My Name'5 Doddie Foundation
Registered charity, established by Doddie Weir & friends to fund vital research into motor neuron disease (MND) & support those living with MND.
@acmedsci.bsky.social
Independent expert voice of biomedical and health research in the UK, fostering good health for all supported by the best research. Visit https://bit.ly/acmedsci for more info.
@sheffielduni.bsky.social
Changing lives through education and research since 1905. On Bluesky since today linktr.ee/sheffield
@vpresearchals.bsky.social
VP Research & Strategic Partnerships @ ALS Canada. Science brain, advocate heart.
@bhingelab.bsky.social
Bhinge Lab @lsiexeter.bsky.social works on "RNA Dysregulation in Neurodegeneration" | Passionate about curing Neurodegenerative Diseases | We love neurons, stem cells, animals https://www.bhingelab.com/ https://experts.exeter.ac.uk/26305-akshay-bhinge
@ftdregistry.bsky.social
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure for frontotemporal degeneration. Numbers have power. Join the Registry. Advance the science. #EndFTD www.ftdregistry.org
@pifonline.bsky.social
PIF is the independent voice of health information. We promote access to trusted, evidence-based health information for all. We run the PIF TICK – the independent credibility mark for health information. www.pifonline.org.uk www.piftick.org.uk
@blairgowrierfc.bsky.social
Blairgowrie RFC play in Caledonian Division 1, located at JJ Coupar Park in Blairgowrie, Scotland. Regional Bowl Champions 23-24, National Bowl Finalists 2024.
@mndoxford.bsky.social
Oxford MND/ALS Research Groups at @ndcnoxford.bsky.social and @kavlioxford.bsky.social Researching MND/ALS through early disease modelling and biomarker discovery Website: https://www.ndcn.ox.ac.uk/research/oxford-motor-neuron-disease-centre
@bvahsen.bsky.social
Postdoc in Talbot Lab at Oxford Motor Neuron Disease Centre @mndoxford.bsky.social and Junior Research Fellow at Kellogg College Oxford, using iPSC models to research microglia-motor neuron interactions in ALS/MND.
@fergalwaldron.bsky.social
Advanced Research Fellow, University of Aberdeen | ALS/MND/FTD | Early diagnosis & precision-prevention | Biomarkers | Disease Heterogeneity | Non-motor symptoms
@ukmndri.bsky.social
A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
@jamessleigh.bsky.social
MRC-funded group leader at UCL Queen Square Institute of Neurology studying peripheral nerve diseases to develop targeted gene therapies #CMT #ALS #SMA #AxonalTransport | he/him
@lizziedellar.bsky.social
Postdoc @mndoxford.bsky.social @ndcnoxford.bsky.social working on protein biomarkers of ALS/MND and extracellular vesicles.
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@camrare.bsky.social
Making rare disease an everyday conversation. CamRARE is a charity empowering rare disease communities & fostering cross-sector collaboration to improve outcomes for those affected. #RareDisease Local | National | Global www.camraredisease.org
@johnomason.bsky.social
Professor at University of Edinburgh using stem cells and organoids to understand human brain development and neurodevelopmental disorders including ASDs.
@annerowlingclinic.bsky.social
A charitable facility at University of Edinburgh delivering research and trials for people with neurological conditions including MS, MND, Parkinson's and cognitive disorders.
@precisionlife.bsky.social
Precision medicine for complex diseases. Creating better, more personalized diagnostics & treatments for unmet medical needs. Join us for world-leading AI-led science, healthcare, diagnostics, & drug development.
@adrianisaacs.bsky.social
Investigating FTD and ALS at the UK Dementia Research Institute and UCL Queen Square Institute of Neurology
@aartisharma.bsky.social
Neuroscientist 🧠 | ALS researcher 🧪👩🏽🔬 | human | biotech | she/her There is no 🌍 without ART
@drpaulwicks.bsky.social
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
@onein300.bsky.social
1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. onein300.com
@arrestalsnow.bsky.social
In the fight for the long haul until #EndALS. Fighting ALS injustice including Healthcare. Seek equality & quality ALS patient services & care. #NeverStopFighting #DontQuit
@alsadvocacy.bsky.social
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous. https://x.com/alsadvocacy
@alstdi.bsky.social
The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
@ewout.bsky.social
Biomarkers and mRNA translation | Long-read sequencing | ASOs and gene therapy | SMA & MND research lab at UMC Utrecht | Previously University of Edinburgh | Also cycling, cats, father of 2
@westwingslab.bsky.social
Drosophilist, DIY enthusiast, group leader, senior fellow & Dementia Research Leader Fellow based in SITraN, Sheffield, UK. Working on #FTD, #ALS and #MND Find us here: sites.google.com/view/the-west-lab-sheffield
@doctorpaf.bsky.social
Clinician scientist and consultant neurologist. Interested in neuromuscular diseases, #neuropathy, #ALS, #nerve #regeneration, neuron #glia interactions and #Schwanncells.
@timjatkinson.bsky.social
National Campaigns Manager, Motor Neurone Disease Association @mndassoc.bsky.social Interested in #activism, #volunteering, #charities, #ukpolitics all things geek, community organising, and health and social care.
@sanchabrodystalker.bsky.social
Communications Officer - Research, Motor Neurone Disease Association @mndassoc.bsky.social @mndresearch.bsky.social
@mndeducation.bsky.social
The Education & Information team for the MND Association @mndassoc.bsky.social Providing trustworthy and accredited information resources about #MND and #Kennedy's disease.
@martinbooth.bsky.social
Research Practitioner @ UHNM • #MND #ALS Care & Clinical Research • PG Health Research & Clinical Delivery @ Sheffield SCHARR • Research Champion •
@richardmead.bsky.social
Senior Lecturer in Translational Neuroscience at SITraN, @sheffielduni.bsky.social
@mndaus-research.bsky.social
Motor Neurone Disease Australia is the peak body for the MND community in Australia. We have built & sustained Australian MND research for 40 yrs and partner with other Australian and international MND/ALS organisations.
@elliwilson.bsky.social
Dr. Elli Wilson - Associate Professor, School of Health Sciences, University of Nottingham. UK. Qualitative researcher, palliative+end of life care, MND, complex homecare https://www.nottingham.ac.uk/healthsciences/people/eleanor.wilson Views are my own
@carolinepurslow.bsky.social
Head of Health, Challenge Works (Nesta) - designing global innovation competitions, delivering the Longitude Prize #ALS #MND #Dementia #AMR.
@j9kirby.bsky.social
Researcher & Lecturer based in SITraN, University of Sheffield. Tweeting on MND/ALS, Neuroscience, Advanced Therapies and Education
@benclarkeuk.bsky.social
Post doc in the Patani Lab at the Francis Crick Institute and University College London, interested in the role of glia in motor neuron disease using iPSC models
@bav58.bsky.social
Aussie #MND #ALS Warrior, now living in Scotland. Retired Maritime/Shipping lawyer (non-practising - Australia, England/Wales & Scotland).
@andrewtosolini.bsky.social
Senior researcher at The University of Queensland - Ngo and Steyn Labs. Schiavo Lab alumni. Interested in MND/ALS, motor neurons, NMJs, and of course axonal transport. Hobbies include the Socceroos, the Australian Cricket team and Chelsea FC.
@frattalab.bsky.social
UCL Queen Square Institute of Neurology and The Francis Crick Institute. RNA metabolism and novel translational approaches for ALS/MND, Kennedy's disease and neurodegen.
@edinunineuro.bsky.social
Edinburgh Neuroscience is a diverse community of world-class researchers in neuroscience, psychology & clinical psychology at the University of Edinburgh. https://www.edinburghneuroscience.ed.ac.uk/
@suvankarpal.bsky.social
@dibbouk.bsky.social
PhD, MND/SMA Research programme manager @My Name'5 Doddie Foundation All views my own #ALS #MND #SMA #RareDisease 📍 Edinburgh
@amrc-uk.bsky.social
The membership organisation of leading medical and health research charities in the UK. www.amrc.org.uk
@gloucesterrugby.bsky.social
@edslater.bsky.social
ALS/MND is living with me. Former Rugby Player for Gloucester and Leicester. Charlton Ath fan. No particular order 🙂 #KeepMovingForward