Kevin Freiert
A seasoned #DrugDevelopment professional with outstanding #peopleskills and a passion for serving patients and families affected by #raredisease. A broad and deep understanding of Biopharmaceutical R&D.
@fda.gov
Yes, it’s really us! Our posts are FDA-approved! Visit us at https://www.fda.gov
@hdashnow.bsky.social
Asst. Prof, CU Biomedical Informatics. #RareDisease #Genomics #STRs #bioinformatics #WomenInSTEM. Parent. Aussie. she/her Views my own. https://dashnowlab.org/ Img by familydestinationsguide (CC-BY)
@zebrabande.bsky.social
☀️Sammlerin der Sonnenstrahlen im Leben ☀️ Patientensprecherin #Twankenhaus #EhlersDanlosSyndrome #hEDS #SFN #MCAS #kptbs #dis #DissoziativeIdentitätsstörung #Trauma #NotJustSad, #ADHS, v.A. #Autismus #rareDisease #SelteneErkrankung #Assistenzhund
@jillianengages.bsky.social
Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer. She/her
@victoriakillian.bsky.social
👩🏻🏫Always chronically educating & advocating ⚕️Board Certified Patient Advocate 😷Disabled patient with multiple chronic & rare diseases 🗣️Speaker
@laurenctesta.bsky.social
PhD candidate and #raredisease patient-scientist in Gene Therapy and Vaccines at Penn. Interested in genetic therapies, aortas, and climbing. #BillsMafia
@gencounsnews.bsky.social
genetic counselor (neuro/psych), fiber arts and other crafty stuff, film photography, science art, cats, fancy pens, words, etc.
@jacksonlab.bsky.social
Est. 1929, JAX is a non-profit scientific research institute specializing in genetics, genomics & mouse models of disease. USA, Japan, China: https://www.jax.org/
@cilialab.bsky.social
Group at MRC HGU using genetics, cell biology and lots of imaging to unlock the mysteries of mammalian #cilia. #cilia. #centrioles #cytoskeleton #RareDisease www.cilialab.co.uk
@sumonkyawmyint1.bsky.social
population health, scientist, feminist, living with rare disease, disability and chronic illnesses, NDIS, lover of books & science, all posts are personal
@stefpac.bsky.social
Founder, CEO www.epistemic.ai - #AI for Life Science Information. Father of #MEM #rhabdomyosarcoma child Personal: www.pacifico.cc Company: www.epistemic.ai Mastodon: https://sigmoid.social/@stefpac
@mashunlimit.bsky.social
-Spoonie/POTSie -Functional Medicine Health Coach -Public Health Advocate esp. for Chronic Illness and Rare Disease Creator of POTS Wellness
@jodieingles27.bsky.social
Head, Clinical Genomics Lab | Director, Genomics & Inherited Disease Program, Garvan Institute, Sydney | Cardiac Genetic Counsellor | Feminist | Willow’s human | Swiftie 🫶🏻 #cardiogen #genechat #cardiosky
@adangrenier.bsky.social
Patiente partenaire & communicatrice en maladies rares Patient partner & rare disease advocate #COVIDinformed 🦓 #COVIDisAirborne #LesVulnérablesComptentAussi *Follow doesn’t mean approval
@bartonsmock.bsky.social
poet, failed movie lover, mostly father mostly husband mostly son. rare disease beginner for life. writes at kingsoftrain.com
@coffeeandresearch.bsky.social
Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
@mkell.bsky.social
OH Proud KC livin. Mother of Pups, Rare Disease Warrior/Advocate, Coffee Enthusiast, Avid Reader, Pelo & Dip 💅🏼
@ctsa.bsky.social
Rare disease and cancer analysis models for sequencing data. Scientist at PacBio. Art school survivor. Views my own.
@jxchong.bsky.social
Associate Professor. UW Center for Rare Disease Research, @MyGene2, Deputy Editor of @HGGAdvances. #raredisease genetics. CovidWA data
@naovouporai.bsky.social
Software developer, movies tv games and guitar, Mafalda's dad, who has a rare genetic disease #CTNNB1 Syndrome.
@melondc.bsky.social
Living, working, and doing OK with rare disease. Support all cats. Please #MaskUp indoors and save disabled and elderly lives. We are all related. Freelancer & online retail side-gigger. Jewelry Store: https://bsky.app/profile/cutedotjewelry.bsky.social
@findyourrare.bsky.social
Clinical therapist, rare disease patient, health advocate, small business owner & always chasing peace 🖤🦓🤟🏻
@lamboyle.bsky.social
Pediatric genetics resident at University of Michigan, MedTwitter escapee, rare disease researcher, theatre fan
@taratisch.bsky.social
Artist🎨, Rare Disease Warrior, Patient Advocate, Wife, Bonus Mom, Gramma, Finder of 🍀
@elna916.bsky.social
PhD Multi-/Inter-/Transdisciplinary ・Rare Disease・ ・Quantum Biology/Genetics・ ・Physics・Applied Physics・Biophysics・ ・Health Psychology・Psychobiophysics・
@marvandijk.bsky.social
Spinale Musculaire Atrofie (SMA) Rare disease 👩🦼 Hyperacusis Getrouwd - Zorg -PGB - Lezen - Katers Teddy en Casper - Metal - Verjaardag 8 september 1952
@klovesy.bsky.social
30. She/Her. Professional gay. Chronic Illness and rare disease unicorn
@mfpesco.bsky.social
Neuroscientist | Neurological diseases | Background: Psychology → Neurogenetics/Rare disease → Neurobiology | PhD: Brown University
@mitogc.bsky.social
Smithie 2014, mitochondrial disease, spoonie, rare disease, genetic counselor, 🏳️🌈 ♿️ opinions are my own
@caitlinray.bsky.social
rhetoric and composition, focusing on disability/rhetoric/rare disease. Now in public health. Rare disease patient and advocate. Grant/scientific writer. In Omaha!
@salemoaks.bsky.social
We create patient education about Pharma R&D to empower patients and patient organizations.
@heathermm.bsky.social
@jay.bsky.team
CEO of Bluesky, steward of AT Protocol. Let’s build a federated republic, starting with this server. 🌱 🪴 🌳
@nytimes.com
In-depth, independent reporting to better understand the world, now on Bluesky. News tips? Share them here: http://nyti.ms/2FVHq9v