The KATT Dazzle
My curse **is** my gift. hEDS+PoTS
Intellectual curiosity = my problem.
Opinions = MINE.
Retweet ≠ endorsements or represent #Dazzle4Rare
https://linktr.ee/dazzle4rare
@buttahflyk.bsky.social
Writer & Patient Advocate bit.ly/floatlikeabuttahfly 🦋 Creator/Editor/Illustrator | Kaleidoscope: Rare Disease Stories 📗 https://a.co/d/brVzf0s 🦋 Columnist | Sarcoidosis News 🥄🕊️ #🟦 #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her
@nihr.bsky.social
National Institute for Health and Care Research - we fund, enable and deliver world-leading health and social care research that improves people's health and wellbeing, and promotes economic growth. Impact, Innovation, Investment, Inclusion
@rarediseasesint.bsky.social
RDI is the global alliance for persons living with a rare disease, across all countries and all rare conditions.
@thecrid.bsky.social
https://TheCRID.org More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
@therddr.bsky.social
https://TheRDDR.org RDDR is an invaluable resource dedicated to the storage, organization, and dissemination of rare disease research datasets.
@rdndlab.bsky.social
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions. https://tinyurl.com/rdndkcl
@denissj.bsky.social
Father, grandfather. Scientist in the pursuit of new drugs for rare and ultra rare diseases. A passionate spirit, but also kind by nature. Prefer hopeful news. Plenty of the other to go around! Woodworking, stained glass, and aspirational fly fisherman.
@nickywhiffin.bsky.social
Associate Professor @ Big Data Institute, University of Oxford 2024 Lister Institute Fellow genomics | rare disease | gene regulation | genetic therapies https://rarediseasegenomics.org/ (field) hockey player | cyclist | hiker
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@rarediseasemom.bsky.social
Lindsay. Democratic nominee for VA House of Delegates district 69 (I had to resign from running sadly due to unexpected health emergency) Super focused on my local community ( Hampton Roads ) and rare disease advocacy.
@renatawatts.bsky.social
Still fighting the good fight to improve services for disabled children. Co-Director of Special Needs Jungle. #disabilityrights #disability #raredisease #SEND #fostering #neurospicy #inclusion #socialjustice #ADHD #CRPS #ComplexRegionalPainSyndrome
@ylleecellbio.bsky.social
Cell biologist from A*STAR 🇸🇬, co-founder at Nuevocor, postdoc w/ Brian Burke, PhD @StearnsLab. Nuclear envelope, #mechanobiology, #microtubules, #RareDisease.
@laurenctesta.bsky.social
PhD candidate and #raredisease patient-scientist in Gene Therapy and Vaccines at Penn. Interested in genetic therapies, aortas, and climbing. #BillsMafia
@jillianengages.bsky.social
Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer. She/her
@shaneir.bsky.social
Genetics/Genomics doc, Nazareth Hospital biker, developing solutions for #RareDisease and Digital Healthcare on a #Psion Series 3a. Want to see peace in Northern Ireland, Israel-Palestine & Planet Earth. https://shanemuk.github.io
@lizworthey.bsky.social
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected sites.uab.edu/cgds/ she/her
@jxchong.bsky.social
Associate Professor. UW Center for Rare Disease Research, @MyGene2, Deputy Editor of @HGGAdvances. #raredisease genetics. CovidWA data
@hdashnow.bsky.social
Asst. Prof, CU Biomedical Informatics. #RareDisease #Genomics #STRs #bioinformatics #WomenInSTEM. Parent. Aussie. she/her Views my own. https://dashnowlab.org/ Img by familydestinationsguide (CC-BY)
@drbalsamahmad.bsky.social
Consultant of Public Health in the #NHS Passionate about art & science #PlanetaryHealth; Mother #SEND ♿️ Ally #LivedExperience #SocialJustice anti-war, loves #parkrun 🐈⬛ 📖 & cooking/catering Views are own; reposts # endorsements; lives in the proper North!
@justcallmefrank.bsky.social
Same as I ever was. But different. Random. Mouthy. Serious. Until I'm not. Opinions? I got 'em. Riled up. 📌 Pure Uncut Me 👉🏼 www.shorturl.at/dnO13 ✴️ YouTube [variety channel] www.youtube.com/WithFrankie⭐SUBSCRIBE! 🌐 http://www.withfrankie.net 🚫DMs
@toolmusic.bsky.social
The Official Tool BlueSky Account. Expanding Hearts, Souls and Minds since 1991.
@nereidofdoom.bsky.social
Gen-X, Level 56 shape-shifter, happily married to a lovely wife, über-nerd, una chingada y una jodona. 🇵🇷🏳️🌈🏳️⚧️ she/ella/they
@caitbrennan.bsky.social
🏳️⚧️ Singer, writer, goofball. My album Third out now via Omnivore Recordings. Books, vidyagames, old Hollywood, Star Trek, etc. oh, also super trans and whatnot. She/her. @planetcait elsewhere; music at caitbrennan.bandcamp.com
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app