Multiple Sclerosis starter pack
Suggested accounts from MS patients, healthcare professionals, and MS organisations to help you stay informed and engaged.
Created by
@makaroff.bsky.social
@labliston.bsky.social
Professor of Pathology at the University of Cambridge. Equalities Fellow, Welfare Tutor and Director-of-Studies at St Catharine's College. Educator, scientist, immunologist, daddy. Founder and CSO of Aila Biotech Ltd.
@irisnmosd.bsky.social
Coffeeaddict, CatโMomโ, Spoonie with NMOSD (Neuromyelitis Optica Spectrum Disease), Sjogrens, Depression, AD. Chronical illness. Introvert. Booklover. Disabled. Optimist.
@tatterededge.bsky.social
Host of NMOSD Your Way Podcast (Canada & Global), Rare Disease Advocate, UBC Health Mentor, Journal of Medical Imaging & Radiation Sciences (JMIRS) patient partner, wheelchair curler. #UglyDogs
@sumairaflower.bsky.social
๐บ Founder of The Sumaira Foundation (TSF)๐ธ๐ฝ Miss Bangladesh-USA 2015 ๐ง๐ฉ views are my own
@jessiankaanneo.bsky.social
:- X- Computer Science Teacher. :- Horror & SciFi book reader. Recommed "Children of Time" :- Xbox & PC gaming, Horror & SciFi :- MS / MOGAD Diagnosed 2023. :- Constant Fatigue, :- NO Crypto, Porn, Onlyfans, Sellers or DMs. He / Him
@msawarenessindy.bsky.social
PPMS DX 2018. 70 year old male, trying to make sense of my journey and sharing my thoughts . Not a doctor. He/Him/His. I donโt read or respond to DMs unless weโre close friends. #Resister and ๐ ally.
@mabsoud.bsky.social
Paediatrician @EvelinaLondon ,clinical academic @KingsCollegeLon, Neurodevelopmental,epilepsy, long term conditions, mental health:Views personal #Recovery4Kids
@localizedlesion.bsky.social
Diet soda-fueled neurologist/MS fellow here to defend your myelin and your human rights. I like dad jokes but my kids don't. he/him/his
@sroman.bsky.social
Using words for better healthcare: MSARD, JNNP, BMJ & MSJ. JNNP Patient Editorial Board, BC Brain Wellness Chair, CMAJ Patient Advisory Panel. MS research explained โ๏ธ https://tremlettsmsresearchexplained.wordpress.com/
@staceylclardy.bsky.social
Autoimmune Neurologist. Physician Scientist. Editor, Neurology Podcast & Neurology Minute.
@castltrastondrs.bsky.social
"Not all those who wander are lost" JR Tolkien #Clinicalresearcher #DrugDevelopment #Clinicaltrials & Registration ๐งฌ๐ฌ๐๐๐ฆ ๐งซ ๐ Melbourne ๐ฆ๐บ Oxford ๐ฌ๐ง& ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ #MedSky๐งช
@shamsudeenmuhammad.bsky.social
Anatomist | Neuroscientist enthusiast Neurodegenerative diseases #Neuroscience #brainhealth
@jtvannah.bsky.social
Neurotech Consultant/Clinician/Armchair Philosopher. Fueled by a thirst for adventure & insatiable curiosity, while on a journey to learn as much as I can in this lifetime and sharing it with others in creative formats. #Neurotech #Brainhealth
@kuhnmanu.bsky.social
Instructor in Psychiatry | Harvard Medical School Director, Neuroimaging and Instrumentation Core, Laboratory for Affective Neuroscience | McLean Hospital #brainhealth #mentalhealth #depression #anxiety #stress #neuroimaging #psychophysiology
@claremackay.bsky.social
Prof of Neuroscience, University of Oxford and @thetrichprof (insta, FB, YouTube) #neuroskyence || #psychscisky || #BFRBs || #trichotillomania || #mentalhealth || #brainhealth || #art || #WomenInSTEM
@simplypoi.com
๐ง Brain fitness tips ๐ฟ Wellness ๐ Poi Spinning ๐ Stargazing ๐ A peek into my world ๐ Letโs chat ๐ linktr.ee/tariyawells
@adephiladex.bsky.social
OHSU Postdoc & ADRC Scholar exploring brain aging, vascular biology, and neurodegenerative diseases. Investigating cellular processes like ferroptosis to understand Alzheimerโ and other age-related disorders. #AgingResearch #BrainHealth #Glia #Ferroptosis
@brainhealthmd.bsky.social
Neurologist | Brain Health Researcher | Advancing Cerebrovascular Care
@vjokubaitis.bsky.social
Clinical and translational Neuroimmunologist working in Multiple Sclerosis prognostics, genomics and womenโs health.
@lozzykinz.bsky.social
Gamer and enjoy TV shows old and new including anime. Books. All round geek tbh, anything nerdy. Vinyl collector and old rocker ๐ค Greyhound mum ๐ถ๐ถโฅ๏ธ #RRMS sufferer #COYS sufferer
@momnotbruh.bsky.social
Leahโก โขme:๐บ๐ธ hubby:๐ฌ๐ง โขally ๐ณ๏ธโ๐๐ค๐ค๐ณ๏ธโโง๏ธ โขiced coffee afficionado โขtrekkie ๐๐ผโ โขi love llamas โขtrue crime junkie โขi buy ๐ that I don't read โขi love to read โขใฝ๏ธS warrior โขcancer survivor
@abudd.bsky.social
I work in the #CJS and was DX with MS in 2008. I used to write a blog about Multiple Sclerosis but have run out of things to say. Proud wheelchair user
@ms-uk.bsky.social
MS-UK is the national charity supporting anyone affected by multiple sclerosis (MS). We offer a number of services that support people affected by MS to live healthier, happier lives. For more information, visit www.ms-uk.org. Reposts not endorsements
@griffax.bsky.social
Been living with Multiple Sclerosis since 1996. Now SPMS. Retired in 2005 due to it.
@bhamzara.bsky.social
Ginger Goddess ๐ฉโ๐ฆฐ ๐ต living in ๐ด Bham, AL Single Mom to 2 AMAZING ๐ฆ๐ฆ๐ป Feminist Ally to All Melomaniac, Slooow Runner, City Explorer, Podcast Addict MS Warrior ๐๏ธ๐งก
@reenie.bsky.social
Book Nerd. Love writing & travel. Liberal Arts Diploma. Married mom of two living with MS. Bit of a paranormal junkie. Leo. Canadian.
@twofacesofms.bsky.social
A little about MS & a lot about the adventure of life's journey along the way. #MultipleSclerosis Proud, liberal, humanitarian, nearly 30 years working in healthcare, open to patient speaking engagements https://twofacesofms.com/
@sa1n7huck.bsky.social
I'm just another refugee from that MAGA circle jerk dystopian hellscape known as X. My spine can't handle one more straw of ignorance. Resist, Her Body Her Choice, ProudVermin, BLM, ProChoice, FreePalestine, ClimateAction, GunReform, MultipleSclerosis
@berserkerneil.bsky.social
Liberal Curmudgeon ๐ #Democrat ๐ #GetTheFuckOutaMyYard ๐ซ #BlackLivesMatter โ๐พ #LGBTQ ๐ณ๏ธโ๐ #IHateFuckingRacists ๐ฅ #MultipleSclerosis ๐ I'm here for Politics NO MAGA NO DM's
@allix.net
Podcast host for Overcoming MS. DX with MS 2015. Lemtrada since 2018. From Essex to Devon via London. #MS, #MultipleSclerosis @geoffallix on Twitter
@fiestylass.bsky.social
Scottish mum of 2. Living with MS and all the fun that entails. Book lover and gamer. ๐งก๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐ #MultipleSclerosis #SecondLife #LostArk #OnceHuman #ThroneAndLiberty
@iandel.bsky.social
Retired, proud Grandfather. Previously employed on the Queen's business. Definitely not a Tory. No DMs. Nec Aspera Terrent #MultipleSclerosis #Lymphoma
@annesilver7.bsky.social
Army JAG #Vet #MultipleSclerosis. #ParalyzedVeteransOfAmerica #News #PVA #VictorianHistory #NarrativeNonfiction No DMs.
@robertow83.bsky.social
It's all about fun-times. #Tofu ๐ #Geeky ๐ค #Gaymer ๐ฎ #Dyslexic ๐คฏ #MultipleSclerosis ๐ง #Disabled โฟ #LGBT๐ (he/him) #EUropean ๐ช๐บ #FFXIV ๐ฎ
@scribbles78.bsky.social
I write books. Sweary. Massive idiot. Horror junkie. #multiplesclerosis
@gregory-ms.com
I am a robot built by @brunoamaral.eu and tonyvirtual.bsky.social to identify relevant research and clinical trials for #MultipleSclerosis. #BotsFightMS
@ailsajanepodmed.bsky.social
Podiatrist | PhD Researcher | Mother | MSer | Beagle | Cats | Books | ๐| More ๐| ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ #SwanseaUni #MultipleSclerosis #LowerLimbHealth #Podiatry #FootHealth #PROMs #HealthResearch #PPI #NeuroRehabilitation
@rinnywee.bsky.social
| History #PhD Researcher (experiences of patients in the Sussex County Asylum 1890-1913) | #Librarian | Pagan Chaplain | Sussex Uni | Priestess | Ceridwen | Danu | Macha | Banbha | Lilith | Inanna | #MultipleSclerosis | ๐ฆ๐บ๐ซ๐ท in ๐ฌ๐ง |
@tinameyer.bsky.social
Economist โก๏ธ#climate crisis ๐บ๐ฆ๐ฎ๐น๐จ๐ญ#N95 - #FFP2 ๐ท 7๐/ #HERV-W, #HERVs / #LongCovid #MS 1๏ธโฃ STOP #MultipleSclerosis worsening) 2๏ธโฃ #TreatLongCovid LC #FlowerPower ๐ ๐ธ๐บ โบ๏ธ #QuitX โ ๏ธ 11/6/24 #Resist ๐๐ Pediatric #MultipleSclerosis since I was 10. Varicella at 8.
@johnmiers.bsky.social
Cartoonist โ academic. Some of my drawings are about having #multiplesclerosis. he/him. johnmiers.com
@purplepixelstv.bsky.social
โฟ Disabled Gamer - MultipleSclerosis and Hard of Hearing. Loves cozy games, WOW, Disney Dreamlight and my dogs :) Co-founder of the Dungeon Dojo #disability #accessibility #inclusion #vtuber https://www.youtube.com/@purplepixelstv
@1mayanh.bsky.social
๐ History nerd who wishes for a gentler world. Moving from that bird place where I had the same profile name. MS Warrior #MultipleSclerosis
@mysageadvice.bsky.social
๐๐งก๐ #UniteBlue #Caregiver #DisabilityRights, husband has #MultipleSclerosis๐งก #LGMD2L self ๐#Dogs #LGBTQ+Ally๐ Mom #Legalizeit๐ฟ #MedicalResearch #KindnessMatters #BLM retired educatorMSEd Leadership #RepoRights ๐ซMAGA,crypto! IFBR asap! ๐๐ซถ๐ผ๐ฆ
@multisclerninja.bsky.social
I have MS and dieing under the trump administration is not on my "to-do list" #resist #blueresistance
@irelandms.bsky.social
Writer. MS & Disability Advocate. Winner Ireland Blog Awards. Fluent in the art of the nap & proving that MRI brain scans are valid forms of ID. New Beagle pup mum ๐พ irelandms.com #dogs #writing #books #libraries #coffee #history #psychology #philosophy
@multiplesclerosis.bsky.social
A source of multiple sclerosis and related news, views and research https://patienttalk.org/category/multiple-sclerosis-2/
@makaroff.bsky.social
๐Cambridge, UK | she/her | Chief Executive, Multiple Sclerosis International Federation. Patient advocacy, non-profit leadership, healthcare policy, & public health ๐. Enjoys Mars rovers ๐, bookcrossing ๐, & birdwatching ๐ฆ.