Friedreich-Ataxie Förderverein e.V.
Auf der Suche nach Behandlungen & Heilung für Friedreich-Ataxie
@ern-rnd.bsky.social
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://www.ern-rnd.eu/education-training/webinars/
@vincinel114.bsky.social
Cure Friedreich's Ataxia (FA) www.curefa.org/donate Cat lover, Whovian, Breaking Benjamin addict, and archivist of my own lost media miau Linktree (WIP): https://linktr.ee/vincinel114
@bart-jan.bsky.social
Ataxia researcher and advocate. My interests range from Friedreich Ataxia to VPS13D
@suartce.bsky.social
Patient Engagement Manager at the National Ataxia Foundation. Assistant Professor (Part-Time) at McMaster University. All views are my own. She/Her.
@ataxia.bsky.social
@ataxiafoundation.bsky.social
Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
@afaf-asso.bsky.social
Compte de l'Association Française 🇫🇷 de l'Ataxie de Friedreich #AtaxieDeFriedreich #MaladieRare #FriedreichAtaxia ♿️ www.afaf.asso.fr/
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app