John Williams / MG
Myasthenia Gravis / Rare Patient Community ❄️
I have had Seronegative Myasthenia and heart disease / CHF sense 2007.
My groups on Facebook:
Myasthenia Gravis / Seronegative / Seropositive Support Group
&
Healthy Low Sodium Recipes
@j3nj.bsky.social
I tell it like it is and call it as I see it, like it or not; I'm not here to please anyone. I like a good laugh, support inclusion and love freely. #MyastheniaGravis #GenX
@everybodyempowered.bsky.social
*Empowering Everybody, in every Body, Everywhere!* with Aimee Z! Resilience Coach, Rare Disease Legislative Advocate, Patient Advocate, TEDx Speaker, Writer, Cathartic Arts Educator, Inventor, Entrepreneur & all-around Empowerment Extraordinaire! 🌟
@localizedlesion.bsky.social
Diet soda-fueled neurologist/MS fellow here to defend your myelin and your human rights. I like dad jokes but my kids don't. he/him/his
@nenenezuko.bsky.social
Insatiably curious writer with a family of ferrets. Wheelchair user, fiercely feminist, trans and queer, neurospicy, and deeply nerdy 🤓
@zaftikat.dog
cher strongbad, comment poster avec des pattes chiot? Attribué New Jersey à la naissance Kat 💚 et Winona 🐶
@catmomma2023.bsky.social
71 old cat lady who also loves dogs. Blue to the core in red Indiana. Comfortable in my own skin and do what I want (unless the cats need me, then I’m mush) No DMs it creeps me out. I will block you. Love Drakes Cakes!
@ajwpharm.bsky.social
Neurocritical Care Clinical Pharmacist MGH NeuroICU | BCCCP | Alum OHSU, Mayo, URI Pharmacy | #rstats | He/him | http://neurowiserx.com | #SkyRx | #MedSky | #PharmSky
@jenny-bug.bsky.social
I was a cat but am now converting to duck will probably still look like cat
@davidbsauer.bsky.social
Membrane Transporters, Ion Channels, Structural Biology, Bioinformatics... and other bits of fun Purdue BS, UTSW PhD, NYUSoM PostDoc, Univ. of Oxford PI davidbsauer.com
@mysticalmadness.bsky.social
#BlueCrew #BlueResisters 🌊🟧🏳️🌈☮️🏳️⚧️🟦🌻 Lover of music, film, TV, photography, animals, food, comedy, nature, & politics. POTS, hEDS, MCAS, AuDHD, Parkinsonism, Myasthenia Gravis, Hemiplegic Migraines, Occipital Neuralgia. #SoberSky
@mishasunshine.bsky.social
Quilter, sewist, embroiderererer, swimmer, likes a summer vegetable patch. Living with Myasthenia gravis. @sewverymuch and @michellethequilter on IG Always was, always will be Aboriginal Land. Free Palestine 🍉
@flinthaven.bsky.social
St Jude supporter. Myasthenia Gravis fighter. Vegas addict. Fan of Entertainment, Sports, Country Music, and Streisand
@scottsmitty.bsky.social
Just a big transformers fan, Theme Park goer and Pokemon trainer trying to live with Myasthenia Gravis
@sarahspeaksonit.bsky.social
(She/her) Your friendly neighborhood ghoulfriend 🖤🌙 #chronicallythrill #disabledbabe Myasthenia, ME/CFS, and a host of other mysteries ✨We are all just stars that have people names ✨
@ianwebber.bsky.social
Songwriter/photographer. T shirt designer/owner at Boys keep Swinging. Warhol/Morrissey/Chet Baker/Rock n roller. British/American Arsenal/Buffalo Bills Myasthenia G https://ianwebber.bandcamp.com MUSIC Www.Boyskeepswinging.shop ONLINE STORE
@asupernovat.bsky.social
I get high a lot. Neurodivergent Myasthenia Gravis Warrior. I'm here to collect SFF recommendations for my TBR.
@ack025.bsky.social
Links+follows related to: Ehlers-Danlos + Lyme + MEcfs + Autoimmune (Myasthenia Gravis, Sjogren’s, Hashimoto’s) + POTS + Mast Cell + ApoE (4/4) + Bilateral Vestibulopathy + BPPV + SIBO + migraine + mito myopathy + Long COVID + LMCA & Celiac Artery Stenosis
@drsorenson.bsky.social
Filmmaker - Musician - Distribution Consultant for Independent Content Creators • Myasthenia Gravis Patient & Advocate 🎗️❄️
@superdupa.bsky.social
Basketball enthusiast | Myasthenia Gravis & POTS Warrior ❄️ | Mercer U, GCSU, & West Georgia Alumna | Lover of books and intelligent dialogue Wondering about the validity of my chronic Costochondritis. I’m practical about almost everything.
@barryp13.bsky.social
9 year U.S. Navy Veteran Corpsman. 20 year Paramedic. Apple product consultant. Myasthenia Gravis patient. Amateur Radio enthusiast. Boston native. Rediscovered cursive handwriting and journaling with fountain pens and ink. I. am always learning new stuff.
@rdelriodaher.bsky.social
Louisiana/California Retired Hospice Clinical Director, Retired Red Cross Disaster Response. Heart of Blue💙Newly diagnosed Myasthenia Gravis. Lots of fight left in me. Resist! #Powertothepeople
@michskigen.bsky.social
Fun stuff: Cats & other animals. World of Warcraft. Avid reader. Grandma. Serious stuff: Retired special ed teacher. Autistic. Disability and other marginalized groups advocacy. Myasthenia Gravis and other autoimmune diseases. Social Dem. Grandma.
@knittingvibes.bsky.social
Yarn lover, snow lover, inclusive feminist, tree hugger, Tangata Tiriti, socialist, mother, daughter, vaxxer, myasthenia, anti fascist Kei te noho ahau i Tauranga Moana
@territhornburg.bsky.social
Lifelong Democrat. Retired from Healthcare. Football fan in Seahawks territory. Cat lover. Fluent in sarcasm. Love gardening, reading, and cooking. So very tired of Trump and his cult cabinet appointees. He had to look under a lot of rocks to find them.
@aerrante.bsky.social
Historian of Ed Policy in US & Mozambique. Life history geek. Myasthenia Gravis crone. I'm gonna post dog pics.
@purpletx.bsky.social
Pokémon Master. Grandma Photography Art. 50,000 photos fixin to share some Have Myasthenia Gravis
@vwhsliberal82.bsky.social
Blue Dot in red SW OH. I ❤️〽️🏈💛💙. Stroke & ICU survivor. Myasthenia Gravis warrior. Here to learn from experts & maybe make some friends. Owned by a Tuxedo cat. Mastadon: @Nda_Sis1@mstdn.social NO DM'S. I HAVE NO $ FOR YOUR GO FUND ME PAGE.
@deearc36.bsky.social
NO DM’s! 💙🦋💙🦋💙🦋💙🦋💙🦋💙🦋 Blue! Stay Strong 💪🏽! Myasthenia gravis warrior. ❄️ Love the outdoors and anything nature. Fascinated with politics. #voteblue Peace & Light💙
@mgstar.bsky.social
One of 0.01% living with myasthenia gravis Grandma to Alex and Diana ❤️🏴 The Baby in the picture is my Da l only refer to trump as President Orange Jobby 🚫DM=BLOCK 🚫MAGA,🚫CRYPTO,🚫BITCOIN 🚫PORN
@eliisakekalainen.bsky.social
MD PhD, specialist in clinical microbiology and immunology, physician-scientist at University of Helsinki & Helsinki University Hospital 🇫🇮. #thymus #IEI diagnostics #HSCT . Personal account, she/her. Here for science and everything.
@danksunflowers1230.bsky.social
I’m Ashley—a military spouse, mom, and Thymoma and myasthenia Gravis warrior. Here to talk about healthcare, justice, and why real leadership matters. Expect anti-Trump takes and honest convos on issues that hit home. Ready for real talk?
@alanakinrich.medsky.social
“Some entitled little shit ER doc” 👩🏻⚕️, queer 🏳️🌈, home cook 🍳, sometimes dancer 🩰, cat person 🐱, lover of swishy skirts and warm sweaters 👗. My opinions are not my employer's. she/her
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app