Parkinson's Community Starter Pack
For people with Parkinson's disease, the people and organizations that support them, researchers, neurologists, physios, etc. Send suggestions if you have them!
Created by
@rebeccamil.bsky.social
@parkinsoncanada.bsky.social
Empowering the #Parkinson's community through support, advocacy, and research. Together, we’re building a future with no limits for those impacted by Parkinson’s. Learn more at www.parkinson.ca or call our support line at 1-888-664-1974
@parkylar7.bsky.social
Dx of Parkinson's/Dystonia (age 45 in 2024) & MCI. CODA, Marine Corps Veteran, love photography.
@cureparkinsons.org.uk
We're here for the cure. Everything we do is to find treatments to slow, stop or reverse the progression of Parkinson's.
@pfresearchteam.bsky.social
The Parkinson's Foundation knows that a research breakthrough can happen at any time & believes in educating our PD community with the latest research updates. https://www.parkinson.org/advancing-research
@rjsmeyne.bsky.social
Philly Neuroscientist studying Parkinson’s disease, role of viruses in neurodegenerative brain disorders and role of isolation on the brain. Director of a Parkinson’s Foundation Center of Excellence. Caretaker to one Newfoundland and one Labradoodle.
@cathymolohan.bsky.social
Parkinson's advocate. Irishwoman in Germany. Eternal optimist.
@robertihorne.bsky.social
Drug discovery fellow @ D. E. Shaw Research focusing on cancer treatments 🧫 PhD from Uni of Cambridge working on inhibitors of neurodegenerative disease 🧠
@clausdnk.bsky.social
@jakobssonasap.bsky.social
ASAP Team Jakobsson is interested in studying the role of transposable elements in Parkinson's disease pathogenesis | Core leadership: Johan Jakobsson (LU), Agnete Kirkeby (UCPH), Molly Gale Hammell (NYU) & Roger Barker (Cambridge University)
@handle.invalid
Essays on mindfulness meditation, cognitive technology, and climate politics 🐌 🌐 https://johnmiedema.art/ 📥 https://johnmiedema.substack.com/ #meditation #neurotech #cdnpoli #climate #parkinsons #wakefieldqc
@lanceletain.bsky.social
Executive director, volleyball coach kinesiology graduate, adventure tourist, sandwich lover.
@parkinsons.org.uk
We’re Parkinson’s UK, the charity that’s here to support every Parkinson’s journey. Every step of the way. https://prksn.uk/4g94RcM
@davidnelsonnm.bsky.social
Old school IT engineer, weather gazer, Padres sufferer. RIP Heidi (Oct ‘23) & Wolfgang (Jan ‘24). I talk about CHF & Parkinsons cause I have them. USAF vet.
@dinosaurold.bsky.social
A cantankerous traveler herding her cats about. Parkinsons hit me 5 years ago, big bummer. I 🤎The Beatles & Classical Music. Sarcastic . Reading, architecture, graphic arts, and traveling. #Parkinsons #Democracy #4B #Humanity 🚫DM ,🚫No List
@chrismccrum.bsky.social
Scientist researching balance, gait & falls prevention in older adults, vestibulopathy & Parkinson's disease at Maastricht University and recently KU Leuven. Also interested in improving methodology & open science. Sprints Coach at ASV Köln
@drisubramanian.bsky.social
Movement Disorders Neurologist, UCLA/VA, Travel/ Live Music Junkee, Jazz, Mom of 3 Boys, Mindfulness/ Yoga, 🇮🇳🇨🇦🇺🇸
@luretamal.bsky.social
Neurologist, and previously trained as a Health Psychologist. Focused in Research in Neurodegenerative diseases #Parkinson #Alzheimer, and Neuropsychiatry 🧠. Eternal Love for Books 📚📚
@bobbygvegas.bsky.social
🥃 Retired: Statistical analyst [Bayes, Chebychev,Taleb, rpart() 🤣], ASQ Certified Quality Engineer, writer, UNLV MA/EPS & adjunct (BGladd.com/unlv), musician, photographer. PD dx: dyskinesiac; Sinemet Still Sux. Grandpa❤️ Great-Grandpa❤️ BGladd.com KHIT.org
@elipollard.bsky.social
World Parkinson Coalition Executive Director and VP, Chief Education Training Officer at Parkinson Foundation
@jmec.bsky.social
Retired vicar in N. Yorks. Parkinson’s since 2021. Bookbinding. Lichen. Guitar. Electronic music. Zwift. Theology, philosophy, astronomy.
@philsainter.bsky.social
Assistant Head of School for the School of Applied Management. The views posted here are my own and not my employers. Dog dad, #techgeek, #360photos, Dx #YOPD 2021, #academicsky
@chrkontaxi.bsky.social
Researcher @UCSF working on the presynaptic dysregulation in #Parkinson's disease 🧠🔬 avid reader 📚 coffee addict ☕️ | Previously @EdinburghUni
@uhpparkinsons.bsky.social
Acute Parkinson’s Specialist Team for Inpatients, Newly Diagnosed & Device-Assisted Therapies at University Hospitals Plymouth NHS Trust @uhpnhs.bluesky.social #PD #MSA #PSP https://www.plymouthhospitals.nhs.uk/parkinsons/
@markahirsch.bsky.social
Movement scientist @Carolinas Rehabilitation Adjunct Professor @Wakeforestmed studying #exercise #plasticity #Parkinson disease #neurotrophins #collaboration
@sara-schaefer-md.bsky.social
Movement disorders neurologist, fellowship director, residency PD at Yale, #meded. MDS podcast Dep Ed, Neurology Nuts and Bolts podcast founder, movementmodules.yale.edu creator, Grey Matter Project virtual HS neuroscience club founder
@malutansey.bsky.social
Stanford, UTSW, WashU, Emory, UF & now Indiana Uni SOM Stark Neuroscience. Latina, mother, daughter. Immunity inflammation lysosomes neuroimmuno neurodegen, EIC NPJPARKD. Posts my own.
@sqrrlie1.bsky.social
She/her Am-Aus living on Peramangk lands. Lover of birds, squirrels, world travel, food & democracy. PD Avenger & Parkinson’s advocate (HwP). All views are my own.
@manon-auffret.bsky.social
PharmD 🐍, PhD 🧠 | Apomorphine | Parkinson's disease | Neuropalliative care | Addiction | History of Neuroscience & Pharmacy Publications : https://t.co/GhWgYxwVvq
@richp.bsky.social
✈️ Aviation Enthusiast | 📱 Tech Enthusiast | 🍲 Food Explorer | 🎬 Movie Buff (comedy & horror) | 💪 Navigating early Parkinson's Let’s connect over aviation, tech, great food, or a movie recommendation!
@theparkinsonscoach.bsky.social
I work with those dealing with the aging process and all the challenges that come with it: loss, regrets, anxieties. I specialize in helping men and women who have Parkinson's disease and the family members that love them.
@ruthschneider.bsky.social
Movement Disorders Neurologist | Clinical Researcher | University of Rochester | Mom | Outdoorish
@wallkthisway.bsky.social
Husband, father, sibling, friend and guy with Parkinson’s Disease. This is me smiling! I am hopeful and happy but not OK. It’s not going to be OK, so don’t ask. Enough with the heart and hug emojis!
@billmccleery.bsky.social
Believer; husband of 1; father of 3; state employee; former journalist (IndyStar/USA Today Network); 1 of millions with Parkinson’s
@anjanchatterjee.bsky.social
Neurologist, Cognitive Neuroscientist. Director: Penn Center for Neuroaesthetics https://neuroaesthetics.med.upenn.edu/ Author: The Aesthetic Brain
@raphaellaso.bsky.social
👩🏻🔬 PhD Candidate, Parkinson’s disease/alpha-synuclein researcher. 📍 University of Toronto, Canada. 💃 Hobby dancer, 🐹 hamster mom. 📺 Enjoys Korean/Japanese/Chinese dramas. Views my own!
@intenseca.bsky.social
Clinical research on neg effects of #dopamine agonists on #Parkinson’s, #DBS patient, #polyglot x4, #TheoreticalPhysics #astrophysics, Save #Chandra 🇮🇱 🇦🇺🇨🇦🇺🇸 #FBPE #gay #Sondheim, Not a fan of #biologic meds, @granttremblay.com is my hero, 💙 ✡️
@arthurbuijink.bsky.social
neurologist // movement disorders // deep brain stimulation @ Amsterdam UMC
@gilbertpedneuro.bsky.social
Pediatric neurologist, movement disorders specialist, educator, researcher
@markthered.bsky.social
Recently widowed and diagnosed with parkinsons disease I've had better years Love Manchester United and trying too keep going
@benjaminstecher.bsky.social
Associate Director of the Silverstein Foundation for Parkinson's with GBA as well as Chair of the Patient Advisory Board to Rune Labs.
@poonamthakur.bsky.social
Assistant Professor at IISER-Thiruvananthapuram, India. Working on the neurobiology of Parkinson's disease using mouse models. https://sites.google.com/view/thakurlab/home
@worldpdcongress.bsky.social
Only global meeting to include ALL members of the Parkinson's community. #WPC2026 #parkinsons #neurology #neuroscience BLOG: http://worldpdcongress.org
@chardcore.bsky.social
Legendary Speedrunner ShesChardcore 40 / trans / bi / poly / gamer / queen of the magnets / metalhead / perpetually tired / Parkinsons sufferer
@parkinsondotorg.bsky.social
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. Parkinson.org
@atday.bsky.social
Professional Engagement Lead at Parkinson's UK. Views are my own. Here for dogs, books, travel, cinema, comedy, theatre, sewing... the list goes on...
@sushiday.bsky.social
bookish. occasionally cookish. eternally tired mom of a toddler and a newborn. https://sushiday.substack.com/
@rossaverde.bsky.social
Politics (red/green) Convinced Remainer. Enjoy reading, particularly crime fiction and C19th literature. Love Italy and Yorkshire. Can get ranty about car culture. Have Parkinson’s and Vasculitic Neuropathy #facciamorete Born 310ppm
@renintheredwoods.bsky.social
Living my best life in the magical redwoods. Follow NorCal fire in summer, flood risk in winter. Love huskies & shibas, former foster dog parent. YOPD dx in 2011, DBS (deep brain stimulation) in 2017 🌩️👀 C2riuxWYgyFk
@whostolemydopamine.com
Energy of a tired snail returning home from a funeral. Contains Parkinson’s Read all about it… https://www.whostolemydopamine.com/
@aaronlwong.bsky.social
Motor control neuroscientist, Jefferson Moss Rehab Research Institute. Motor planning, learning, and cognitive-motor interactions. https://www.jefferson.edu/academics/colleges-schools-institutes/skmc/departments/rehabilitation/faculty/wong.html (he/him) 🏳️🌈
@drianweissman.bsky.social
Radiologist @DeptVetAffairs #AdvocatingForPatients #PublicHealth #Activist @RadiologyACR and @RSNA #Leadership http://www.linkedin.com/in/ianweissmando
@drpaulwicks.bsky.social
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
@mysticalmadness.bsky.social
🟧🏳️🌈☮️🏳️⚧️🟦 Lover of music, film, TV, photography, animals, food, comedy, nature, & politics. Warrior with POTS, hEDS, MCAS, AuDHD, Parkinsonism, gMG, Hemiplegic Migraines, Occipital Neuralgia, etc. #SoberSky
@tspaskus.bsky.social
Work in sports. Most enjoy talking about the beautiful game, music and family. Parkinson’s knocks us down but we get back up (with a lot of help). #YNWA
@sin-gra.bsky.social
Lawyer living with yopd since 2023 but symptomatic for at least 5 years prior. Trying to slow it with exercise cold plunging - anything that might !
@lynnley.bsky.social
Sickened and horrified by what’s happening in our country▪️Owned by four rescue cats who are trying to keep me sane 🐈⬛🐈⬛🐈⬛🐈⬛▪️ LGBTQIA+ Ally 🏳️🌈🏳️⚧️▪️#RaiderNation #RN4L 🏴☠️☠️▪️Sometimes funny▪️Old, liberal hag ▪️Living with Parkinson’s▪️SF Bay Area▪️Retired
@parkytracks.bsky.social
Writer, #Parkinsons 5.5 years, tackling with fresh air, #exercise, music, humour and fabulous support from family and friends www.parkytracks.com #BuryStEdmunds #NeuroHeroes #ParkinsonsExcellenceNetwork
@dkindc.bsky.social
PD Dx 2016 (selective in following people due to time constraints) "..the symptom of gastroparesis in a Parkinson patient is delayed onset of a dose of levodopa." https://www.neurologylive.com/view/effects-of-gi-dysmotility-with-parkinson-medicati
@cllremmaedwards.bsky.social
Councillor for Bishopston and Ashley Down and Green Group leader on Bristol City Council. Transport geek. Loves trams and dogs. She/her
@youreit.bsky.social
Neurologist with interest in Parkinson's disease and related movement disorders
@jamesgis.bsky.social
Geography/GIS educator FRCGS FRGS. Climate SLR. #Dal #SMU #QE2PlatMedal. Semple GeogEd Award. Apoplectic-adorable. Shot 67. Book addict (socialtechfuture) CBCIdeas. Sci-fi. Old movies. WHU COYI. Parkinsons sucks | michaeljfox.org | Mi’kma’ki (Nova Scotia)
@tilldembek.bsky.social
Clinical Neuroscientist focussed on Deep Brain Stmulation, currently in Boston.
@albertoespay.bsky.social
Neurology professor at the University of Cincinnati, an advocate of precision and rescue medicines for Parkinson's & Alzheimer's. Author #BrainFables.
@segroppa.bsky.social
Professor and Director of #Neurology, Saarland University, Germany www.uks.eu/neurologie
@rimonaweil.bsky.social
Neurologist and Neuroscientist trying to understand how dementia happens in Parkinson's
@alikwidge.bsky.social
Neural engineer, stealth mode neuro-entrepreneur, interventional psychiatrist, sometimes neuroscientist, dad. Making brains work better. https://www.tnelab.org
@jclauneuro.bsky.social
Neurosurgeon. Anatomy • Informatics • Modulation • Surgery. AIMS Lab.🧠🎯 Collaborative Medicine. Collaborative Science. Multisport.🏊🚴🏃 https://scholar.google.com/citations?user=69lqJ4AAAAAJ
@srheilbronner.bsky.social
nonjudgmental neuroanatomist https://sites.google.com/view/heilbronnerlab
@michaelokun.bsky.social
Author of the Parkinson’s Plan, Medical Advisor Parkinson Foundation, Author 14 books http://pdplan.org Distinguished Professor and Director of the Fixel, Associate Editor JAMA Neurology, co-founder @DBSThinkTank
@martijn-arns.bsky.social
Founder Brainclinics Foundation & Visiting Scholar Stanford Brain Stimulation Lab | Neuroscientist | Entrepreneur | Stratified Psychiatry | TMS | Depression | Heart-Brain Coupling | Psychedelics | ADHD | Sleep | Chronobiology | Marathon running | Guitar |
@karaannjohnson.bsky.social
NIH NINDS K99/R00 Postdoc @ UF | PhD in BME @ U of Utah Neuromodulation 🧠⚡️ + Neuroimaging + Neurophysiology + Psychiatry + Movement Disorders
@julianneumann.bsky.social
Associate Professor für invasive neurotechnology, interested in dopamine, brain signal decoding and connectomics. Reach me electronically via @charite.de but add julian.neumann before that. Charité - Universitätsmedizin Berlin Opinions my own.
@vertigologist.bsky.social
Neurologist and Neuroscientist studying movement, balance and perception through the lens of computer vision, connectomic neuroimaging, neuromodulation. @University Hospital Wuerzburg by way of @braincircuits.bsky.social
@vvvcologne.bsky.social
Head of the Dep. of Stereotactic and Functional Neurosurgery of the University Hospital Cologne, Germany. Passionate about DBS for movement, psychiatric and cognitive disorders.
@alfonsofasano.bsky.social
Professor of Neurology, University of Toronto, Mov Disord Centre, Toronto Western Hospital, Krembil Brain Institute Twitter exile
@carobellum.bsky.social
✨Cerebellum✨, Neuroimaging, Brain Stimulation, ML & NLP Postdoc at Western University 🇨🇦 Formerly at University of Cambridge 🇬🇧 PhD at University of Oxford 🇬🇧 https://www.caroline-nettekoven.com
@momfisch3.bsky.social
Living with #Parkinson’s/ Disciple of Jesus/ Wife/Mom/ Grandma/ Reforming Couch Potato/ Peds Dental Assistant/Dog lover/ Interested in helping others traverse medical journeys
@dempseytwo.bsky.social
Observer of things. Writer of words. Thinker of thoughts. These are them. For Justice, Democracy, voting rights, neurology, pugs. Truth is an objective standard of reality. Feel free to browse. I read the documents.
@phdmarie.bsky.social
Interested in all science, but particularly neuroscience and neurorehabilitation! Science communicator, consultant, & podcast host (People Behind the Science, Changing What's Possible: The Disability Innovation Podcast, The Anti-Doping Podcast).
@puckfarkinsons.bsky.social
Sort of blogging about life with young onset Parkinson's disease (amongst other stuff) www.puckfarkinsons.uk Latest fundraising: https://www.givewheel.com/fundraising/5606/100-mile-grand-slam-thats-4-x-100-miles/
@bonnieht.bsky.social
Writer. Retired teacher. Lay Buddhist Leader. XX. INFJ. LFL. Parkinson's, arthritis, osteoporosis. Wife, mother, Nana, step-mom, auntie. North Canada. Vegan. YouTuber. Ancestors rich & poor, conquered & conquerors. No DMs.
@shakinginmyboots.bsky.social
Wife, mom, Activist YOPD Ambassador Parkinson’s Foundation Board Member. Past life hospital Quality Director MSHA, CPHQ El Paso, TX 🏠 https://linktr.ee/elabibkiyarash
@allparkedout.bsky.social
I have a camera. I have a pen. Sometimes I use them. Dx YOPD / ADHD.
@kevq.bsky.social
Mainly visual stargazer/takes the occasional phone snaps. Has Parkinson's. Has written a few astronomy/stargazing books : https://tinyurl.com/y3jpm9wt
@seffyg.bsky.social
Counsellor | Morris Folk Choir | Living with Parkinson's | Neurodiverse | Crystal Palace FC | Fighting Fit FC | England Parkinson’s Walking Football | LGBTQ+ Ally | Black Lives Matter | He/him
@bbplover.bsky.social
PNW Birder, Artist. Married to author @floydskloot.bsky.social who has #Parkinsons, Stepmother to NYT bestselling writer Rebecca Skloot.
@floydskloot.bsky.social
Married to Beverly Hallberg. Author of 21 books-poetry, essays, memoirs, and fiction. Father of NYT bestselling author Rebecca Skloot. #Parkinsons diagnosis 2018. "Dancing in the Cosmos: New and Selected Poems" LSU Press Fall 2025 floydskloot.com
@grahamjackson.bsky.social
Living a full life with Parkinson's in Shropshire UK. Retired Physics and chemistry teacher. Love fell walking in the Lake District.
@dranniehickox.bsky.social
Clinical Psychologist, Neuropsychologist, PhD (Neurosciences). Therapist in private practice. I blog occasionally on Medium about mental illness, families, mental health shaming and stigma. My blogs: https://medium.com/@anniehickox