@bridgingvoice.bsky.social
Non-profit supporting ALS clients with communication technology. Learn more at www.bridgingvoice.org.
@lesturnerals.bsky.social
The leader in comprehensive #ALS care in Chicagoland
@lorenzoshouse.bsky.social
We empower young people and their families affected by younger-onset dementia through our virtual support, ensuring we walk united - never alone
@americanbrainco.bsky.social
Nonprofit organization comprised of the leading professional neurological, psychological, & psychiatric associations & patient organizations in the US. Seeking to advance the understanding of the functions of the brain through public education & advocacy.
@mndeducation.bsky.social
The Education & Information team for the MND Association @mndassoc.bsky.social Providing trustworthy and accredited information resources about #MND and #Kennedy's disease.
@alsunitedrm.bsky.social
Our mission is to unite and empower the ALS community through a collaborative approach of providing comprehensive care and support to individuals and families affected by ALS, advancing national and state advocacy, and fostering bold research
@alsunitedct.bsky.social
ALS United Connecticut provides comprehensive support to improve the quality of life for people with ALS and their families while advocating for increased support and advancing innovative research for new treatments and an end to ALS.
@lyleostrow.bsky.social
Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.
@alsofgny.bsky.social
We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org
@andreaalsstrategy.bsky.social
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
@lisalegacy4als.bsky.social
Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honorinf Lisa’s legacy by advocating for ALS.
@alstdi.bsky.social
The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net
@leithlab.bsky.social
LEITH Lab strives for compassionate care and humanizing research in rare diseases among historically underrepresented communities
@alsmidatlantic.bsky.social
Supporting ALS families in Pennsylvania, New Jersey, and Delaware. Learn more at www.alsmidatlantic.org
@bsw5020.bsky.social
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. www.iamals.org/als-awareness-month #ALSisHere #SoAreWe
@bsky.app
official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app