Life’s a Polyp
Rare Disease Advocate: Familial Adenomatous Polyposis & Short Bowel Syndrome
Children’s Book Author
@cgaigc.com
Global association dedicated to improving the understanding & clinical management of inherited gastrointestinal cancer syndromes for affected families. #HereditaryGICancer Visit us at cgaigc.com and also connect with us on LinkedIn, X and Instagram!
@dvnlearns.bsky.social
K-8 Curriculum Admin. Literacy, data, inst tech, ed policy. Girl mom, cancer survivor, ally, defender of rights! (& some Disney & Bravo 🤣) Survived TX to happily return to NorCal roots! 📚 🫖 ⚾️ ✈️ 🎶 🌊 #EduSky Posts/opinions my own, not any school or org
@leecrawford1.bsky.social
Never Trumper, toastmasters, defender of democracy, activist, colon cancer survivor (Lynchy) and advocate
@yggdrasilhugger.bsky.social
Secular homeschooler, music lyric enthusiast, grower of plants, big blue dot in a red state.
@bluecolleen.bsky.social
Special Education Teacher. M.Ed. GenX. Lynch Syndrome. Cats rule. So do dogs. We are STILL NOT going back. Norco, California. I don't answer DMs. #SlavaUkraine 🇺🇦
@e40lina.bsky.social
Music. Books. Travel. Family. Nature. Dancing. Vintage finds. Loc Spray. Lynchie. PMDD warrior. 🏴🇿🇲🕉🧘🏽♀️♈️💫🐕💜
@amybeth.medsky.social
Chicana Med Student 🇲🇽🇺🇸 | Former Librarian 📚 | Interested in #Psych #ChildPsych #Peds 🩺💉| #HealthLiteracy #HealthJustice #HealthPolicy 🗳️⚖️ | #SocialJustice #AntiFascist ✊🏼🍉| Opinions mine alone.
@eepicheep.bsky.social
Overthinker & underachiever - believer in the improbable. Near St. Louis, in Illinois. Zone 7a #Lynchsyndrome (eepicheep everywhere)
@mhmwales.bsky.social
Mental Health Matters Wales supports mental wellbeing through advocacy, counselling & community services. Donate at www.mhmwales.org.uk Connect with us https://linktr.ee/mhmwales
@linkhealth.bsky.social
We partner with clinics to connect patients to federal benefit programs that address social determinants of health and put money back into households. https://linktr.ee/ahealthierdemocracy
@parabello.bsky.social
New-Englander, liberal, naps, coffee, cats & dogs, birds, vegan, living with Lynch Syndrome (MSH6)
@rev-lo.bsky.social
Rev Lo is an Ordain Omnist Minister (Priest) in the order of Melchizedek; Hypnotherapist; Human Design Guide; Sound & Vibration Mindfulness Technique (SVMT) Practitioner; Integrated Holistic Practitioner; A Druid;.
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@michael7mfc7.bsky.social
Liberal Dem. LGBTQ ally. T2D Vegetarian. The Stones. Ramones Science. Yankee fan. Terrier rescuer Down syndrome advocate #Writer https://mc-fiction.com/
@gabbyoglesby.bsky.social
Activist. Cherokee. Artist & Technologist (for good) Disability Advocate. Neurodivergent Chronic Illness girlie 📍SF/DC Former: @WhoSayInc @JonasBrothers @TRADESHIFT @AOL @UMG @FIDM #Startups https://linktr.ee/gabbyoglesby EDS MCAS POTS AuDHD🤍LGBTQIA+
@fherdinand.bsky.social
Economics teacher and global citizen dedicated to linking real-world issues to economic principles, inspiring students to think critically and act for a sustainable future.
@chronicillnessfc.bsky.social
An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF #EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD Mental health advocate, indigenous #LGBTQIA+🍉 Sign up at the form below🤍✨
@eeriegames.bsky.social
The biggest fans of Horror and Tarot, sent to bring you diceless, tarot-based, narrative TTRPG games with unique paranormal, horror, and magical adventures. 📣Sign up for Survivor Sorority NOW! Less than a month to launch! https://2link.in/6N2NQ
@aboutibd.bsky.social
#UC '89, #jpouch '99. Creating evidence-based #IBD patient education to help you know more about IBD. Find #AboutIBDPodcast in any podcast app.
@knighthawk899.bsky.social
30's| 🇺🇸💙Resist|♿Disabled |Movies |Video Games |Meme Maker |Disability Awareness♿ Disabled people's needs are not being met in the US right now. Donate here: https://tinyurl.com/KnightHawk899 https://ko-fi.com/knighthawk889 venmo.com/u/Knighthawk899
@happyirish.bsky.social
Liberal Democrat, Chicago born, animal lover, pro-choice, pop music,despise DJT & any autocrat.. supporter of Ukraine..🚫DM🚫porn🚫CRYPTO🚫No donations
@quoth-this-raven.bsky.social
Liberal AF #Xennial (Gen X/Millennial) #Spoonie #DEIB Advocate Anti-Racist #Neurodivergent #Atheist #Humanist 🎶💨🍃♿️ 🏳️🌈 🐾🏴☠️ | Love my dog, #concerts, music, #ux, superheroes, #horror, dinosaurs & true crime | Auntie to 5 & Grand-auntie to 4 🫶
@ileostomysuperman.bsky.social
🏃🏻Faster than a Crohn’s flare 🏋🏻♂️More powerful with an ileostomy 💩Able to shit in a bag and multitask in a single day 🦸🏻♂️He’s Super Ileostomy Man I’m Allen and I’m here to help raise awareness for Crohn’s disease and ulcerative colitis and life with an ostomy.
@emilybernard.bsky.social
My goal in life is to always be a safe space for those I love and care about. 💞 If I can accomplish that, I’ll have succeeded in life. 💞
@ocasio-cortez.house.gov
This account is maintained by federal staff to share services and legislation relevant to constituents of NY-14.
@johngalt8.bsky.social
Twitter refugee. Your nextdoor Chief Economist. Peace through superior firepower! Good will prevail! #NAFO
@byersallyson.bsky.social
🧠Chronic illness, trauma & grief therapist. Talks about the dark stuff. Lived experience informs my work. ✍️ Writer 🐶Dog mom 🌈Queer 💉Chronically ill 📍CA
@ladyrebeccafashion.bsky.social
Costumer, Cosplayer, Content Creator, actor, and childless cat lady based in the Seattle area. http://YouTube.com/ladyrebeccafashions theladyrebecca@gmail.com for collabs
@buttahflyk.bsky.social
Writer & Patient Advocate bit.ly/floatlikeabuttahfly 🦋 Creator/Editor/Illustrator | Kaleidoscope: Rare Disease Stories 📗 https://a.co/d/brVzf0s 🦋 Columnist | Sarcoidosis News 🥄🕊️ #🟦 #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her
@paigelikesbeer.bsky.social
She/Her Love Beer/Wine 💙 Love pissing off politicians (especially men)
@dekniveton.bsky.social
Tree-hugging, animal loving, nature worshipping, progressive, lgbtq+ humanist ✌🏻💗 ♊️ 🏳️🌈
@serenityandharmony.bsky.social
🐇 aka Wabbit 🐇CEO of 🐓 🦃🦆🪿Harmony🐔 Homestead Coop🐓🦃🦆🪿 she/her 🌷Mom 👩🍼 🌷Grammie 👵🌷Enjoys Hatching 🥚🐥🐤 good nights😴a good cuppa tea🫖📗Book Worm🐛 📒Writer@SeekingSerenityandHarmony📒Mindful Reads 📰Gluten Free Please 🍗 🍰#Celia
@rarepatientvoice.bsky.social
Empowers patients and family caregivers to share their voices with researchers and companies developing products, devices, and treatments to improve lives.
@cibloggers.bsky.social
Official account for: chronicillnessbloggers.com https://www.facebook.com/groups/ChronicIllnessBloggers/
@eshanisurya.bsky.social
debut novel RAVISHING 💄💉 ✨ coming 11.11.2025 from Roxane Gay Books/Grove Atlantic | disabled & chronically ill | philly-based | surya means sun ☀️ | eshani.surya@gmail.com https://linktr.ee/eshanisurya
@chronicillnesses.bsky.social
Let's talk about what living with chronic illnesses is really like. Get The Things We Don’t Say: An Anthology of Chronic Illness Truths at https://books2read.com/u/bOXvwg
@mnreynolds.bsky.social
Fiction author & chronic illness advocate 💛 I write heartfelt romance & cozy stories about love, resilience, mindfulness, and friendship. I also share insights on living well with chronic pain, with a focus on strength and mindfulness. 🌟
@thethrivingspoonie.com
Helping spoonies adapt and thrive with practical tools, real talk, and community. 👉 Learn more at www.thethrivingspoonie.com
@rainwater14.bsky.social
Don’t fool me no more If that’s what you’re looking for Hey!! BECOME OBSESSED #RESIST PROJECT 2025 RESISTANCE PLAYBOOK https://www.theguardian.com/commentisfree/2024/nov/17/how-to-survive-the-broligarchy-20-lessons-for-the-post-truth-world-donald-trump