FTD Disorders Registry
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure for frontotemporal degeneration. Numbers have power. Join the Registry. Advance the science. #EndFTD www.ftdregistry.org
@profsimonwad.bsky.social
๐๐ณ๐ฐ๐ง๐ฆ๐ด๐ด๐ฐ๐ณ ๐ฐ๐ง ๐๐ฆ๐ฏ๐ฆ ๐๐ฉ๐ฆ๐ณ๐ข๐ฑ๐บ, ๐๐๐ ๐๐ฆ๐ฏ๐ฆ๐ต๐ช๐ค ๐ต๐ฉ๐ฆ๐ณ๐ข๐ฑ๐ช๐ฆ๐ด ๐ง๐ฐ๐ณ ๐ค๐ฉ๐ช๐ญ๐ฅ๐ฉ๐ฐ๐ฐ๐ฅ ๐จ๐ฆ๐ฏ๐ฆ๐ต๐ช๐ค ๐ฅ๐ช๐ด๐ฆ๐ข๐ด๐ฆ๐ด ๐๐๐, ๐ญ๐ฆ๐ฏ๐ต๐ช, ๐ข๐ฅ๐ฆ๐ฏ๐ฐ, ๐ฎ๐๐๐ ๐งฌ๐ฒ
@jdpereira.bsky.social
Neuroscientist. Assistant Professor of Neurology at UAB Trying for a better, more humane approach to science. Interested in neurodegenerative diseases, AI toolsets, and science in general! STOP ALS.
@mattey6789.bsky.social
A human with eclectic tastes. Lover of art, science, travel, spooky things, theatre, video games, tarot, animals and a whole lot more! Scientist, genetic counselor, diabetic (Type 1) and patient advocate. Say hi! ๐งฌ๐
@ern-rnd.bsky.social
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://www.ern-rnd.eu/education-training/webinars/
@dtalmasov.bsky.social
Neurologist and Psychiatrist at @Columbia University Medical Center. Views are my own.
@dementiacommunity.bsky.social
Dementia Community is a Charitable Community Benefit Society, a membership cooperative that provides learning and networking opportunities for the dementia care community. For more information please visit our website: journalofdementiacare.co.uk
@mndeducation.bsky.social
The Education & Information team for the MND Association @mndassoc.bsky.social Providing trustworthy and accredited information resources about #MND and #Kennedy's disease.
@mayalhenry.bsky.social
Speech, Language and Hearing Sciences & Neurology Director, Aphasia Research and Treatment Lab studying Primary Progressive Aphasia (PPA) The University of Texas at Austin
@empconvs.bsky.social
We empower families affected by dementia to live as well as they can by delivering evidence based and researched communication courses, one to one dementia focused therapeutic support, regular webinars and a carers voice group.
@khushboo-verma.bsky.social
Behavioral Neurology Fellow at Stanford. Vice Chair at AAN Adults with IDD. Future Director of UT Tyler Dementia Center. Dogma ๐. In my SRK era. ๐
@clairecadwallader.bsky.social
Postdoc @ UCSF Memory and Aging Center. Cognitive resilience, physical activity, aging/dementia, sex differences, precision medicine.
@alsassociation.bsky.social
Fighting ALS on every front through research, care services, and advocacy.
@jpeelle.bsky.social
PI + parent = professional cat-herder โข inclusiveness โข he/him โข studying the neuroscience of language at Northeastern University Textbook: The Neuroscience of Language (Cambridge University Press) http://jonathanpeelle.net/the-neuroscience-of-language
@timstobrazil.bsky.social
Native Virginian. NYC via SF via VA. Roving musician, reclusive philosopher, weather and turf geek. Director of Field Ops, New York Mets. Posts are mine.
@ucl-neurodomain.bsky.social
The UCL Neuroscience Domain brings together neuroscience researchers across faculties at UCL to foster collaboration. Home of the flagship UCL Neuroscience Symposium. https://www.ucl.ac.uk/research/domains/neuroscience
@alzassociation.bsky.social
The Alzheimerโs Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ alz.org
@dementiauk.bsky.social
The specialist dementia nursing charity. ๐ Not currently active on Bluesky. Find us at dementiauk.org.
@seamorphus.bsky.social
#nft collector and generative artist buy my art: https://opensea.io/collection/seamorphus-lt-suns #bitcoin #ethereum
@katmctee.bsky.social
Artist + teacher. Austin, Texas since forever. Caregiver for my hubs who has FTD. Tall nerd into music, art. Geriatric paisley punk. Love books, film, color theory, huge empty vistas, iced tea, museums, long rambling conversations. ๐ She/her๐งต๐ถ๐
@herminemohr.bsky.social
Senior Scientist, Neuroendocrinology, Oncology, special interests in PPGLs and Cancer Merabolism, @HelmholtzMunich, Mother, Cats&Dog&Fish-owner, still believing in the Good and Common sense in People ORCID 0000-0002-3061-1166
@rafaelapolicarpo.bsky.social
๐ต๐น๐ง๐ช Neuroscience & Dementia research ๐ง In a love affair with iPSCs & neurons ๐งซ PostDoc Fellow @ Rosa Rademakers lab @ CMN_VIB ๐งฌ Science Communication ๐ฃ Women in STEM advocate ๐ฉโ๐ฌ Previously PhD Baekeland Fellow @ Bart De Strooper lab & Janssen Pharmaceutica ๐งช
@kukarlab.bsky.social
Working to understand and cure Alzheimer's disease, Frontotemporal dementia, ALS. #Progranulin #FUS #TDP43 #lysosomes #RNA #iPSCs #inflammation
@maureenshenher.bsky.social
@abfbrain.bsky.social
We bring researchers and donors together to cure brain disease. #CureOneCureMany hootbio.com/abf
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@malutansey.bsky.social
Stanford, UTSW, WashU, Emory, UF & now Indiana Uni SOM Stark Neuroscience. Latina, mother, daughter. Immunity inflammation lysosomes neuroimmuno neurodegen, EIC NPJPARKD. Posts my own.
@pennftdc.bsky.social
The University of Pennsylvania Frontotemporal Degeneration Center linktr.ee/pennftdcenter
@frank-shewmaker.bsky.social
https://www.linkedin.com/in/frank-shewmaker-53315838/ Looking for ideas to better identify, prevent & treat dementia
@billflavin.bsky.social
MD PhD @LoyolaChicago, short snapper @NDfootball, sports neurologist @UCLABrainSPORT & @UCLANeurology, family man first, studying tau and alpha-synuclein in TBI-related neurodegeneration https://www.researchgate.net/profile/William_Flavin2
@ksalsfighter.bsky.social
KS farm gal, KSU alum, wife and mother. Passionate about supporting those living with #ALS and #FTD
@gwenzeigler.bsky.social
She/Her/Dr. Neurologist, humanist, Woman, Queer, Trans, Feminist, 1st Gen College Degree, fashion lover, views are my own.
@rtslt.bsky.social
#SLT | #PPA #dementia #FTD #aphasia researcher | #PhD student at UCL | RA on 'Better Conversations with PPA' trial | #discourse #implementation #coproduction #complexity #UX #telehealth
@uclbrainscience.bsky.social
We are a global leader in research and education into the mind and brain. www.ucl.ac.uk/brain-sciences
@dementialeague.bsky.social
Fighting #dementia, #Alzheimers, & other degenerative conditions by sharing #brain health #science. Supporting the challenges of #caregiving. #Research #news summarized by experts. Join us & share! Not #medical advice. #NonProfit. South Bend, IN. #memory
@careberry.bsky.social
๐ CareBerry (www.Ceider.org) Supporting #dementia & Alzheimerโs, #caregivers, & researchers. ๐ก Resources and tips| ๐ซ Caregiving Tools | Research Participation๐ Empowering lives, one CareBerry at a time. โค๏ธ See our games & supports.
@theaftd.bsky.social
AFTD envisions a world with compassionate care, effective support, and a future free of Frontotemporal Degeneration (FTD). #EndFTD https://www.theaftd.org/
@leannetogher.bsky.social
Professor, Faculty of Medicine and Health, University of Sydney, #SLP SLT #braininjury #aphasia #NHMRC Investigator Fellow #ABI Communication Lab Director, Director @speechbite, Chair Brain Injury Australia, Vice Chair IBIA
@maxinehollis.bsky.social
Love all animals. Humanist. Love games, especially Risk and chess. Science rules!
@tricmc.bsky.social
Speech pathologist with a PhD, living on Gadigal land, working at Sydney Uni. Bunny wrangler. #speechie #slpeep #slp #apraxia #cssd #ebp #ultrasound #childSPEECHdis #ssd #dysarthria (she/her)
@sharonsavage.bsky.social
Neuropsychologist, Senior Lecturer, Young onset dementia, dementia risk reduction, Transient Epileptic Amnesia, Cognitive interventions. Cognition in menopause transition. Star Wars nerd. Dachshund lover <3