The Rare Disease Data Repository
https://TheRDDR.org
RDDR is an invaluable resource dedicated to the storage, organization, and dissemination of rare disease research datasets.
@phaware.bsky.social
Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️ Phaware Global Association is a 501c3 info@phaware.global www.phaware.global. www.phawarepodcast.com
@aiunited.bsky.social
Adrenal Insufficiency United (AIU) is dedicated to supporting individuals and caregivers affected by adrenal insufficiency; empowering them with education, resources, community building, and legislative advocacy. AIU is a 501(c)(3) www.aiunited.org
@sarahtefft.bsky.social
Pediatric nurse practitioner | epilepsy | keto4epilpesy| epilepsy genetics | EFEPA board member #livelikemike | Views are my own 💜
@ericclawsonmd.bsky.social
Father and Husband | Neurointensivist @EmoryNeuroCrit and @GradyHealth | Views my own 🧠
@wesleytkerr.bsky.social
Epileptologist/Asst Prof. Data Science, Functional Seizures, Clinical Trial Stats. he/him
@staceylclardy.bsky.social
Autoimmune Neurologist. Physician Scientist. Editor, Neurology Podcast & Neurology Minute.
@birdreader.bsky.social
neurointensivist, ICU encephalographer, mom, wife, lifelong learner, views are my own
@renegadesynapse.bsky.social
MD/MPH, behavioral neurologist, interested in chronic stress, dementia, neuropsychiatric symptoms. Views != employers. He/his.
@vasisht.md
🇺🇸🇮🇳 Neuroemergentologist, Guardian of the CPP. I love 🧠🫀✈️ 🚁 and using technologies to advance patient care in the ED and prehospital theaters. Posts reflect my views only and not that of my employer.
@caseyalbin.bsky.social
Neurointensivist @EmoryNeuroCrit | @ContinuumAAN media AE | Co-Author Acute Neurology Survival Guide | Passionate about #FOAMncc & acute neurology
@zachlondon.bsky.social
University of Michigan neurology program director and localization nerd, songwriter, board game influencer, fort builder. #neurosky
@neurocritical.bsky.social
NCS is a multidisciplinary organization whose mission is to improve outcomes for patients with critical neurological illnesses. Scientific Journal - @NeurocritCareJ.bsky.social
@soojinpark.bsky.social
NeuroICU at Columbia. Faculty at Columbia DBMI. Medical Director of Critical Care AI and Data Science at NYP Hospital. Secretary @Neurocritical.bsky.social Ops mine. tinyurl.com/ParkLab-PHICI
@ndecinstitute.bsky.social
A collaborative of neurology digital educators & home of The Neurology Digital Education Scholars Program (NDESP)
@oligoclonalband.medsky.social
Pediatric Neurologist/Neuroimmunologist • Editor-in-Chief, Journal of Child Neurology • Chair of AAN History Section • neuron embroiderer • she/her www.neurdgames.com www.Neurdle.com
@localizedlesion.bsky.social
Diet soda-fueled neurologist/MS fellow here to defend your myelin and your human rights. I like dad jokes but my kids don't. he/him/his
@hehinson.bsky.social
UCSF Neurointensivist, Traumatic Brain Injury researcher, founder of the AAN LGBTQI section, French bulldog fan, opinions my own https://hinsonlab.ucsf.edu/
@drjeffratliff.bsky.social
Neurologist. Residency Director. Educator. Dep Editor of the Neurology Podcast. Philadelphian. Cyclist.
@foxmdphd.bsky.social
Raymond D. Adams Endowed Chair and Professor of Neurology at Harvard Medical School / Mass General Brigham; Director of the Center for Brain Circuit Therapeutics @braincircuits.bsky.social
@michaelokun.bsky.social
Author of the Parkinson’s Plan, Medical Advisor Parkinson Foundation, Author 14 books http://pdplan.org Distinguished Professor and Director of the Fixel, Associate Editor JAMA Neurology, co-founder @DBSThinkTank
@themyoclonicjerk.bsky.social
Dad, Neurologist, lap swim junkie, fountain pen enthusiast, note-taker. Owner of too many notebooks.
@amahajanmd.bsky.social
Movement disorders neurologist and Assistant Professor at the University of Cincinnati| Science. Clinical care. Education. Occasionally, Policy| Views are my own, not medical advice. 🧠 https://orcid.org/0000-0001-8807-6672
@zeigerlab.bsky.social
Science from the Zeiger Lab at UCLA. Neural circuits, stroke, movement disorders. zeigerlab.com
@jodiemburton.bsky.social
MS/Neuroimm Neurologist, Clin Epi, and some other stuff. All-around excellent human being. Opinions obviously my own. #MedSky
@mettermd.bsky.social
very cool guy doing (mostly) inpatient/vascular #Neurology (rumored). passionate re:edu/medtraining/8bit/+! posts are mine. he/him
@jsabatino37.bsky.social
MS Neurologist, T cell immunologist, UCSF Dept of Neurology, Weill Institute for Neurosciences. All posts are my own and not on behalf of UCSF
@lsingla.bsky.social
Epileptologist and clinical neurophysiologist. Here to talk about everything epilepsy and neurology.
@paediatrix.bsky.social
MBBS, FAAN, FCNS • Associate Professor • #ChildNeurology at University of Louisville & Norton Children’s• 🧠 • she/her • 🇮🇳🇺🇸
@jrgoldstein.bsky.social
#ChildNeurology & #MedEd Scholar I APD @umnneurores I PD @umnpedsneurores I cofounder @ndecinstitute I passionate about training next gen #neurosky
@pedsneuromd.nyc
Posts ≠ advice ≠ endorsement. Professor, husband, father, he/him/his. NYC CNPD, MD, MBS, FAAP, FAAN, FCNS. H+H Bellevue Hospital & NYU Langone Health. @ https://pedsneuromd.nyc
@dryasminkhakoo.bsky.social
🌴 1st gen So Asian | MSKKids Child Neur Dir | WCMC Prof Clin Ped | EIC @pedneurojournal | Barnard/Columbia/P&S/UCSF | Prez Elect Child Neurology Soc.| My views | Ally 🏳️🌈🩼🧠🇹🇿🇮🇳👩🏽🦽
@gwenzeigler.bsky.social
She/Her/Dr. Neurologist, humanist, Woman, Queer, Trans, Feminist, 1st Gen College Degree, fashion lover, views are my own.
@doctororbust.bsky.social
Art lover, baker of goods, master of sleep, and amyloid neurologist. Usually medically irrelevant account, I’d rather talk to you about art. Not accepting art commissions at this time. 🙂
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@baikuntha.bsky.social
Passionate Neurologist 🧠| Exploring the brain's intricate webs |Assistant Professor, Department of Neurology,IMS and SUM hospital, Siksha O Anusandhan University, Odisha, India
@rohitmarawar.bsky.social
Neurologist with interest in Epilepsy in Older Adults, Dementia, Epilepsy + Dementia, Educator of “Hidden Curriculum” in Academia and beyond, AI for Professional Development
@ladycerebela.bsky.social
Board-Certified Neurologist with a focus on Quality of Life • Neuropalliative Care • Research • Neurodivergent • Arts, Cats, Tech, & Humor • (she/her/ella)
@alanplotzker.bsky.social
Neurologist, pun enthusiast, die-hard Eagles fan. Husband of @mcknightwrites.bsky.social Opinions are my own Philly area native now in Pittsburgh #MedSky
@amygdalamd.bsky.social
it’s a lot of pressure caring for an organ that can’t just be transplanted
@timeisbrain.bsky.social
⏳=🧠 Vascular Neurology Section Head @ WFUSOM Stroke System Director @ Atrium Health WF Women belong in all places where decisions are being made Views are mine
@dianacejasmd.bsky.social
child neurologist at UNC | occasional author | MacDowell Fellow '24 | Cancer Survivor | Stroke Survivor | Disabled | she / her / hers | my opinions
@gyriandsulci.bsky.social
Epileptologist | wife/mom | amateur writer & artist | Published in @LitHub and @VogueIndia | Views mine and mine alone | Posts ≠ medical advice | 🧵 sarahjococonut
@jessamyn.bsky.social
Neurologist. Reader. Working towards a just health system and a just society. Pro-abundant housing, pro-public bathrooms, pro-benches, pro-plaza, pro-loitering. Anti-war. Views my own.
@cswhitemd.bsky.social
(she/they/he)•Queer•Black•Dynamic Disability• Educator• Neurologist•Headache Specialist•Human Mama•Anti-Prior Auth It’s time to Learn A Thing!™️