Infusion Access Foundation
We fight for patients' access to provider-administered therapies so you can get back to enjoying your life.
⭐ Learn more: infusionaccessfoundation.org
@undiagnosed2.bsky.social
Just a girl trying to survive US health care... I lost access to my previous account, cvonraesfeld. Until that gets resolved, follow me here. 💜
@ladaorg.bsky.social
Improving access to care and quality of life by wielding the patient and care partner voice as a catalyst to advance advocacy, education, awareness and research efforts.
@philthepage.bsky.social
Comic Artist...allegedly. SOULD/REQUIEM/STONECOP philthepage.artstation.com 🏳️🌈🏳️⚧️
@michaelnobbs.bsky.social
Artist and tea drinker living on a hillside in Wales. Learning to live a gentle creative life and encouraging others to do the same. Diagnosed with #MECFS in 1997. www.patreon.com/gogently https://linktr.ee/michaelnobbs ✍️🧶
@spoonie-support.bsky.social
#wheelchair warrior, #cat mom, #DIDsystem, #chronicallyill, #trauma survivor, #stoner, #disabled, #mentalhealth advocate, standing up for #abuse survivors and sharing my story since 2016. I'm nothing special. I'm just me #spoonie
@andrewgurza6.bsky.social
Disability Awareness Consultant, soon to be author of NOTES FROM A QUEER CRIPPLE (2025), podcaster, talking about disability, queerness and all that. Website: www.andrewgurza.com
@hsph.harvard.edu
Health, dignity, and justice for every human. This is the official account for #HarvardChan: hsph.harvard.edu
@painnewsnetwork.bsky.social
Greetings to our new and old friends on Bluesky! Pain News Network is an independent, non-profit online news service that provides in-depth coverage about chronic pain and illness from the patient perspective, without corporate or government influence.
@hunterdphoenix.bsky.social
Living a #WritingLife & active in #WritingCommunity. Love Music; both Listening & Playing. Visually Impaired/Blind with added #VisualSnow, #Akinetopsia, #Tinnitus, & #Depersonalisation Looking for diverse Mutuals so will follow back 😎
@epilepsytalk.bsky.social
Welcome to Epilepsy Talk! A place to connect with those who are impacted by epilepsy.
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@elliefou.bsky.social
writer, reader, medical historian. they/them. sometimes i talk about 🇨🇦 politics. my animal crossing passport reads 'teary-eyed intellectual' and yeah that about sums me up. married to @boyz4now.bsky.social 💍🌈
@jmbrister.bsky.social
❤️ Romance author 🌻 Disabled (physical & mental health) 🥑 Quirky Millennial 👩🏫 Former English Teacher 📚 Bookworm 🧑🧑🧒 Wife & Mom 🐈 Cat guardian 🤣 Meme connoisseur 🕹️ Arrow in Knee Adventurer 🔗 https://jmbrister.blogspot.com/
@migrainechat.bsky.social
Education researcher turned migraine advocate #MigraineChat host Vermont maple syrup aficionado 🚫 Unsolicited advice She/Her/Dr (PhD kind) Header: Dinosaurcouch MigraineChat Resources & Discord: https://campsite.bio/migrainechat MC feed/starter pack👇🏻
@girlrebuilt.bsky.social
Goth mom to humans & cats. Pain warrior, MS, ME/CFS, h-EDS, fibro, endo, IBD, POTS, c-PTSD, depression, anxiety... list too long. DV survivor. Lover of books & music. Photographer. Join me in my amusement park of misadventures... it's dark in here... 🇨🇦🇧🇧
@thebookgoblin1404.bsky.social
Melinda is an author and historian currently working on her first manuscript (slowly…like a sloth that has also been tranquilized.) and knows too much history to allow Hate to win. #MS Warrior Woman, dx 2014. 🚫DMs, No Posts = No follow. 🚫 Dating, 🚫 Porn.
@allyann.bsky.social
Living with & advocating for ME, POTS & FM, ex-IT. Homebound & at times bedridden. News and Recipe junkie. Living in Millowl, home of the Bunurong people, Victoria, Australia
@lauraannecasey.bsky.social
@wsjmag / @wsj / @IAPE1096 board Journalist. Past: WSJ Trust fellow, disability coverage. Views are my own. NYC https://www.wsj.com/news/author/laura-casey
@wordsbychloe.bsky.social
freelance books, culture & ♿ journo/editor/copy | author 🖋️ romantasy w/ messy, disabled girls | rep: Maria Whelan @ Inkwell | words: Independent, R29, Grammys, Fast Company, Bookseller etc | AuDHD | https://linktr.ee/WordsbyChloe | [email protected]
@lygianavarro.com
indie journalist editor. reporter. producer (ES & EN). cover: Latine, LGBTQ+, health stories +more #DisabilityJustice. disabled. queer. #LongCovid + #ME. immigrant in Tkaronto Signal: Lygia.65 lygianavarro.com contributing writer @discojourno.bsky.social
@katha1970.bsky.social
Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
@kellyesparza.bsky.social
YA/Adult mystery writer & freelance editor | #amquerying (again) | mental health & Lupus advocate & warrior💜| @Path2pub.bsky.social contributor✍🏼 | she/her | EIC: @flaremagazine.bsky.social | layout @anascribe.bsky.social https://linktr.ee/kellyesparza
@petermorley.bsky.social
Patient Advocate (morethanmySLE from Twitter) *Disability & Chronic Illness Activist. *♿️, Cancer Survivor & #Lupus Warrior. *Testified 3x for Congress. *Anjelika is my #servicedog YouTube Congress Videos: https://www.youtube.com/@petermorley_sle/videos
@wandaladawn.bsky.social
Real Person here! Let me know when you guys feel like engaging! 😜 Fitness Trainer, Writer, MS & More! 🧡 💙 Isn't this "Social Media?" 🌊 🧡 #MultipleSclerosisAwareness 😂🤣 #Laughing #Jokes #Politics ♑️ #Capricorn 🏋🏽♀️🧘🏽♀️🤸🏾♀️🚴🏽♀️ #Fitness #HuskyMom 🎤📚⚖️📝 #Knowledge
@affectorofchange.bsky.social
Therapist by day, Warrior of Light by stream I make (w)holesome content related to final fantussy and TTRPGs while yapping about mental health Fruities, Trepies, ClubCRT, & Pride Guild https://RollForResilience.com | https://twitch.tv/affectorofchange
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@bubbaann.bsky.social
Autoimmune fighting, music loving former news junkie. Gardener. Pastry snob. Former friends & family: it was your morals not your politics. #dmb #curems #sicsempertyrannis #newjerseygirl #lfgm🗽🍎⚾️🧢🧡
@millennialmh.bsky.social
Chats mental & chronic illness 🥄 BPD, suicide survivor ; Fibromyalgia 💜 CFS💙 | Neurodivergent🌈 Dyspraxic Dyscalculia, Rejection Sensitive (RSD) | trying to recover from trauma🌱 rebuilding life after loss | She/Her🏳️🌈 😍fiancé💍| 📍UK📍FAMILY LEAVE ME ALONE!
@magicalunicorns.bsky.social
A Disabled mom Who Loves to craft and create! My goods are always made by me at my house. I have options for commercial sales too so if your a company and need stuff from me let me know! https://ko-fi.com/magicalunicornscreations
@genpatient.bsky.social
Bringing together young adults with chronic & rare conditions 🌍 Events • Programs • Peer-Support Meetings 🔗generationpatient.org
@msf.ca
Doctors Without Borders is a medical humanitarian organization that provides medical assistance to people affected by conflict, epidemics, disasters or exclusion from healthcare. Independent. Neutral. Impartial. More: hootbio.com/DoctorsWithoutBorders
@ibdmoms.bsky.social
A place for moms affected by IBD to call their own! A 501(c)(3) organization founded by IBDMoms for IBDMoms. #IBDMoms #IBDMomsPodcast #IBDMomsSummit
@amcollegegastro.bsky.social
http://gi.org 20,000+ members dedicated to advancing digestive health & improving patient outcomes. #GastroSky #LiverSky Journals: AJG, CTG, ACGCRJ, EBGI https://bsky.app/profile/did:plc:fmug4zegnl7lf6ljp7aokpeh/lists/3lav6nra5wj2b
@voiceforibd.bsky.social
IBD Patient Advocate💜🧬 Hispanic/Latina🇵🇪🇺🇸 Crohn’s & Colitis Foundation National Board of Trustees #CrohnsDisease & #UlcerativeColitis🦠 Committed To Finding A Cure🔬🧬
@laurenfeldmd.bsky.social
Assistant Professor of Hepatology & Gastroenterology at UMass | Passionate about workforce equity, medical ethics and women's health in liver disease. She/her.
@alanmoss.bsky.social
Physician, Scientist Professor of Medicine @BU Chief Scientific Officer @CrohnsColitisFoundation
@achronicvoice.com
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://www.achronicvoice.com/
@stacyhurt.bsky.social
Chief Patient Officer 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own
@loriplung.bsky.social
#IBD Patient Advocate, #IBD Patient Support @UPMC, Crohn's & Colitis/UPMC support group leader, #Crohn's for 44 years, #Ostomy for 36 years, #ShortBowelSyndrome #TPN
@justinleongwh.bsky.social
Gastroenterologist | Singapore General Hospital | Singapore 🇸🇬
@poopwitchx.bsky.social
@Twitch PARTNER • she/her/poop | ✨CHARITY RAISED: $599K✨| [email protected] | hyper chaotic witch who loves her Poop Coven 🥹♥️ Twitch.tv/poopwitchx
@crohnsandcolitisau.bsky.social
Empowering people to live fearlessly while we help search for a cure of Crohn’s and colitis.
@multiplesclerosis.bsky.social
A source of multiple sclerosis and related news, views and research https://patienttalk.org/category/multiple-sclerosis-2/
@thepotspostman.bsky.social
Just a mailman with #POTS Here to spread awareness and advocate for those with #dysautonomia and #chronicillness