Rare Disease Clinical Trial Network
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
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Created by Rare Disease Clinical Trial Network (1)
Rare Disease Research in Ireland
Find and connect with those involved in or passionate about rare disease research in Ireland. Join in, suggest additions, and help grow our community!
@rachelmlynch.bsky.social
Education & Health Professional #EUPATI Fellow | Literacy Ninja | Graphics Geek www.rachellynch.net
@medindonews.bsky.social
Investigative and breaking news source for healthcare and the medical profession in Ireland.
@svhglibraries.bsky.social
We provide knowledge, expertise and resources that support exceptional patient care, clinical research, lifelong learning and personal wellbeing. Our website: https://library.svhg.ie
@engagedroadmap.bsky.social
Co-Creating Ireland's Public Involvement in Open Research Roadmap ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
@therddr.bsky.social
https://TheRDDR.org RDDR is an invaluable resource dedicated to the storage, organization, and dissemination of rare disease research datasets.
@teamitresearch.bsky.social
Research management organisation - Empowering collaborative research and innovation for a healthier future. 🔗 https://teamitresearch.com/
@project-comfort.bsky.social
A collaboration of 51 organisations across Europe, UK and US - this public-private-partnership aims to lower the patient burden in blood sampling situations at clinics to the comfort of patients' homes.
@erc.europa.eu
European Research Council, set up by the EU, funds top researchers of any nationality, helping them pursue great ideas at the frontiers of knowledge. #HorizonEU
@eshg.bsky.social
The ESHG is a non-profit organization. Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims.
@ema.europa.eu
EU regulatory authority working for public and animal health. We ensure that all medicines available on the EU market are high quality, safe and effective. Based in Amsterdam. https://www.ema.europa.eu/
@nature.com
Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
@ombudsman.europa.eu
The EU Ombudsman promotes good EU administration by investigating complaints and systemic issues. Account managed by the comms team. europa.eu/!bc33kQ Website: ombudsman.europa.eu/en/home
@europarl.europa.eu
Your voice in the EU 🇪🇺 Updates, news, and insights from the European Parliament - the heart of European democracy. Privacy policy: https://www.europarl.europa.eu/pdf/data_protection/data-protection-notice-bluesky-en.pdf
@consilium.europa.eu
27 EU governments making decisions together in the European Council & Council of the EU. Learn, participate, share. Latest news @press.consilium.europa.eu #eucouncil #euco
@erknet.bsky.social
ERKNet is devoted to improving the lives of patients with rare kidney diseases. https://www.erknet.org
@jardinjointaction.bsky.social
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
@epha-eu.bsky.social
The European Public Health Alliance is a change agent – Europe’s leading NGO alliance advocating for better health. Reposts are not endorsements. #PublicHealth
@ehc-news.bsky.social
European Haemophilia Consortium (EHC) aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe. https://www.ehc.eu/
@haemnet.bsky.social
Haemnet works at the heart of the bleeding disorders community. We're a specialist consultancy, engaged in research, communications, community education and support. #HemeSky #MedSky #BloodSky
@haemophamicus.bsky.social
Haemophilia and Allied Disorders Slovenia/Europe https://haemophamicus.eu info@haemophamicus.eu
@pscsupport.bsky.social
Improving the lives of people affected by primary sclerosing cholangitis (PSC) by | Providing Info & Support | Improving Patient Care | Shaping & Funding Research to find effective treatments and a cure | #LetsBeatPSC | www.pscsupport.org.uk
@bbmrieric.bsky.social
Pan-European network to support biobanking and biomolecular research. Co-funded by 🇪🇺 within EU Horizon 2020 Research Infrastructures programme
@bmj.com
The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment.
@hsruk.bsky.social
The voice of UK health and care services research. 🌐 https://hsruk.org/ ✉️ info@hsruk.org
@quahrc.bsky.social
The QUAHRC at King's College London promotes the rigorous and innovative application of qualitative health research. Follow us for research, events and discussion. https://www.quahrc.co.uk/
@socsocmed.bsky.social
Advancing knowledge for population health https://socsocmed.org.uk/member-registration/
@neuroprideireland.bsky.social
Neuro Pride Ireland is a space to celebrate Neurodivergent people, communities and culture. We host regular Zooms for Neurodivergent adults. Follow ≠ endorsement.
@hralatest.bsky.social
Protecting and promoting the interests of patients and public in health and social care research. Making it easy to do research that people can trust.
@nadineoregan.bsky.social
Journalist and broadcaster | Staff writer who also edits in The Irish Times features dept. | Cover presenter, Rising Time, Late Date @rteradio1 | Ex: BP, Today FM, Phantom, TXFM
@dublininquirer.com
Dublin's independent local newspaper, since 2015. Reader-funded through subscriptions. Wednesdays and Fridays online, monthly in print.
@dcuresearch.bsky.social
DCU Research & Innovation Support. Follow us to keep up to date with research in Dublin City University as well as news on funding calls & research development.
@philipnolanmu.bsky.social
Research Professor @MaynoothUni | Scientist (physiologist), teacher, higher education leader, cyclist | philip.nolan@mu.ie | Personal account
@fiokeeffe.bsky.social
Senior Lecturer in Clinical Psychology UCC | Clinical Neuropsychologist | Neuropsychology, Physical Health, Mental Health, Social Inclusion and Social Justice, Rehabilitation
@tandfresearch.bsky.social
Here to help you to publish and make an impact with your research.
@epaireland.bsky.social
Protecting the Irish environment and, as a direct result, the people of Ireland.
@eupha.bsky.social
The European Public Health Association, or EUPHA, is an umbrella organisation for public health associations and institutes in Europe.
@trisstcd.bsky.social
Trinity Research in Social Sciences at Trinity College Dublin was founded in 2015 as a vehicle to support and advance world-leading research in the social sciences at Trinity by bringing together social sciences researchers from across the University
@nwc.bsky.social
The National Women’s Council of Ireland: promoting rights & equality
@nihrsphr.bsky.social
The National Institute for Health and Care Research (NIHR) School for Public Health Research (SPHR) aims to increase the evidence base for inclusive, equitable and cost-effective #PublicHealth practice.
@uniofgalway.bsky.social
Shaping the world & inspiring leaders since 1845. University of Galway - Where will it take you? http://universityofgalway.ie
@rcsilibrary.bsky.social
Official Blue Sky of RCSI University of Medicine and Health Sciences Library
@researchpodcasts.bsky.social
Podcast consultancy, production and training to show the real world benefits and impacts of research 🔗 researchpodcasts.co.uk 🎓 #academicsky 🏫 #edusky 🎙️ #podcasts
@infantcentreucc.bsky.social
The Irish Centre for Maternal and Child Health(INFANT) at University College Cork. News and Updates: https://www.infantcentre.ie/news/all-news/