@ungenesbar.bsky.social
LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈 Homebase: Berlin
@whitneydafoe.bsky.social
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
@bremen.bsky.social
Pro Wissenschaft. Contra Schwurbel. 🔗 www.mecfs-assistenzhund.de 🐕🦺 #TeamWissenschaft #TeamVorsicht #CovidIsntOver #DieMaskeBleibtAuf #MECFS #NichtMeinKanzler Reiselustig 🌎 und entdeckungshungrig 🔍. (Normalerweise… 🙄)
@drjogreer.bsky.social
Mum, Carer, Myalgic Encephalomyelitis (ME) Advocate, Educational Psychologist
@paulaknight.bsky.social
Author, illustrator, comics memoir THE FACTS OF LIFE (Myriad) Kidlit Books x3 Writing illustration comics poetry photography Disabled nonambulatory bedridden 7yr #pwME No DMs pls https://linktr.ee/paulajknight https://ko-fi.com/bedscape She/Her
@pennicat.bsky.social
Shy, disabled, queer, autistic. Requires alt text to follow you. Writer of contemporary m/m/m and lesbian historical novels. Book related stuff found mostly at @penthewriter.bsky.social Cornwall dweller. May actually be the cat in the picture
@urlaubsreif.bsky.social
Liebe meine Familie & Potenzial in Menschen zu entfalten. Mitglied des Löwinnenrudels, Aktiv für Sichtbarkeit, Unterstützung und Aufklärung #PostCovidKids & #ME/CFS ❤️-Mensch #Schattenfamilie #NoAFD www.daniela-dirlenbach.de
@waldmeer.bsky.social
ME/CFS | Medizin | Wissenschaft Website: https://bit.ly/waldmeer Auch unter: @waldpol.bsky.social
@phillyphile215.bsky.social
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
@panickedfoodie.bsky.social
Scientist | Cornell Alum | Bedbound w/ severe illness | Gamer | #FluidMechanics #HeatTransfer #CovidIsAirborne #MayThurnerSyndrome #NutcrackerSyndrome #Endometriosis Bell: 10-20 TikTok, YT: The Panicked Diaries disabled.social Mastodon server admin
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@julesahouston.bsky.social
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights. I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new. #CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@meighanstone.bsky.social
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
@nikosuvisto.bsky.social
Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://www.aquietstorm.me
@cbakerls.bsky.social
Educator. Athlete. Lifelong learner. Auntie supreme. #LongCovid advocate. Bluesky newbie. Currently in an LTR with Los Angeles… but it’s complicated. Running 100 miles ain’t nothing compared to living with Long Covid.
@funkishen.bsky.social
Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, lives in the forest. Gender neutral pronouns preferred. Trying to be kind.
@atranscendedman.bsky.social
Transparent to the transcendent. Wrote a book on Long Covid. - https://jondouglas.dev/longhaul/ Extraordinary claims require extraordinary evidence. - Sagan
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@thisistheillme.bsky.social
🇬🇧: Severe ME & long covid 🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus) 🏳️🌈
@weibsbild.bsky.social
WasmitMenschen. Ostgewächs. Darss-Fan. Intro. Getrennterziehende TeenieBegleitung. Heiter-melancholisch. BGE. Nordlicht. Online seit CI$ 1995. Folgen≠mögen. Mildes #MEcfs seit 08/2022. #TeamVernunft. #TeamScience. she/her. Manchmal geht nur🫂 oder 🫶.
@meckermutti.bsky.social
Neurologisch in wechselhaftem Zustand 👉 Hier werden ° Wechsstaben verbuchselt, ° Worte flasch geschrieben ° und dings... 🤯 #MECFS #Postcovid - Erkrankte. My music: https://youtube.com/@chilumination?si=GRdauR3MZM_ul9JY
@thephysicsgirl.bsky.social
Lame puns and #longcovid. Maybe some science here and there.
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@marygr65.bsky.social
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate FBLC Adult son, 3 grandchildren and 4 cats A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild https://gofund.me/99cc079b
@sarahwestonrd.bsky.social
Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume. Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍 Facilitator PACE program 👣🫂🌈
@onaalbizu.bsky.social
Empowering persons w Myalgic Encephalomyelitis. 35y w/ME Colab at ONG PEM Spain, ME-International.org, EMEA ICPrimer our best tool. #UniteToFight2024 Empoderando a #pcME. El Manual-CI nuestra mejor herramienta. Informando ME, MCAS, ANPE, LC
@martinruecker.bsky.social
investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
@drchronically.bsky.social
Bitte keine Hilferufe über Social Media! #MECFS #LongCovid #Schattenfamilie #PflegendeEltern #Praxis #NoAfD #ÄrzteGegenRechts #Löwinnenrudel Mach dich selbstständig, haben sie gesagt. Dann hast du es viel leichter mit den Kindern, haben sie gesagt.
@susscrofa.bsky.social
Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin. Wer solche Fragen an mich stellt, wird blockiert.
@bettinagrande.bsky.social
Psychological psychotherapist Heidelberg| Charité Berlin Advocacy against psychologization of #MECFS, #PEM & #PENE Research & psychotherapy adapted to ME/CFS Paper: https://doi.org/10.3390/medicina59040719
@kinderdocnina.bsky.social
Pediatrician, MD, Believe in science, takes SARSCOV2 as serious as it should be treated, Can‘t believe that science is that ignorant
@chantalbritt.bsky.social
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli @ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
@mecfs.at
💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt http://linktr.ee/oeg_mecfs https://mecfs.at/
@ypsilondas.bsky.social
ME/CFS, invisible chronic diseases, prevention, democracy, private account
@ninaweber.bsky.social
Medizin-Redakteurin beim SPIEGEL, Biochemikerin, Buchautorin. https://www.spiegel.de/impressum/autor-de0618d4-0001-0003-0000-000000015007
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@verhac.bsky.social
ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna de/en
@renzpolster.bsky.social
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
@constanzeertl.bsky.social
journalist, ORF, Vienna persistence > contacts + competence :)
@thonigilles.bsky.social
La promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased; #APA CovidLong, EM, Réadaptation, Malaise/exacerbation de symptômes post-effort MPE PEM, Pacing
@fatigatioev.bsky.social
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein. Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
@cbammermd.bsky.social
Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS und assoziierten Multisystemerkrankungen | * Privat gerne alles mit Musik * * Skeets in DE/EN * * TwiX: @CBammerMD *
@sgme.bsky.social
💙 Fighting tirelessly for ME patients in Switzerland and worldwide 💙 #MyalgicE #MEawareness #MyalgischeEnzephalomyelitis
@johanvawe.bsky.social
Immunologist curious about viruses, cancer, evolution and all things human Likes all #systems thinking and still working out all the #omics 🤓 #immunosky #medsky #idsky
@geschom.bsky.social
Psychiatrist, stigma researcher, w/ special interest in time trends and SUD stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety.bsky.social
@tilmangrande.bsky.social
Psychotherapie, Psychoanalyse, Psychotherapieforschung, ME/CFS
@mastzellenhilfe.bsky.social
Wissenschaftlerin. Medizinpsychologin. Gründerin von Mastzellenhilfe.de. Mehr auf Instagram und Facebook präsent 🙂
@renegaderesearch.bsky.social
Renegade Research (RR) a non-profit 501c3 decentralized organization pioneering patient/caregiver led research focused on ME/CFS and LongCovid • https://renegade-research.org 💙 Project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm