Anke Zoontjens
Veganist 🍃 ME (myalgische encefalomyelitis) LongCMV 🤷♀️ LongEBV 🤷♀️ 💙✊🏳️🌈 IBD (colitis ulcerosa) 💜✊🏳️🌈
@ditispots.bsky.social
POTS - de meest voorkomende ziekte waar je nog nooit van hebt gehoord. Volg ons om POTS op de kaart te zetten en meer erkenning te creëren Voor meer informatie zijn we te vinden op: www.ditispots.org
@lisawesterveld.bsky.social
Tweede Kamerlid voor GroenLinks-PvdA Woordvoerder Onderwijs, jeugdzorg, GGZ, inclusie, gehandicaptenbeleid, emancipatie, Én lid van de #Gitarencoalitie! 🎸🤘🏽
@marliesvanhemert.bsky.social
Arts (np) oprichter van Begrepen Klachten, voor patiënten met onvoldoende verklaarde ziektebeelden. Naast zorg nog veel andere interesses: actualiteit, politiek, sport, film/series en wat gezellige onzin tussendoor.
@nelehelena.bsky.social
I'll "tweet" here about the things I don't like if the other app goes down
@emec.bsky.social
Advocacy organization for ME/CFS patients and their carers in Europe
@chronicmyalgice.bsky.social
Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@jossedevoogd.bsky.social
Ruimte, politiek & samenleving. Verkiezingsgeografie/(on)gelijkheid/stedenbouw. Onderzoeker & publicist. ZZP. Atlas Afgehaakt NL. #mecvs #longcovid
@ludiekje.bsky.social
editor-in-chief ME Global Chronicle, co-founder & mod/adm ME Centraal
@iefsworld.bsky.social
| writer | editor | former multi-media artist/musician | | ME since childhood | | young widow due to medical neglect |
@bilgecetin.bsky.social
Living in the Netherlands. M.E. since 2019. Here to connect with the ME folks and researchers. english, dutch and turkish
@samsewams.bsky.social
Schools & other indoor spaces should be safe for everyone. Trying to avoid covid.
@bekhonl.bsky.social
Life on hold since 2021 #LongCovid #POTS #ME Psychologist for 25 years CBT, EMDR, ACT. Here to advocate for biomedical research & treatment #PAIS #IACC. Painfully aware of the harm that was done by my profession to PAIS patients.
@healingfromlc.bsky.social
@vmatthiesboon.bsky.social
Professor by Special Appointment - Head of Department of Ethics and Political Philosophy, Radboud Uni. Interests: Long Covid, Health Justice, Postviral Ethics, Trauma, Critical Theory,
@jetroz.bsky.social
Former art historian, curator, traveler and hiker turned Long Covid patient. Five years and counting 🛏️🧟♀️
@minofmeer.bsky.social
Myalgische Encefalomyelitis, POTS, 22/7 bedgebonden https://minofmeer.blog https://www.facebook.com/share/1CwgxEYgQNZSDevd/
@charlottenelck.bsky.social
Former worker justice department, now dealing with long COVID. Advocate longcovidnederland.com
@bentealinda.bsky.social
Had pech, werd ziek, leven weg (sinds 2009) | Bedgebonden door zeer ernstige ME, POTS, LongCovid, Lyme, CCI | Columniste | Insta: @bentealinda | Strooi met schrijfsels en vooral veel liefde🫶🏼↴
@jaredmeijer.bsky.social
Schrijver, Fotograaf & Literatuurwetenschapper. Onderzoekt ziektenarratieven. Maakt nu werk rondom PAIS (Long Covid, ME/CVS, QVS, Chronische Lyme).
@drdendunnen.bsky.social
Immunologist and Head of Department of CIMM at the Amsterdam UMC, Netherlands. My team studies the role of antibodies during infection and autoimmune diseases, with a particular focus on post-acute infection syndromes (PAIS), such as Long-COVID and ME/CFS.
@molbaas.bsky.social
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
@meresearchuk.bsky.social
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
@fredverdult.bsky.social
Passie voor Perry, fietsen in Alpen, zweten in sauna | Levensgeluk verknald door lyme | Directeur Lymefonds | Trots Ridder op voorspraak Nobel laureate
@ramsestemmerman.bsky.social
Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid.
@topazstudioscom.bsky.social
Grandma 🪷 Retired • 3 #chronic illnesses since 2020 #ESKD #longCOVID #immunocompromised #pericarditis #myocarditis 💙 Volunteer @renegaderesearch.bsky.social 🥩 #carnivore
@doshishop.bsky.social
We're that vegan friend who won't judge you. 👜 Luxury Vegan Leather Accessories 🌱 Recycled & Sustainable Materials https://doshi.shop/
@jcontraire.bsky.social
Interests: Civility | Democracy | Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow doesn't imply endorsement
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@veganftaofficial.bsky.social
The official Vegan for the Animals http://veganfta.com Bluesky feed. We're here to help stop the exploitation of all animals. 🌱🐖🐄🐓🐐🐁🐘🐇 linktr.ee/veganfta
@gewoonclaudy.bsky.social
Positief/partner/moeder van 4/2 katten/long covid/voorheen intern begeleider/haken/breien/borduren/aquarel
@anneliesgramsma.bsky.social
Schrijver & mafketel van beroep. En o ja: ook nog chronisch ziek. #mecvs Je vindt mij ook op Pixelfed!
@criquaer.bsky.social
Queer, humanist, pantheistic Quaker. Politically non-partisan. Disabled & chronically ill #pwME #MyalgicEncephalomyelitis #SevereME 🇪🇺🗣️ 🏴🇦🇹🇩🇪🇪🇸🇫🇷🇵🇹
@teresaboat.bsky.social
Environmentalist. Scientist. Love to travel. Born and bred in Sheffield. Migrated to bluer friendlier skies. #MECFS
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@mecfs.at
💛 Österreichische Ges. für #MECFS ⚡ NEWS zu #MECFS #pwME #myalgicE 👇 Informationen, Spenden, Kontakt http://linktr.ee/oeg_mecfs https://mecfs.at/
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@mewarrior1.bsky.social
Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia Observe small things, don't rush, love & forgive #loveyourself #loveothers ❤️ #chronicillnesswarrior1 on X & IG Opinions are my own 🤓
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@dgmecfs.bsky.social
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein. mecfs.de
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.