@fhronesis.bsky.social
Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@mamguwithme.bsky.social
Mild M.E 2010-15; Severe M.E 2015-date. 🏴From Bed, Beddingham 🎄🎅🎁Christmas lover. Advocado hater🥑 Coeliac & PCOS. ⏳️Patiently waiting for a cure or treatment for M.E⌛️
@taniaspencer.bsky.social
🇨🇦🇿🇦 • writer • photographer • Long COVID first waver • vaxxer • masker • maker of Corsi-Rosenthals • Yukoner
@kevyb.bsky.social
Official spokesperson for the Silent Majority. Fully Certified Renaissance Man. Leftist, anti-Zionist, Green party member, JC Stan. Ultra longhauler ME, chronic illness sufferer. Egalitarian. Follow me if you want to live.
@ianjpalmer.bsky.social
Full time Carer & Husband to @mlouisep.bsky.social, GenderQueer, Autistic/ADHD, Star Trek, Doctor Who, Alien, Mad Max, Lego, and all round geek. #ToyPhotography 🏳️⚧️He/She/They Level45 Anti-AI! www.instagram.com/autographyphotography/
@litsadremousis.bsky.social
ALTITUDE SICKNESS (Future Tense Books). Upcoming: FIRE IN THE HOLE: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. Esquire, NY Mag, PW, The Blvr, NPR, NYT, P&W, The Rumpus, McSwy's, et al. Cohost of PEM Pod. #pwME in #Seattle. https://litsadremousis.com
@ndwales.bsky.social
NiwrowahaniaethCymru.org / NeurodivergenceWales.org Diben y Tîm yw helpu i wella bywydau pobl niwrowahanol yng Nghymru. The purpose of the Team is to help improve the lives of neurodivergent people in Wales.
@gwenfar.bsky.social
Plants. Cats. ME/CFS. Going through an earth sciences & dinosaurs phase. #MedievalHistory #GardeningWithME #Disabled #FreePalestine #TransRights. They/them. Penarth. Dysgu Cymraeg. Mostly on Mastodon @[email protected]
@songbird7.bsky.social
Advisor at Hereditary Fructose Intolerance (HFI) UK. Retired nurse, midwife, health visitor, psychosexual therapist.
@easyreadwales.bsky.social
Experts in turning complex information into accessible Easy Read in English and Welsh. Contact us for a quote: [email protected]. Part of Learning Disability Wales. #EasyRead #AccessibleInformation #Charity ➡️ https://www.ldw.org.uk/easy-read-wales
@minetodo.bsky.social
Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #MEcfs since 2009
@pillowwriters.bsky.social
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
@longcovidadvoc.com
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #pedanticzebra book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/
@blomechristine.bsky.social
COVID nerd | Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@ancirabecky.bsky.social
Survivor. Proud mother. Teacher. Activist. Trying to make a difference. #PatientAdvocate #longcovidawareness #LCDC #March15 #ValueCognition #WHN Interview with @theWHN : https://youtu.be/YUgcqJ-m7C0
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@jeffna.bsky.social
Lefty Brit who speaks a few languages, loves music, science-fiction, video games and art. Transphobes can get hence. I ❤️ ALT-text because it make images searchable and my eyes are getting dodgy. Pinky-swear I’ll reskeet if you do.
@murtoz.bsky.social
🇳🇱/🏴. He/Him. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@jessikafe.bsky.social
ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
@somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS and more. Chronically hopeful for better days. Determined to fight against injustice so people with ME and LC are treated with the same belief, respect and kindness as any other serious physical illness.
@disabilityrebel.bsky.social
Welcome to the Disability Rebellion - a feisty fightback against ableism and cruel government cuts! • DM for Discord invite • DR links: https://linktr.ee/disabilityrebellion
@seastarsal.bsky.social
As a ME/CFS and Long Covid cartoonist, I try to comfort the afflicted and rage against the bad guys. I've had ME/CFS since 1992. cfsgraphics.com
@dadapisconti.bsky.social
I wanted to be a singer, ended up being a scientist. My lab studies: muscle growth + regeneration | satellite cells | muscular dystrophy | ME/CFS 💪🐭🐔🧪🧬🧫🔬 "Well-behaved women seldom make history" https://you.stonybrook.edu/piscontilab/
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@alec-xander.bsky.social
@jaseygalore.bsky.social
Disabled by #MyalgicEncephalomyeltis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° Free Palestine ° Dutton can kiss my dot ° #doomer in #Lutruwita I mostly repost things because my mind isn't sharp and lively anymore
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
@campaignfdj.bsky.social
A UK-wide campaign run by Disabled people, for Disabled people, run by a local charity @inclusionbarnet.bsky.social Join our campaign for updates: https://www.campaignfordisabilityjustice.org.uk/sign_up_to_support
@mefelag.bsky.social
The Icelandic ME association #MEawareness #mefelag #longcovid #vitundarvakning
@helgaedwards.bsky.social
Chairman of the Icelandic ME association #MEawareness #MEwarrior
@frank-hank.bsky.social
Artist and lazy blogger. Animal lover (esp cats). Maker of stuff. Covid cautious. Living in Northern Ireland but English. Her/she.
@oxaloacetatecfs.bsky.social
A Medical Food clinically proven to lower fatigue in patients with Long Covid & ME/CFS Tired of being tired? oxaloacetatecfs.com
@qothzaos.bsky.social
Law graduate, autism advocate and carer. Left wing socialist and proudly neurodivergant. Refugee from Labour and Twitter. The problem with hard capitalism is that eventually you run out of other people to exploit.
@shrinkatlarge.bsky.social
Consultant clinical psychologist/ activist/ neuroqueer bluestocking. Former Lived Experience Practitioner. Future failed poet. Will question ideology for cake. 💜🎭🦓🥄🏳️🌈 #MadSky #TraumaNotPD #Disability #Neurodivergent #Mad https://t.co/83d2Ztwpp2
@deemontague.bsky.social
(She/they) Taught Stephen Hawking the rules of roller derby. Writer. Queer. Disabled and chronically ill. Engagement Officer @ftww.bsky.social. Star Wars obsessed. Semi-retired Liverpool fan. Views and brain fog my own. 🏳️🌈♿🏴
@ftww.bsky.social
The only patient-led charity in Wales dedicated to achieving health equality for women, girls, and people assigned female at birth. We Chair the #WomensHealthWales Coalition. Disabled People's Organisation.