PA Rare Disease Advisory Council
@kffhealthnews.org
A national newsroom that produces in-depth journalism about health issues; a core program of @KFF.org. Also publishes California Healthline.
@paddc.bsky.social
The Council works to promote advocacy, drive systems change, and build community capacity alongside people with developmental disabilities and their families. We envision a Commonwealth where all people are valued and thrive.
@disabilityrtspa.bsky.social
Protecting and Advancing the Rights of People with Disabilities in Pennsylvania. https://www.disabilityrightspa.org/
@pahumanservices.bsky.social
Our vision is that all Pennsylvanians live safe, healthy, and independent lives, free of discrimination and inequity.
@pennsylvaniaaging.bsky.social
The Pennsylvania Department of Aging (PDA) oversees and administers aging services and advocates on behalf of older adults.
@pahealthdept.bsky.social
Official account for the Pennsylvania Department of Health. DOH is Pennsylvania’s primary source for public health information and services.
@everylifeorg.bsky.social
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
@nordrare.bsky.social
NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.® www.rarediseases.org
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]