The Heart Hive
A place to connect people with #cardiomyopathy and #myocarditis with researchers
www.thehearthive.org
@nixon-lab.bsky.social
Research Fellow at Centre for Cardiovascular Science, University of Edinburgh. Investigating glucocorticoid action in cardiometabolic disease. Views my own Website: http://www.edinburghmetabolism.co.uk/mark-nixon ORCID: 0000-0001-5437-3724
@vine-views.bsky.social
Retired project manager. Health research patient advocate. Author. Sailor. Swimmer. #osteoporosis #cardiomyopathy #utuc #flashfiction . More background at http://nicvine.com
@euanashley.bsky.social
chair of stanford dept of medicine author of the genome odyssey founder of biotechnology companies
@jillianne.phd
UBCEduc Associate Professor | @ALIVEUBC Director | #PhD | #LearnerAgency | 💔❤️#transplant | Co-Founder #HeartLifeCanada | #KillamTrusts Laureate
@jodieingles27.bsky.social
Head, Clinical Genomics Lab | Director, Genomics & Inherited Disease Program, Garvan Institute, Sydney | Cardiac Genetic Counsellor | Feminist | Willow’s human | Swiftie 🫶🏻 #cardiogen #genechat #cardiosky
@matthewtosh.com
Presenter, pyro, science, live event & safety specialist (he/him). BHF Data Science Centre Oversight Board and PAG member. I 💜 arts, bells, equality, #PPIE and tea. 🏳️🌈 #ARVC ❤️🩹 #Cardiomyopathy www.matthewtosh.com
@hgleitch.bsky.social
Scientist-clinician (https://profiles.ucl.ac.uk/88423-harry-leitch)
@christiane.link
I make 🚆 ✈️ 🏘️ more accessible, still a journalist at heart, German Londoner with British passport 🇩🇪🇬🇧♿️ social model of disability 👍 accessiblelink.substack.com
@seanlzheng.bsky.social
Dad 👶🏻🐶🐶| Academic cardiologist ❤️ | Genomics 🧬 | Amateur allotmenteer 👨🌾
@kathrynmcgurk.bsky.social
Cardiovascular Geneticist / Bioinformatician 🇮🇪 BHF Immediate Research Fellow at Imperial College London, UK. https://profiles.imperial.ac.uk/k.mcgurk
@drdeclanoregan.bsky.social
BHF Chair of Cardiovascular AI & Consultant Radiologist. Computational Cardiac Imaging group, MRC Laboratory of Medical Sciences. 🚁
@mwrebeccajarman.bsky.social
Research midwife, NIHR South London RRDN. NHSE ICA Intern. UKMCS Midwife rep. Volunteer for Cardiomyopathy UK. OOHCA survivor.
@nickywhiffin.bsky.social
Associate Professor @ Big Data Institute, University of Oxford 2024 Lister Institute Fellow genomics | rare disease | gene regulation | genetic therapies https://rarediseasegenomics.org/ (field) hockey player | cyclist | hiker
@roddywalsh.bsky.social
Scientist researching genetics/genomics of heritable heart diseases 🧬🫀 | Liberal extremist | Ex-traveller 🌍 | LFC ⚽️ & Munster 🏉 | He/him
@nihr.bsky.social
National Institute for Health and Care Research - we fund, enable and deliver world-leading health and social care research that improves people's health and wellbeing, and promotes economic growth. Impact, Innovation, Investment, Inclusion
@imperialperc.bsky.social
We are a team of mixed methods researchers doing research on research and public involvement practitioners supporting the Imperial Biomedical Research Centre funded by the National Institute of Health and Care Research (NIHR).
@bmj.com
The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment.
@globalhearthub.bsky.social
Global Heart Hub is an alliance of Heart Patient Organisations uniting the patient voice across the spectrum of Cardiovascular Diseases. Join us!
@rebecca-stewart.bsky.social
Co-Founder of RARE Revolution Magazine dedicated to elevating the voices of the #raredisease community and bringing together stakeholders from the field.
@cryuk.bsky.social
Cardiac Risk in the Young supports those affected by young sudden cardiac death & funds research, screening, CRY Cardiac Pathology & Sports Cardiology Centres
@ceclindgren.bsky.social
Co-Founder and Chief Scientist | Venture Partner | Professor | Mentor | Proud mom of 3 ✨
@meyers711.bsky.social
Genetic Counselor 🧬 | cardio🫀, rare 🦓 | Head of Clinical Affairs at MyOme | #genechat I read a lot ~ have too many animals ~ one kiddo
@gsttfoundation.bsky.social
We’re an independent foundation investing in a healthier society. Our family of orgs includes @impurbanhealth.bsky.social, Guy's & St Thomas' Charity, Guy's Cancer Charity & Evelina London Children's Charity. https://gsttfoundation.org.uk/
@gstt-nhs.bsky.social
Specialist and acute care at Guy’s, St Thomas’, @EvelinaLondon and @RBandH hospitals, & community healthcare in Lambeth and Southwark. Supported by @GSTTCharity.
@sebgauvrit.bsky.social
Studying Vascular morphogenesis using Zebrafish|Mouse. Assistant Professor in the APP Department, College of Medicine, University of Saskatchewan #USask. Alumni #Stainierlab MPI and Collège de France. 🇫🇷 in 🇨🇦
@heartspasms.bsky.social
We are a group of patients working with patients & clinicians. We aim to educate, inform & enlighten on the topic of non obstructive heart disease. #ANOCA #INOCA #MINOCA Based in Australia, USA & UK https://www.internationalheartspasmsalliance.org/
@jorsmo.bsky.social
Psychiatry, Genetics, Epidemiology, Precision Medicine. Author of The Other Side of Normal. 3% Neanderthal.
@sophbouff.bsky.social
@keavneylab.bsky.social
Lab group led by Prof Bernard Keavney focussing on cardiovascular genomics, big data & congenital heart disease 🫀🧬 Posts by group members https://www.keavneylab.com 📍 University of Manchester, UK
@rasnet.bsky.social
Nonprofit research advocacy org for conditions caused by dysfunctional RAS/MAPK signaling. #rasopathies #raredisease by Stronach in Pittsburgh
@scientistshah.bsky.social
Researcher at Institute for Molecular Bioscience, The University of Queensland. Genomics, Cardiovascular Disease
@jwbelmon.bsky.social
#MD, #PhD | #Pediatrics | #Medical #Genetics | #Human #Genetics | #Cardiovascular | #Congenital | #Genome #Sequencing | #HealthEcon | #Causal #Inference belmontgenetics.org
@m4ggiesimp.bsky.social
🏴 4/5 #MedStudent |🫀nurse | #FESC #FHFA | #HeartFailure | #ACHD | #CardioObstetrics | #WomensHeartHealth | ⚽️✈️🎸| posts own views | #Cardiosky #medsky
@alberthenry.bsky.social
MD 🇮🇩 | MSc 🇬🇧 | PhD 🇬🇧 Research officer - Garvan Institute of Medical Research 🇦🇺 Honorary research fellow - University College London 🇬🇧 Interested in genetics, phenotypes, and anything in-between
@thedrkittendorf.bsky.social
www.katemittendorf.com #cancer 🧫 #Genomics 🧬 d&i 🏥 #SciArt 🦠 #HealthEquity🩸inclusion in STEM 🔭 research education/training 🔬#LGBTQhealth #QueerinSTEM 🏳️🌈 they/them 🏳️⚧ #DisabledInSTEM ♿️♾️ opinions/typos mine #ArtSci #SciSky #OncoSky #GeneChat
@sarahfbrown.bsky.social
Patient Rep & Advisor to research studies & NHS Women's heart champion https://heart.bmj.com/content/110/22/e4 Expert patient by experience #ANOCA #INOCA #MINOCA https://www.internationalheartspasmsalliance.org/ Former Midwife
@mynt808.bsky.social
Hawaiʻi • Blasian • Gen X • Genetic Counselor 🧬 • Cat Lady • 🍉 she/her #GeneChat #HealthEquity #PublicHealth I’m endlessly curious, so I follow all sorts of people. My feelings won’t be hurt if you don’t follow me back.
@spaigemdphd.bsky.social
Pediatric cardiologist and physician-scientist working in the biotech/pharmaceutical industry. Passionate about bringing new therapies to patients with rare genetic disorders. Pro-science. Pro-vaccine. Pro-choice. Opinions are my own.
@norashannon.bsky.social
Clinical Geneticist, cardiac genetics, tenor horn playing, crafting- not necessarily in that order.
@annawilsdon.bsky.social
Clinical Geneticist interested in inherited cancer predisposition inc Lynch Syndrome, genetics of congenital heart disease and ataxia telangiectasia
@drlindsaykeith.bsky.social
Science/Stories/Writing/Comms/TV/Festivals/Engagement/Theatre/Immersion. Head of Comms and Engagement @MRC-LMS @SMASHfestUK @RefineryTV
@sheenlei.bsky.social
MSc student at Imperial College London 🧬Genomics, rare diseses | 🎼Soprano in choir