GotNoSpoons
Mom, wife, web developer, artist. Chronically ill with #LongCovid / #POTS / #MECFS . I make custom armbands for the Visible app which is a lifesaver for me.
@dysautonomiac.bsky.social
I have a brain blood flow disease. Work @ Lumia Health. Living with #pots #mcas #eds #longcovid #dysautonomia #chronicillness #orthostatichypertension #bronchialatresia #spoonie #zebra
@wearlumia.bsky.social
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@alt-irs.altgov.info
This is a #AltGov account. Federal employee. Love my job. Ask for help and you shall receive. Read any USPS mail you get from the IRS. #Resist #spoon 🥄
@fieldsofmistria.bsky.social
Fields of Mistria is a fantasy farming / life sim RPG in development 🌱 Download on Steam: http://bit.ly/Mistria
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@altcdc.altgov.info
A collective of public health experts. Resisting harmful policies, fighting disinformation, and defending public health from within. Not an official CDC account—but close enough for transmission. Proudly #AltGov Tips -> Signal: altcdc.99
@judithshuey.bsky.social
@mecfsclinicmn.bsky.social
We are a free clinic staffed by all volunteers to treat ME/CFS and Long COVID.
@wpcampus.org
WPCampus is a non-profit advancing higher ed through WordPress and accessibility, offering resources and networking for faculty, staff, and students. Learn more at WPCampus.org.
@dst1980.bsky.social
@theguardian.com
The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com 🇺🇸 Guardian US https://bsky.app/profile/us.theguardian.com 🇦🇺 Guardian Australia https://bsky.app/profile/australia.theguardian.com
@rinnliadon.bsky.social
She/Her/They. 💜🤍🖤💜|💗💜💙|🏳️🌈 Nerd. Gamer. Lover of Dungeons & Dragons. Aspiring Writer. Twitch Affiliate Variety Streamer. Business: [email protected]
@domsalisbury.bsky.social
Ex-atmosphere/ocean scientist. Very ill with M.E #pwME. Patient advocate (when able). Interested in how we live. Open-minded, but always sceptical. Particular interest in calling out shoddy research and bad practice. [UK] https://domsalisbury.github.io
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@naomiwhitt.bsky.social
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website. www.alifehidden.com
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@strangerandstranger.net
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
@drdanielloy.bsky.social
Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
@sfdirewolf.bsky.social
Author, editor, activist, cat lover. Founder of the Disability Visibility Project. #DisabilityJustice feed I created: https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho More about me https://linktr.ee/disability_visibility
@fascinatorfun.bsky.social
Retired Lawyer, cook, Europhile, books, music, good conversations, gardens, walking. Bird site refugee 🇬🇧 🇮🇪
@ariskatzourakis.bsky.social
Viruses, Evolution, Education, Trade Unions, things like that. Prof at Uni of Oxford, NEC member for UCU. Posts mine, reposts not.
@nisreenalwan.bsky.social
Professor of Public Health. Southampton, UK. Citizen of the world but also proud immigrant☀️ Posts are my own personal opinions not those of any organisation. Reposts are not necessarily endorsements. Anti-war, anti-discrimination, pro-equity, pro-feminism.
@cathnoakes.bsky.social
Pro Dean Research and Innovation in Engineering and Physical Sciences at Leeds University. Indoor air, ventilation, infection risks, fluid dynamics, academia, EDI in science and a few cats. Views my own. #academicsky
@jessicawildfire.bsky.social
Professional doomscroller https://www.the-sentinel-intelligence.net/ (Ghost) https://www.the-sentinel-intelligence.com/ (Substack)
@broadwaybabyto.bsky.social
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 https://www.disabledginger.com A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
@toshiakima.bsky.social
Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@laylamoran.bsky.social
Member of Parliament for Oxford West and Abingdon | Chair of the Health & Social Care Select Committee | Here because Musk ruined the ‘other (social) place’ | she/her | Promoted by the Lib Dems, Unit C5 Grange Court, Barton Lane, OX14 3NB
@profstevegriffin.bsky.social
Professor of Cancer Virology, University of Leeds. Co-Chair, Independent SAGE
@dalupton.bsky.social
Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Clean air/COVID safety advocate/activist/researcher. Other health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
@cleanairstars.com
Non-profit. Helping businesses better protect their customers from viruses like SARS-CoV-2. Fix your air with the guides cleanairstars.com/steps. Air filter recommendation tool (non-profit) at filters.cleanairstars.com
@drkatecushing.bsky.social
Doctor, scientist, mum, recently retired w ill health. Public Governor Newcastle upon Tyne Hospitals Trust Long Covid & CCH. Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU Wrote Little Orange Book 4 parents of babies & small kids.
@adsquires.bsky.social
Biophysical Chemist. Aerosol scientist. Jew. Likes lipids, nano materials, x-ray / neutron scattering, pretentious coffee. (he/him/his). Twitter @adsquires
@barryhunt008.bsky.social
------------------------------------- 🍁 The World Needs More Canada 🍁 ❤️ 💪 🇨🇦 ---------------------------------------
@sallywrites.bsky.social
MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary Winner of the Book Bloggers' Novel of the Year Award 2022 Owned by three-legged rescue dog ME/CFS https://linktr.ee/SallyDoherty
@drannanz.bsky.social
Immunologist | Flow Cytometrist Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS Senior Research Fellow Liggins Institute | University of Auckland DysImmune Research Aotearoa www.dysimmune.nz 🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
@catinthehat.bsky.social
Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
@cleanaircreworg.bsky.social
#CleanAirCrew #COVIDisAirborne Airborne pandemic tips & tools #COVIDco2 #CorsiRosenthalBox #ClearTheAir
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@claguenjc36.bsky.social
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise incl CV/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal