@drpaulwicks.bsky.social
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
@ammaralchalabi.bsky.social
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://ukmndri.org #MND #ALS Specialist. Deputy Editor, Brain
@alstdi.bsky.social
The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@aartisharma.bsky.social
Neuroscientist 🧠 | ALS researcher 🧪👩🏽🔬 | human | biotech | she/her There is no 🌍 without ART
@emmascotter.bsky.social
Associate Professor at the Centre for Brain Research, University of Auckland, NZ. #ALS #MND #FTD. Lover of molecules, cells, life.
@ewout.bsky.social
Biomarkers and mRNA translation | Long-read sequencing | ASOs and gene therapy | SMA & MND research lab at UMC Utrecht | Previously University of Edinburgh | Also cycling, cats, father of 2
@westwingslab.bsky.social
Drosophilist, DIY enthusiast, group leader, senior fellow & Dementia Research Leader Fellow based in SITraN, Sheffield, UK. Working on #FTD, #ALS and #MND Find us here: sites.google.com/view/the-west-lab-sheffield
@hollylynchez.bsky.social
Academic lawyer/bioethicist studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), and clinical research ethics and regulation, with a splash of psychedelics.
@jeanc9orf72.bsky.social
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
@themyoclonicjerk.bsky.social
Dad, Neurologist, lap swim junkie, fountain pen enthusiast, note-taker. Owner of too many notebooks.
@bvahsen.bsky.social
Postdoc in Talbot Lab at Oxford Motor Neuron Disease Centre @mndoxford.bsky.social and Junior Research Fellow at Kellogg College Oxford, using iPSC models to research microglia-motor neuron interactions in ALS/MND.
@lizziedellar.bsky.social
Postdoc @mndoxford.bsky.social @ndcnoxford.bsky.social working on protein biomarkers of ALS/MND and extracellular vesicles.
@suzanakm.bsky.social
Palliative care physician, tender of those with ALS/MDS, mother, dog lover, positive deviant. Third-culture kid | #palliative #hapc #ALS #meded #creative | English • Spanish • Brazilian Portuguese • German |
@mndaus-research.bsky.social
Motor Neurone Disease Australia is the peak body for the MND community in Australia. We have built & sustained Australian MND research for 40 yrs and partner with other Australian and international MND/ALS organisations.
@mndoxford.bsky.social
Oxford MND/ALS Research Groups at @ndcnoxford.bsky.social and @kavlioxford.bsky.social Researching MND/ALS through early disease modelling and biomarker discovery Website: https://www.ndcn.ox.ac.uk/research/oxford-motor-neuron-disease-centre
@j9kirby.bsky.social
Researcher & Lecturer based in SITraN, University of Sheffield. Tweeting on MND/ALS, Neuroscience, Advanced Therapies and Education
@lucyfarrimond.bsky.social
Neurology registrar/resident 🩺👩⚕️ and NIHR Academic Clinical Lecturer 🧠 in NDCN, University of Oxford UK, working on ALS/MND in the Talbot research group 🧫🔬 @MNDOxford.bsky.social
@andreaalsstrategy.bsky.social
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
@boeynaemssteven.bsky.social
Assistant Professor at Baylor College of Medicine and Texas Children's Hospital. Houston, TX Science: disorder, condensates, repeats, cell stress, neurodegeneration, drug discovery, synbio Non-science: art, fashion, cooking www.boeynaemslab.org
@wesstans.bsky.social
Clinical Laboratorian | Ph.D. in Neuroscience & Molecular Genetics @IUMedSchool 🧠 🧬 | Laboratory Genetics and Genomics Fellow (ABMGG) @CUAnschutz
@timjatkinson.bsky.social
National Campaigns Manager, Motor Neurone Disease Association @mndassoc.bsky.social Interested in #activism, #volunteering, #charities, #ukpolitics all things geek, community organising, and health and social care.
@ukmndri.bsky.social
A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
@dibbouk.bsky.social
PhD, MND/SMA Research programme manager @My Name'5 Doddie Foundation All views my own #ALS #MND #SMA #RareDisease 📍 Edinburgh
@bsw5020.bsky.social
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. www.iamals.org/als-awareness-month #ALSisHere #SoAreWe
@vpresearchals.bsky.social
VP Research & Strategic Partnerships @ ALS Canada. Science brain, advocate heart.
@rpavaneijk.bsky.social
ALS/MND Researcher @ UMCU | Clinical Trial Methodology, Outcomes & Statistics | Part-time cyclist 🚴♂️
@marubio.bsky.social
Neurologist specialized in ALS and neuromuscular disorders. D&D and videogame enthusiast...among other things.
@speedoftrust27.bsky.social
Speech and Language Therapist, Co-Director UCL Centre for Digital Language Inclusion (CDLI), UCL GDI Hub Research Fellow, MND Association. RCSLT advisor for voice banking, Giving Voice award 2020 & MND ALS Alliance AHP award 2022. UCL Deans List 2019
@carolinepurslow.bsky.social
Head of Health, Challenge Works (Nesta) - designing global innovation competitions, delivering the Longitude Prize #ALS #MND #Dementia #AMR.
@billdowne92.bsky.social
"It's very difficult to be a moral hero and not succumb to propaganda. If you're simply Influenced by someone, you'll never say anything interesting or new." -Eugene Ionesco
@sunnivacollins.bsky.social
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: [email protected]