@rarebydesign.bsky.social
Grassroots nonprofit creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families. Founded by @Kegottsleben.bsky.social.
@who.int
We (The World Health Organization) are the United Nations’ health agency championing Health For All. Always check the latest posts for updated advice/information. We will remove misinformation, spam and hate speech here. www.oneworldhealthforall.org
@charitydebra.bsky.social
DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB). Find out more: https://bit.ly/4jaRfQG
@curedravet.bsky.social
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families. https://dravetfoundation.org
@bmj.com
The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment.
@uoe-igc.bsky.social
Our mission is to improve the lives of people living with genetic disease and cancer through research.
@leedsth.nhs.uk
The official account of Leeds Teaching Hospitals NHS Trust. This account is monitored from 9am-5pm, Monday-Friday.
@rcpch.bsky.social
We represent more than 24,000 paediatricians in the UK and internationally, working to ensure that children everywhere receive the best care. Visit our website: www.rcpch.ac.uk
@medicsforrare.bsky.social
Our vision is a world in which there is equitable healthcare for everyone
@rarevolution.bsky.social
Account for the BLACKSWAN Foundation and RE(ACT) Community #RAREvolution, stand up for research on #rarediseases blackswanfoundation.ch http://www.react-congress.org 🦓
@rdndlab.bsky.social
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions. https://tinyurl.com/rdndkcl
@greatormondst.bsky.social
Official account of Great Ormond Street Hospital for Children NHS Trust, sharing stories from our patients, families and staff. Monitored Mon-Fri https://www.gosh.nhs.uk/
@ouhospitals.bsky.social
NHS Foundation Trust delivering care at the John Radcliffe Hospital, Churchill Hospital and Nuffield Orthopaedic Centre in Oxford, the Horton General Hospital in Banbury, and in the community. #OneTeamOneOUH | www.ouh.nhs.uk
@alderhey.nhs.uk
Creating a healthier future for children & young people everywhere. Posting 9am-5pm weekdays (excluding bank holidays) 😀 #AlderHeyFamily
@healthfoundation.bsky.social
We are an independent charitable organisation working to build a healthier UK. www.health.org.uk
@theguardian.com
The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com 🇺🇸 Guardian US https://bsky.app/profile/us.theguardian.com 🇦🇺 Guardian Australia https://bsky.app/profile/australia.theguardian.com
@thecrid.bsky.social
https://TheCRID.org More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
@rarediseasesint.bsky.social
RDI is the global alliance for persons living with a rare disease, across all countries and all rare conditions.
@rd-rn.bsky.social
An online hub supporting patient driven research ideas to be realised & flourish. Open to all. Join the #RareDisease #Research revolution at www.rd-rn.org * connections * resources *mentoring NIHR funded, co-created by CamRARE, PLRH & patient experts
@all4inclusion.bsky.social
Social Enterprise supporting the disability community through loneliness www.all4inclusion.org
@camrare.bsky.social
Making rare disease an everyday conversation. CamRARE is a charity empowering rare disease communities & fostering cross-sector collaboration to improve outcomes for those affected. #RareDisease Local | National | Global www.camraredisease.org
@cloud9medialdn.bsky.social
Authentic, engaging and beautifully-crafted video campaigns that drive change. cloudninemedia.co.uk
@amrc-uk.bsky.social
The membership organisation of leading medical and health research charities in the UK. www.amrc.org.uk
@nhsresearchscotland.org.uk
Ensuring NHS Scotland provides the best environment to support clinical research so patients can benefit from new and better treatments. https://www.nhsresearchscotland.org.uk/
@thebhf.bsky.social
We fund vital research into heart diseases, stroke and vascular dementia, and their risk factors like diabetes.
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]