientists of tomorrow. #WeAreNCL #WeAreFMS
@arc-southlondon.bsky.social
The Applied Research Collaboration (ARC) South London is one of 15 @nihrarcs.bsky.social We work with our partners on applied health and care research.
@erknet.bsky.social
ERKNet is devoted to improving the lives of patients with rare kidney diseases. https://www.erknet.org
@vascern.bsky.social
Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe. 🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education 📌 Visit us: www.vascern.eu
@daretoberare.bsky.social
Our mission: CURE THIS All sales from Dare to be Rare go directly to funding research for the cause you choose at checkout. To shop, learn more, or become a partner, check out daretoberare.org
@ernmetabern.bsky.social
The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients. Visit us 🔗 https://metab.ern-net.eu/
@ap-hp.bsky.social
Bienvenue sur le compte de l'AP-HP, Assistance Publique-Hôpitaux de Paris, 1er CHU d'Europe. Nous soignons et innovons 365 jours/an. https://www.aphp.fr/
@rarevolution.bsky.social
Account for the BLACKSWAN Foundation and RE(ACT) Community #RAREvolution, stand up for research on #rarediseases blackswanfoundation.ch http://www.react-congress.org 🦓
@events.embl.org
🧬 Join our world-class courses, conferences, and workshops at the forefront of molecular life science and its applications. 👩🏻🔬 www.embl.org/events/ 🔬
@ebi.embl.org
EMBL's European Bioinformatics Institute (EMBL-EBI) provides open biological data resources and tools, and performs basic research in computational biology. https://www.ebi.ac.uk/
@embl.org
The European Molecular Biology Laboratory drives visionary basic research and technology development in the life sciences. www.embl.org
@thelancet.bsky.social
Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823. 🌐 thelancet.com
@genomicsengland.bsky.social
We’re working to enable faster and deeper genomic research, to bring genomic healthcare to all who need it.
@10xgenomics.bsky.social
Enabling researchers to answer biology’s hardest and most elusive questions with innovative #singlecell, #spatialbiology & #insitu technology.
@wyssinstitute.bsky.social
The Wyss Institute seeks to transform engineering, medicine and the environment by creating new materials and devices using Nature’s design principles.
@molbiosystems.bsky.social
Leading conference on Eukaryotic Gene Regulation & Functional Genomics in Latin America. Volunteer-run. Biennial. Next edition: Sep 29- Oct 3, 2025. 📍Puerto Varas, Chile 🇨🇱 🌐More info at molbiosystems.com
@humancellatlas.org
Our mission: To create comprehensive reference maps of all human cells—the fundamental units of life—as a basis for both understanding human health and diagnosing, monitoring, and treating disease. https://www.humancellatlas.org
@fmiscience.bsky.social
The Friedrich Miescher Institute for Biomedical Research (FMI), affiliated with @unibas.ch and @novartis.bsky.social, conducts research at the forefront of biomedicine and trains the next leaders in the life sciences.
@bcmgenetics.bsky.social
The Department of Molecular and Human Genetics at Baylor College of Medicine is transforming medicine, research, and education in genetics and genomics.
@imbmainz.bsky.social
We study how organisms grow, age & develop disease through basic research in epigenetics, genome stability & related fields 🧬 www.imb.de / Imprint: https://www.imb.de/impressum-imprint 📍 #Mainz, Germany
@natgenet.nature.com
Nature Genetics is a monthly journal publishing high impact research in genetics and genomics. Part of @natureportfolio.bsky.social Repost/like=interesting/relevant, not necessarily endorsement.
@crcordeliers.bsky.social
Basic and translational research on #cancer, #immunity, #metabolism and #ChronicDiseases, to make #PrecisionMedicine a reality.
@plymbiomarsci.bsky.social
Official page for the School of Biological & Marine Sciences at the University of Plymouth, UK.