Down Syndrome Parents, Advocates & Researchers
Community for parents, advocates, researchers and anyone enabling self-advocates.
Created by
@cecmcv.bsky.social
@txvideot.bsky.social
No DMs. Former Tv photojournalist, dog lover, caregiver to two disabled adults. Mediocre but determined gardener.
@teamupinclusion.bsky.social
Community, Secondary & University based programmes employing a buddy system to support persons with Down Syndrome and ID in a group setting. Two-way learning. # InclusionForAll
@bethhk.bsky.social
Progressive, pro-European, reader, traveller, grandmother. Support Palestine and Ukraine. Believe in peace and compromise - not an absolutist. DownSyndromeAwareness and AutismAwareness. Green gardening/food forest Iβm finally writing a book π«£
@legalmomma.bsky.social
Proud Indiana University alum, attorney, #truecrime sleuth, disability and #Downsyndrome advocate, β₯οΈ #goldenretrievers , #leukemia Mom-nurse to an amazing son diagnosed #B-ALL 10/20/24
@staceycrussell.bsky.social
Screenwriter | Nerd | AuDHD | Down syndrome advocate ππ Liberal Hollywood Whackadooβ’οΈ | Available to write for your kooky ass TV shows!
@la-ricachica.bsky.social
Book lover. Fluent in meme. Down Syndrome awareness. Gryffindor. Capricorn. Gen X. Known to cuss a little.
@angelaboord.bsky.social
Nerdy introvert. Hopeless romantic. Character-driven epic fantasy about chasing hope in the darkness. π¦Ύβ€οΈβπ©Ή #SPFBO Finalist FORTUNE'S FOOL #SFINCS Finalist #BBNYA Semifinalist https://linktr.ee/angelaboord
@aprilsparkles.bsky.social
π¨π¦ Lover of sparkles and yellow hearts. Games night enthusiast. Quilter. Seeker of solace. Renowned raisin influencer. Down syndrome advocacy. Itβs always time for a cup of tea.
@drshelleymoore.bsky.social
The Outside Pin Consulting Team helping education change its aim π³ https://www.drshelleymoore.com/
@tamarataggart.bsky.social
mum. friend. keynote. emcee. host. 30yrs in radio + television news podcast host #TelusTalksWithTamaraTaggart volunteer president @downsyndromebc
@ctrlab.org
Professor at Washington University in St. Louis. Alzheimerβs disease, Down syndrome, digital cognition researcher. Director of Cognitive Technology Research Laboratory. Into tennis, fly-fishing, espresso, woodworking, opera, und Deutsch lernen. ctrlab.org
@reptarusonice.bsky.social
34. He/Him. PNW. Current Video Essayist and Solo Dev. Father Of Four. Enby and T21/Down Syndrome dad. 10 Years PR/Marketing in Tech/Gaming. https://youtube.com/@reptarusonice #gamedev #blacksky
@sandrawickham.bsky.social
Author, Mom to son with Down syndrome, Special Olympics coach, Founder of Feel Write Again, Health Guru, Crafting Aficionado, Ninja-in-Training
@noelleai.bsky.social
#1 Global Thought Leader on Agentic AI | AI Revenue Growth and Cost Optimization Expert | Keynote Speaker| Founder of I β€οΈ AI Community (1.5k+ Members) | Mom to 5, 1 w/Down Syndrome β€οΈ Worked @ Red Hat, IBM, AMZN, MSFT and NPR
@ashleycollimore.bsky.social
Biomechanist studying mobility in infants with Down Syndrome Postdoc at Boston University in the Infant Communication Lab π of BU Rehabilitation Sciences '23 and UPenn Enginering '17
@carolineboudet.bsky.social
Journaliste, auteure, down syndrome Mum. FΓ©minisme. Antivalidisme. Inclusion, "quoi qu'il en coΓ»te". Souvent Γ©nervΓ©e. Ici c'est mon compte officiel et sΓ©rieux. Mp pour suivre l'autre.
@drlizherrieven.bsky.social
EM/PEM consultant, learning disability & autism advocate, Down Syndrome Medical Interest Group, Downβs Syndrome Association, RCEMlearning blogger/editor, DFTB bubbler, QMUL PEM MSc hon lecturer, mother, no hobbies cos no other time left π₯΄
@annamoyer.bsky.social
Down syndrome researcher, disability advocate, cat mom & knitter | PhD in Roger Reeves lab at Hopkins Medicine | Postdoc in Summer Thyme's lab at UMass Chan | creator of accessiblechef.com π§Άπ±π§¬π§¬π§¬
@miriamlense.bsky.social
Researcher and psychologist at Vanderbilt University Medical Center; focus on social interaction, communication, caregiving and well-being; #musicscience, child development, autism, Williams syndrome, Down syndrome. Views my own
@elizabethhead.bsky.social
Professor, Dept Path at the University of California Irvine. Focused on Aging and Alzheimer disease in people with Down syndrome, π¨π¦, http://sites.mind.uci.edu/headlab/ and https://www.nia.nih.gov/research/abc-ds
@aquaporingirl.bsky.social
Mom & UCI PhD Candidate | Studying Aquaporin-4 in the context of neuroinflammation with Alzheimer's disease in Down syndrome | Interested in anything Glia, Stem Cell, neurodegenerative, neurodevelopmental, and BBB-related | Opinions are my own ππ¦π§
@gramanne.bsky.social
Iβm a mom, Grammie, and wife. I coach special Olympics because I have a son with Down syndrome. No DMs or I will block. Democrat to the end!
@termcqui.bsky.social
Fierce mama. Down syndrome & disability advocate. RN. π¨π¦ Waterloo region π². Free π
@mthurzday1.bsky.social
Love the Red Sox, son with Down Syndrome, love my pets, Be who you are...empathy and kindness matter...blue is my favorite color ππππππ I love living in a democracy No DM's please
@dseusa.org
DSE works to improve education for children with Down syndrome everywhere.
@dsrfcanada.bsky.social
DSRF provides comprehensive support, rich social connections, and the best resources available so people with Down syndrome and their families can thrive.
@down-syndrome.org
DSE works to improve education for children with Down syndrome everywhere.
@cecmcv.bsky.social
Traveller, semi-retired educator, reader, writer, mom, wife, caregiver. Support for trans rights & Down Syndrome awareness/disability rights.