A Darkened Room
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
@lilnic000.bsky.social
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@omfcharitymugs.bsky.social
Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵 https://omfcharitymugs.teemill.com
@ludiekje.bsky.social
editor-in-chief ME Global Chronicle, co-founder & mod/adm ME Centraal
@ethyricalartist.bsky.social
Losing my housing pls see links! Disabled artist 🇵🇷🏳️🌈 Create from🛏️when able due to #MyalgicE #POTS #Endo etc🫠 Cats, art, plants, knit & crochet Late diagnosed #Autistic PNW 🇱🇸 #DisabilityJustice Abolitionist Anti-imperialist https://linktr.ee/EthyricalArtist
@madelinenerd.bsky.social
IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline #myalgicE #disability Fb/inst/X @madelinenerdfighter LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/ WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
@topazstudioscom.bsky.social
Seeking casual remote work 🪷 Grandmother • 3 chronic illnesses in 2020 (longCOVID, ESKD, immunocompromised) 💙 Volunteer @renegaderesearch.bsky.social 🥩 animal-based keto
@aiyawylde.bsky.social
passionate + fragmentary girl writer / queer / sensual / poly / ghost / decolonizing 🍉 leo sun•cap moon+rising severe ME • Lyme+co • CW mental health
@allisondhaynes.bsky.social
Advocate for Myalgic Encephalomyelitis per ME-ICC and Ramsay/Dowsett/Hyde et al. Severe M.E. since 1989. Supporter of meadvocacy.org and nightingale.ca
@chloedecanson.bsky.social
Formerly assistant professor of philosophy • now bedbound with severe myalgic encephalomyelitis (Long COVID) • philosophy of science, social & formal epistemology
@wolfiness.bsky.social
Very severe myalgic encephalomyelitis and swearing about it. Snooker love and Isabel Oakeshott loathing when energy allows.
@dragonflydreams-za.bsky.social
Diagnosed with #MyalgicEncephalomyelitis in 1990. Bed bound since 2017. Design personalized gifts & ME awareness t-shirts, etc. online. www.zazzle.com/store/dragonfliesanddreams. Typing is hard so not very active on social media. Johannesburg, South Africa
@shelmish.bsky.social
#PWME since 2020. Currently severe - FUNCAP score 1.3 Queer, any pronouns 🏳️🌈🏳️⚧️ Mainly here for pics of dahlias, dogs with underbites and macro bugs 😍 MA in Forensic Linguistics🧑🎓 Love my garden and my elderly pupper
@fighting-4-me.bsky.social
Advocate for disabled people, campaigning for change for those with MCAS, cPOTS with mutli-systemic Dysautomnia, EDS, SevereME, Haemophilia, Gastroparisis and the list goes on. Trying to make change within the health care system!
@sophs3.bsky.social
17 | ME since ‘20 Advocacy 💙 You are not alone 🫂 #severeME #millionsmissing Insta - m.e_and_sophs_
@katiamek.bsky.social
26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic https://linktr.ee/katiamek
@emb82.bsky.social
#pwME #severeME #hEDS #LongCovid #Dysautonomia #POTS #MCAS #SFN #TeamScience #TeamVorsicht #ExNurse
@lolahachi.bsky.social
Love reading about wildlife, science and social justice. Chronically ill and disabled SevereME LongCovid ME/cfs
@criquaer.bsky.social
Queer, humanist, pantheistic Quaker. Politically non-partisan. Disabled & chronically ill #pwME #MyalgicEncephalomyelitis #SevereME 🇪🇺🗣️ 🏴🇦🇹🇩🇪🇪🇸🇫🇷🇵🇹
@corandmecfs.bsky.social
I used to be a person, now I’m a ghost, lingering on in the world of the living. ME/CFS since 2011, severe since 2021.
@moriende.bsky.social
24, they/them - hEDS, very severe ME/CFS, MCAS, POTS, all manner of brain things. send me cats and birds. not in the same box, though. this account is COVID-safe. I like rock music and poetry. 🇮🇪 if you don't believe in mutual aid, don't follow me.
@heinkekekke.bsky.social
Bedbound with LC/ME 🛌 Currently still more active on instagram @inmylongcovidera
@padpadpadpad.bsky.social
Microbial ecologist/carer. NERC IRF and MRF Emerging Leaders Fellow at the University of Exeter in Penryn. I like warming up bacteria, open & reproducible science, making focaccia, and exercise.
@iovercomeme.bsky.social
☀️☺️ SARAH 😷🥱😴 (she/her) Severe ME due to LC (2023) ME/CFS (1999 dx 2008) UC/IBD (2002) ADHD (Birth😝)
@rose-mary-x.bsky.social
She/her | UK | Covid conscious | Disabled | ME/CFS | Long Covid | Vaccine Injured | Climate aware | Free Palestine | Socialist | Human rights | Sisters, not cis-ters
@carlywelton.bsky.social
She/her. Mostly talking about life housebound by chronic illness (when I have enough energy to). #pwME
@littlebosleeps.bsky.social
Previously an artist and lover of the sea, forests and being in nature. Now bedbound with Severe ME (2021). Still masking.
@meactionnc.bsky.social
Support and advocacy group for people with ME/CFS and Long Covid, their allies, caregivers, and practitioners.
@queerandloathing.bsky.social
Severe M.E./LC having creature in a room somewhere in the Netherlands They/them Ready to Return to the Woods. And to my art and writing.
@dovsz.bsky.social
He/him. Spoonie. Why couldn’t we be bonobos. Protect trans kids. Trans rights are human rights. Cohost pempod (pempod.com) podcast about life with ME and long covid.
@me-foreldrene.bsky.social
ME-foreldrene / The M.E. Parents of Norway Vi representerer barn og unge med myalgisk encefalomyelitt (ME) og deres pårørende. Vi har et oppdatert, biomedisinsk syn på ME. Alle som ønsker å støtte arbeidet vårt kan bli medlemmer. www.MEforeldrene.no
@fryvil.bsky.social
Stolt ME-aktivist og styreleder i ME-foreldrene. 🦋💙🦋 Mest om ME, litt om mangt. 🤗 www.me-foreldrene.no Proud M.E. activist and board leader of The ME Parents of Norway. 🦋💙🦋 A lot on M.E., and a bit on a lot. 🤗
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@tis-me-elle.bsky.social
Was ocean and climate modelling phd | Now bedbound advocacy | masking is community care | #SevereME
@burgermind.bsky.social
ME since 2021 #PwME #mecfs #longcovid #fibro #pots #severeME I live on a lovely little island ( #OrcasIsland #PNW ) pfp: my black cat sleeping with forelegs stretched out
@robbielane87.bsky.social
Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD.. Trying to get by one day at a time 🖤
@jessie-siobhan.bsky.social
Hi! I'm Jessie. Full time Covid Longhauler surviving in Meanjin/Brisbane, Australia with my fluffy little demon cat, Harry.
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@mastcellmadness.bsky.social
@mehroe.bsky.social
Caregiver & Organizer. Here for updates: COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities. If I follow > unfollow > follow, it’s to see follow recommendations.
@manderella.bsky.social
Cat, dog & human mum. Shambling through mid-life, caring for daughter with ME/CFS.
@saffronandsky.bsky.social
disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
@helfand.bsky.social
UChicago AB '17 in Mathematics. Don't ask me anything about math. 🙃 Severe #MECFS, always the party. Blog: https://www.helfcare.com/