MSU
We are a patient centered, from the Heart nonprofit for those affected by #Myositis, the Idiopathic Inflammatory Myopathies. Support starts here! Also, research, patient financial assistance, and more! UnderstandingMyositis.org
@shelle02.bsky.social
Looking to make a whole new community of like minded people who care about everyone. Am passionate about creating awareness about #Disability #Deaf #Myositis and making #Accessibility something that is thought about before rather than after.
@artworks1953.bsky.social
Artist all my life. Disabled by Guillain-Barré syndrome (GBS 1974) and sporadic Inclusion Body Myositis (2005 - present). Trained in traditional the Fine Art and now working in the Digital Art field. Original Art & Designs filled with contemporary colors
@myositis-uk.bsky.social
Myositis UK a national charity for the inflammatory myopathies. Myositis UK seeks to improve the diagnosis, treatment, understanding and prognosis of Myositis. https://www.myositis.org.uk/
@didemsayginmd.bsky.social
Rheumatologist, clinician researcher focusing on #myositis at Rush Rheumatology in Chicago
@kevinfdooley.bsky.social
I’m interested in nature, science, photography, learning about the world, and things that make me smile. I have a rare disease, a muscle disease called inclusion body myositis (IBM). All photos are taken and copyrighted by me, except for reposts.
@juliepaikmd.bsky.social
Rheumatologist. Associate Professor of Medicine. Co-Director and Director of Clinical Trials at Johns Hopkins Myositis Center.
@yellocab.bsky.social
Mom, dog lover, Michigan fan, living with Inclusion Body Myositis. Climate change is real, misinformation is the enemy. Sweet home Chicago. Go Blue! Resist the Trump/Musk/Doge coup. Fork you, Elon! 🥄
@misskarinb.bsky.social
Disabled and chronically ill scientist, artist, and all around geek. Fighting lupus, RA and dermatomyositis every day 🏳️🌈
@ashleyjewel14.bsky.social
Wife. Mother. Dermatomyositis warrior. Peloton lover. Support protecting our 🌎, human rights & common sense gun laws. Lover of baked goods.
@autoimmuneartist.bsky.social
Adirondack Artist Kate Boyle. Mom to Zack, painter, RN, living with RA; sjogrens and Dermatomyositis
@jewels3081.bsky.social
Just a girl, looking for rabble to be roused... Chronic Illness Warrior. #Dermatomyositis #Migraine #POTS I'm not for everyone, and I am ok with that.
@jerrywilliams.bsky.social
Married to my husband Charlie. We have 2 awesome #dachshunds. Founder of Myositis Support and Understanding (MSU), a from the heart #myositis nonprofit. Living with #Dermatomyositis. I am a lifelong liberal Dem in DE. Opinions are my own.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app