@vasculitides
Living with EGPA/Churg-Strauss Syndrome • NIH-funded researcher • vasculitis patient advocate
www.vasculitides.com
@audemard-verger.bsky.social
Professor of Internal Medicine and Clinical Immunology France Tours University Trialist Founder and Coordinator of the European IgA Vasculitis Study Group Head of the department of International Relations, Tours Medical School
@drlh.bsky.social
Rheumatologist and physician with a special interest in GCA, PMR and osteoporosis. NHS believer. Proud mum to two great girls.
@rhumatosfr.bsky.social
La revue de l'expertise pratique en #rhumatologie ! 💊🦴💉 #arthrose #polyarthrite #lupus #ostéoporose #spondylarthrite #vascularites #douleurs #ric #goutte
@zoian.bsky.social
Living with vasculitis. Patient advocate, passionate about the patient voice. I love animals, books, nature, good food, traveling and baking!
@anoro.bsky.social
Dutchie, ❤️💚❤️, foody,blogger,📖❤️,tries to study Japanese and French, 🌍traveler, photographer, 🐕lover. Let's be involved, learn, listen. Latest addiction Korean skincare, Kdrama. 🌼💙, Relapsing Polychondritisch. #mydailypicture are my own pictures. Use=ask ❤️
@eleanorfrisch.bsky.social
Lawyer, writer, parent, disability advocate (MCAS and likely relapsing polychondritis)
@robsonjc.bsky.social
Academic Rheumatologist UWE Bristol Patient reported outcomes and impact of rare rheumatic disease on health- related quality of life ANCA associated vasculitis Giant cell arteritis
@anzvasc.bsky.social
ANZ Vasculitis Society - and host of 22nd International Vasculitis Workshop, #VasculitisMelbourne2026
@drwmb.bsky.social
Retired occupational therapist. Living with ANCA vasculitis https://restdodays.blog/2024/11/06/from-under-the-duvet/ Author of Rest-Do Days https://www.book2look.com/book/49aOEkIS5o
@itreallydoes.com
Disabled USMC Vet | Widow | Emotional Support Human for a Staffie named Zoey Living with DDD & #MS | Joomla Dev | Grave Digger | Sarcastic AF (blame the MS) MS Sucks: A snarky journal to track your MS bullshit & snarky MS apparel mssucks.co/links
@drlowell.bsky.social
I’m a PhD cellular & molecular biologist turned science writer, here to learn and share good scicomm and social knowledge. I’m also an empathetic human, feminist, wife, mother, and geek. Repost does not = endorsement. Opinions are my own. (She/her)
@izabelazakrocka.bsky.social
Internist, nephrologist, transplantologist, Assistant Professor at Medical University of Lublin, #Glomcon 2021-2022 Fellow, ERA YNP Representative of Poland 🇵🇱, Board of Polish Young Transplantologists #NephSky #KidneyOmics #PharmKidney
@odlerb.bsky.social
MD PhD | Nephrologists with interest in kidney autoimmunity | ERA YNP board member | views my own 🇪🇺
@ms-balzer.bsky.social
MD FASN | Nephrologist = kidney doc | #PeritonealDialysis aficionado | #ClinicianScientist @ChariteBerlin | Editorial fellow @JASN | #SingleCell | Determined to understand adaptation to kidney disease
@autoimmuneaware.bsky.social
@aliceburleigh.bsky.social
Postdoc @ UCL GOSH Institute of Child Health Autoinflammation genetics and gene therapy 🧬 Eczema/TSW patient advocate 🤚🏼
@reinholdmedina.bsky.social
Scientist interested in eye research, regeneration of blood vessels, and vascular ageing.
@goboru.bsky.social
PhD Student at IPBLN-CSIC in Granada, Spain. Researching the genomics and epigenomics of giant cell arteritis 🖥️🧬 Philosophy and sciart enthusiast. 🏳️🌈
@brunellalongo.bsky.social
I ask questions on #science, #healthcare, #technologies. Between flare-ups I'm writing my 9th book "The Sicca Messenger" on Sjögren's and other #autoimmunediseases #healthliteracy and #knowledge management. Semi-retired technologist. Freelance.
@sappenzeller.bsky.social
Adult and Pediatric Rheumatologist/Medical Education Specialist Professor of Rheumatology Universidade Estadual de Campinas. Loves cats/dogs and travel.
@akhilsoodmd.bsky.social
Immunology & Rheumatology Fellow @StanfordMed | Interested in Lupus | Working at the intersection of Epidemiology, Informatics, & Quality Improvement
@medicastra.medsky.social
#Hospital, #MD, #Rheumatology, UK based. A chemistry PhD & pharma bg, came to medicine late Scrolling is a distraction from taking action. Pick some concrete way to help & get to it. @twofishnocat.bsky.social for the likes/hobbies stuff
@aorticdissectct.bsky.social
Saving lives by improving the diagnosis of #aorticdissection, bringing treatment consistency across the whole patient pathway through #AortaEd, policy change & research. www.tadct.org
@lostinalberta.bsky.social
A small business owner in what feels like a foreign land..Alberta. Love my family and my dog and my country
@pennrheum.bsky.social
Penn Medicine's Division of Rheumatology, a national leader in diagnosis, treatment, and research in autoimmune diseases
@jonaszimmermann.bsky.social
@pinklp.bsky.social
@c-flurey.bsky.social
A/Prof Men’s Health & Long-Term Conditions at UWE Bristol, psychologist, Trustee for Men & Boys Coalition, Senior Editor Trends in Urology & Men’s Health, bookworm, gamer, coffee addict Papers: http://go.uwe.ac.uk/GoogleScholarCFlurey
@pwoywodt.bsky.social
Nephrologist/Professor. Social Media Editor Clinical Kidney Journal. Editorial Board BMC Nephrology. Dogs, cooking, classical music. views own #Medsky #Nephsky
@lynnfussner.bsky.social
Pulm/CC physician & investigator, multidisciplinary #vasculitis clinic @ OSUWexMed | @ MayoPCCM alum
@janeledwards.bsky.social
Author of Chronic Illness: learning to live behind my smile, available on Amazon. Love botanical art. #vasculitis #GPA
@birgitpfaller.bsky.social
#KidneyDoc w/ special interest in Medical Disorders in Pregnancy and Peritoneal Dialysis #CardioObstetrics #Women’s Health Issues in Nephrology & Hypertension - PreCareFem
@hswapnil.medsky.social
Nephrologist = kidney doctor MD, MPH University of Ottawa/Ottawa Hospital 🇨🇦 Unceded territory of the Anishinaaben Algonquin nation He/Him/His No PhRMA conflict #NephJC co-creator, @FreelyFiltered.bsky.social pod panelist #MedSky #NephSky #SkyNeph
@marcussaemann.bsky.social
Nephrology - Internal Medicine, Diabetes survivor, Tennis - R.Federer, J. Haydn Afficionado @oegnephro MARKUS@HOMe
@johannmorelle.bsky.social
MD, PhD, FASN | Head of the Division of Nephrology at University Hospitals Namur (www.chuuclnamur.be) | Associate Professor of Nephrology | Physician-scientist at de Duve Institute (www.deduveinstitute.be) Special interest in glomerular diseases and TMA