Parkinson’s Peeps starter pack
Find your peeps! A starter pack of people living with Parkinson’s, with some Parkinson's foundations/organizations and people doing Parkinson's research included as well. Please write me if you'd like to be added (or deleted).
Created by
@wecanthrivepd.bsky.social
@johnmiedema.bsky.social
Essays on mindfulness meditation, cognitive technology, and climate politics 🐌 🌐 https://johnmiedema.art/ 📥 https://johnmiedema.substack.com/ #meditation #neurofeedback #cdnpoli #climate #parkinsons #wakefieldqc
@kevinmcfarthing.bsky.social
Learning about Parkinson’s disease since 2012. Compiler of the Parkinson’s Hope List bit.ly/ParkinsonsHopeList . Scientist.
@audgepaudge.bsky.social
Artist, poet, wife, lover of animals, women's rights, animal rights, lgbtq+ rights
@caringmoment.bsky.social
I am the owner of Caring Moment Personal Services I am a PSW and Death Doula. I am looking for families in London Ontario that need help learn more at Www.Caringmoment.ca #ldnont #DeathDoula #PSW
@richp.bsky.social
✈️ Aviation Enthusiast | 📱 Tech Enthusiast | 🍲 Food Explorer | 🎬 Movie Buff (comedy & horror) | 💪 Navigating early Parkinson's Let’s connect over aviation, tech, great food, or a movie recommendation!
@parkinsondotorg.bsky.social
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. Parkinson.org
@worldpdcongress.bsky.social
Only global meeting to include ALL members of the Parkinson's community. #WPC2026 #parkinsons #neurology #neuroscience BLOG: http://worldpdcongress.org
@jamesgis.bsky.social
Geography/GIS educator FRCGS FRGS. Climate SLR. #Dal #SMU #QE2PlatMedal. Semple GeogEd Award. Apoplectic-adorable. Shot 67. Book addict (socialtechfuture) CBCIdeas. Sci-fi. Old movies. WHU COYI. Parkinsons sucks | michaeljfox.org | Mi’kma’ki (Nova Scotia)
@renatomariotti.bsky.social
Former federal prosecutor. Legal analyst for TV and print. Host, #ItsComplicated podcast. Contributor, Politico Magazine. Instagram: renato.mariotti Twitter: renato_mariotti
@tspaskus.bsky.social
Work in sports. Most enjoy talking about the beautiful game, music and family. Parkinson’s knocks us down but we get back up (with a lot of help). #YNWA
@momfisch3.bsky.social
Living with #Parkinson’s/ Disciple of Jesus/ Wife/Mom/ Grandma/ Reforming Couch Potato/ Peds Dental Assistant/Dog lover/ Interested in helping others traverse medical journeys
@allparkedout.bsky.social
I have a camera. I have a pen. Sometimes I use them. Dx YOPD / ADHD.
@kevq.bsky.social
Mainly visual stargazer/takes the occasional phone snaps. Has Parkinson's. Has written a few astronomy/stargazing books : https://tinyurl.com/y3jpm9wt
@floydskloot.bsky.social
Married to Beverly Hallberg. Author of 21 books-poetry, essays, memoirs, and fiction. Father of NYT bestselling author Rebecca Skloot. #Parkinsons diagnosis 2018. "Dancing in the Cosmos: New and Selected Poems" LSU Press Fall 2025 floydskloot.com
@grahamjackson.bsky.social
Living a full life with Parkinson's in Shropshire UK. Retired Physics and chemistry teacher. Love fell walking in the Lake District.
@nooyawkaff.bsky.social
Liberal Irish-Catholic NYC native, former firefighter now battling #Parkinsons Alaskan Malamute doggie dad, Staten Islander #YOPD #MLB #Baseball #Mets #LGM #BlueCrew #NeverTrump #Resist #FBR 🚫MAGAts
@groveayers.bsky.social
Amalgamist Stage 2 Chronic Volunteerism Living on my feet, 12 words at a time. Keep Moving.
@sarahsayshi.bsky.social
Retired teacher, l love my family and friends, poetry, art, writing, and Mother Nature.🌸 Supporter of peace, love, and caring for each other and the planet.💗 English/Dutch. ⚡️⚡️PD makes life a big challenge at times. Still grateful 🙏
@seanstillman.bsky.social
https://linktr.ee/seanstillman Author (SPCK) | Minister |Broadcaster | Here to connect with fellow PWP #Parkinsons, share news about Zac’s Place in Swansea & reflect on faith, love, justice, mercy, grace … Still learning how to cuss without cussing.
@ricketywarrior.bsky.social
60-year-old Parkinson's Warrior diagnosed in 2018. Parkinson's advocate and volunteer. Devoted husband of @HelenJane369 #parkinsons #parkinsonscommunity #pdcommunity
@elegantfowl.bsky.social
Writer, editor, historian, cricketer and Parkinsonian. YOPD, OED, PhD. Co-author of Spycraft. petelangman.com
@meigasfora.bsky.social
Formerly meigas_fora, once a cyborg 🤖 always a cyborg #DBS • #Translator (UAX & MIIS) and Parkinson’s activist, often at the same time: parkinsonic.com
@pdmama.bsky.social
From the mighty North East, living in Surrey. Mother of 2. Dx #yopd 2013 aged 29. DBS Jan 2024, removal June 2024. Re-implantation imminent...
@philsainter.bsky.social
Assistant Head of School for the School of Applied Management. The views posted here are my own and not my employers. Dog dad, #techgeek, #360photos, Dx #YOPD 2021, #academicsky
@lynnley.bsky.social
Sickened and horrified by what’s happening in our country▪️Owned by four rescue cats who are trying to keep me sane 🐈⬛🐈⬛🐈⬛🐈⬛▪️ LGBTQIA+ Ally 🏳️🌈🏳️⚧️▪️#RaiderNation #RN4L 🏴☠️☠️▪️Sometimes funny▪️Old, liberal hag ▪️Living with Parkinson’s▪️SF Bay Area▪️Retired
@saintita.bsky.social
Grandmother of three; sewist; former tax lawyer; Dance for Parkinson’s enthusiast.
@sin-gra.bsky.social
Lawyer living with yopd since 2023 but symptomatic for at least 5 years prior. Trying to slow it with exercise cold plunging - anything that might !
@doc95ut.bsky.social
Sociologist. Newbie guitarist, RVer, wannabe tech geek. Texan by birth, OK by raising, NJ by accident of employment. Childless Dog woman. Union.
@cullybreturns.bsky.social
Eastside Milwaukee-gardening-pets-nature-living with parkinsons-sheltering in place for the next 4 years.
@parkytracks.bsky.social
Writer, #Parkinsons 5.5 years, tackling with fresh air, #exercise, music, humour and fabulous support from family and friends www.parkytracks.com #BuryStEdmunds #NeuroHeroes #ParkinsonsExcellenceNetwork
@whostolemydopamine.com
Energy of a tired snail returning home from a funeral. Contains Parkinson’s Read all about it… https://www.whostolemydopamine.com/
@lochossian.bsky.social
Glaswegian living on Suffolk coast. Love nature, teaching Pilates, Sunrise
@puckfarkinsons.bsky.social
Sort of blogging about life with young onset Parkinson's disease (amongst other stuff) www.puckfarkinsons.uk Latest fundraising: https://www.givewheel.com/fundraising/5606/100-mile-grand-slam-thats-4-x-100-miles/
@dkindc.bsky.social
PD Dx 2016 (selective in following people due to time constraints) "..the symptom of gastroparesis in a Parkinson patient is delayed onset of a dose of levodopa." https://www.neurologylive.com/view/effects-of-gi-dysmotility-with-parkinson-medicati
@juliebeach.bsky.social
Living my life with my 🐴, dogs 🐾, cat 🐅, and wonderful wife🌈. Honored to have three children and four grandchildren. #parkinsons
@sarariggare.bsky.social
Swedish patient researcher living with #ParkinsonsDisease. #Spetspatient #QuantifiedSelf #PersonalScience #CitizenScience Uppsala University https://www.riggare.se https://www.spetspatienterna.se
@rebeccamil.bsky.social
🌈💙🐌 Team Snail founder, Clinical Psychologist, Living with #yopd Young Onset #Parkinsons Disease since age 27, dx 2013. #DBS in 2021 & 2024. MJFF Patient Council member, SMC, love lemons www.rebeccamillerphd.com
@jamesdickson.bsky.social
Lawyer turned boatbuilder and charity board member. Bristol 603 owner and occasional driver. DBS helps manage the YOPD….
@seffyg.bsky.social
Counsellor | Morris Folk Choir | Living with Parkinson's & ADHD | Crystal Palace FC | Fighting Fit FC | England PD Walking Football | LGBTQ+ Ally | Black Lives Matter | He/him
@rachelreidwrites.bsky.social
Author of the GAME CHANGERS series and TIME TO SHINE. New book: THE SHOTS YOU TAKE out March 4, 2025. Living that Early Onset Parkinson’s life in Nova Scotia. she/her
@bluebeetle.bsky.social
Former sysadmin, now just a geek living with Parkinson’s - Also creator and host of the Star Trek podcast There Are Four Hosts! https://shows.acast.com/therearefourhosts Mastodon: trekkies.social/@bluebeetle #startrek #starwars #comics 🖖❤️🏳️🌈🏳️⚧️🇱🇷💙💜🧠🤖
@maydaytrippe.bsky.social
NYT Bestsmelling Author & Illustrator. 🦋 (they/them) 🏳️⚧️ http://maydaytrippe.com http://linktr.ee/maydaytrippe
@standplaatskrk.pl
Your favorite poster's favorite poster. I curate memes so you don't have to. Parkinson's and Long Covid, always tired. paypal.me/StandplaatsKRK linktr.ee/standplaatskrk ¡No Pasaran! old enough to be your dad, he/him
@peterduncansa.bsky.social
Attorney General in the 1970’s South Australian Dunstan Labor Govt, Minister in the Hawke & Keating Labor Governments.
@alliesiggy.bsky.social
Young Onset Parkinson’s Patient & Advocate | Writer | Storyteller | Mildly Funny | Always Feisty | Tragically Hopeful
@bonnieht.bsky.social
Writer. Retired teacher. Lay Buddhist Leader. XX. INFJ. LFL. Parkinson's, arthritis, osteoporosis. Wife, mother, Nana, step-mom, auntie. North Canada. Vegan. YouTuber. Ancestors rich & poor, conquered & conquerors. No DMs.
@mustelidmaven.bsky.social
Wildlife ecology & public relations | sustainability | ☮️ ❤️⚖️ 🌼 🌎 | Parkinson's sucks | anti-fascist | She/her | Views mine.
@philjerky.bsky.social
Tall, beardy, stand-up comedian with Young-onset Parkinson's based in Brum. All views expressed are my own.
@iainliddle.com
Sports | Tech | Media | Green Bay Packers | Write about life with #YOPD / #Parkinsons 👇 Read and subscribe: https://newsletter.iainliddle.com/
@davidsangster.bsky.social
film maker. songwriting. piano. shed life. #parkinsons since 2011. #DBS 2019. Work at Parkinson's UK. Views my own.
@chardcore.bsky.social
Legendary Speedrunner ShesChardcore 40 / trans / bi / poly / gamer / queen of the magnets / metalhead / perpetually tired / Parkinsons sufferer
@tracyonthemta.bsky.social
BLONGING. Equality, infrastructure enthusiast. 🏳️🌈 LGBTQ 🏳️🌈 . Reader, writer, Democratic volunteer thanks to Pete Buttigieg, recovering introvert, dry wit & Parkinson's. Board member of Build The ERA. #TeamPete #VoteLikeABlackWoman.
@g-g.bsky.social
She/Her/I AM No Trivial Glimpse Particularly Fond of Stones. ❤️🔥⚔️🌀 Of Consequence Reclaim & Reintegrate Agency * Empathy * Empowerment * Parity * Spirituality *
@graememasson.bsky.social
Winning some and losing some v #Parkinsons. 49ers, Aberdeen FC, only listen to bands beginning with “R”…REM, Radiohead, Rush. I swear. A lot.
@ponderingpd.bsky.social
*Educator/Learner *Reader/Writer *Fan/Critic (Go Bills!) *Parent/Child *Wife/Partner *Healthy/Diseased (Dx:Parkinson's 2017) Blog: ponderingpd.ca
@parkinsonseurope.bsky.social
🌷The leading voice for #Parkinson's in Europe since 1992 🌷Supporting the 1.2m Europeans with #Parkinsons and their families 🌷Founder of #WorldParkinsonsDay
@wecanthrivepd.bsky.social
Dx’d #Parkinsons 2020. 🥊 Psychologist 🧠 Doing my best to thrive! 💯 💯 This account is focused on and follows Parkinson’s-related and medical/health content. Here to learn ✏️ and to give and receive support 🦋🦋🦋.