BlueZebra
M.E. since 1976. In the golden rolling hills of California.
Looking at screens sets my eyeballs on fire so there will be pauses.
@penthewriter.bsky.social
Novelist (Bella Books & Nine Star Press) and writer. This is my happy place. Find photos of cats & Cornwall, good news, funny things, snippets & updates of writing, and always ALT TEXT! #writersky No alt text, no follow. http://penelopefriday.com
@rachelgraves.bsky.social
Haver of all the diseases. Mask wearer. Political obsessive, JD, (former-ish) newspaper reporter. Lover of Tacoma & the PNW. In a relationship. She/her.
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@coresinai.bsky.social
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
@jesshoneybadger.bsky.social
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes. jesshoneybadger.substack.com
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@karriehiggins.bsky.social
Writer, Artist, Ink-Maker, Psychogeographer. Two Best American Essays notables; Schiff Award; NEA/Iowa Arts Council grantee. http://www.karriehiggins.com
@jendupuis.bsky.social
Disabled librarian turned writer • 📚 • Mom to rescue dog Clara & cat lover • #pwme #migraine 😷 #amquerying GenX women’s fiction jendupuis.com | Detroit, MI | she/her
@mariefollayttar.bsky.social
@MaineAllCare #UniversalHealthcareNow Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist Disabled Director of Mainers for Accountable Leadership(leave) Rare Chronic Cancer survivor Long Covid, Me/CFS Autistic Wabanaki
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@colocharachel.bsky.social
the truest thing I can say tonight is that being disabled out of the workforce was one of the best things that ever happened to me. • “I’m just an asshole who tries hard” -Kelly Hayes • Dakota land; Minnesota but no longer Minneapolis • she/her
@sleepymidwife.bsky.social
midwife on a sleepy sabbatical; listening for those as yet unheard; mama to many; DJ; lover of history, botany, physiology, music, justice, & kindness; BLM ~living with ME/CFS 🫘
@leeram.bsky.social
Animal lover with a slightly unhealthy interest in U.S. Politics and distain for their new Con-mander-in-thief. Dabble in many art forms when able. #HSP #ME/CFS, #goldendoodlemama
@joeblow604.bsky.social
Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative Former Electro-Mechanical Prototyper Inclusive #pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness #art #artist #painting #oilpainting #digitalart #photography
@anjalifp.bsky.social
2-time Paralympian & Medalist. Disabled Researcher. Disability Activist.
@lindaoh.bsky.social
Interested in history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish. Actually Autistic, ADHD, ME sufferer. Cat and dog person. @shurlookit in the bad place
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@carriemcginn.bsky.social
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec #CovidConscious #StillMasking #MyalgicEncephalomyelitis #pwME #EMSFC #CovidLongue #CovidLong #pwLC
@andrewgiffordphoto.bsky.social
Hello, welcome :) This Invisible Illness: my first long form photography project, about ME/CFS a complex & challenging health condition - like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/him/oi.
@jeannemcardle.bsky.social
@skibbityflee.bsky.social
Health and mental health advocate Schizoaffective BP1, BPD, CPTSD Leukemia, Fibromyalgia, CFS
@slh82.bsky.social
Lover of animals and wildlife/nature 🐶🌷 TV dramas, films, photography, art, news/current affairs Living with severe M.E #pwme #mecfs #fibromyalgia
@wordsbychloe.bsky.social
freelance books, culture & ♿ journo/editor/copy | author 🖋️ romantasy w/ messy, disabled girls | rep: Maria Whelan @ Inkwell | words: Independent, R29, Grammys, Fast Company, Bookseller etc | AuDHD | https://linktr.ee/WordsbyChloe | chloe@wordsbychloe.com
@mxworldwide.bsky.social
They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸 In "Australia" on Wurundjeri Country
@celticghirl1888.bsky.social
Family & Friends .. Celtic FC .. Scottish Independence Supporter .. Walking .. Music .. Cats .. Darts .. Festivals .. Theme Parks .. Laughter .. Mental Health Awareness .. Chronic Pain Warrior 💚
@gmuzz.bsky.social
Looking for a quieter life away from X. 20+ years in #sustainability and still fighting the good fight. Also championing / struggling with #mentalhealth and #MECFS since 2017. #PwME. Might even mention #LFC occasionally. #YNWA Feel free to connect. 😁
@resiliencebeast.bsky.social
Ecology-botany nerd, #Herbalism, sustainable food & #Organic, agricultural policy, farming, leftist, #Disability and chronic illness advocate, trans non-binary queer, writer and artist. #Agroecology #HumanRights 🍉♿️
@birdbone.bsky.social
life on pause. mostly here for #LongCovid #MECFS community. currently very severe. other interests may include climate, music, sports, queer stuff (she/her)
@stewartoons.com
Visually impaired indie animator and all-around cool guy. Creator of Vamps' Scamps. ♿ POTS/MALS/Visual Snow/Eye Stroke Awareness. 🏳🌈 Previous Work: Freelance Animator @ Adult Swim | Clean-Up on HarmonQuest. Current: Writer @ TAPAS. COMMISSIONS: Closed
@platouche.com
Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
@abbyneedsanap.bsky.social
Housebound neurodivergent artist with Myalgic Encephalomyelitis #MECFS, POTS, MCAS, FM. Enjoyer of cozy fluffy things, tea, books, and the way the light filters through the forest. Passionate about animal welfare + nutrition, the paranormal, & weather.
@radicalchick24.bsky.social
Disabled former special collections archival processor and historian. ME/CFS and POTS since '04, Long COVID since '23, Chronic Migraine, Connective Tissue Disorder, CSF leak, etc. 😷 Mask up! COVID isn't over! ♿️ She/Her There will be cats 🐈⬛️
@americanabroad.bsky.social
Wear a 1943 Liberty coin necklace b/c in 1943 WWII shifted against fascism. Politics poster. 🌏🏳️🌈🇺🇸🇬🇧AuDHD ME/CFS 🏳️⚧️🇺🇦🇵🇸 DMs only if we've an established relationship.
@hippymum.bsky.social
Happily married. Fighting to get through one day at a time. 42 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
@mikrosenhofer.bsky.social
Formerly Mik Everett. Author of MEMOIRS OF A HOMELESS BOOKSTORE OWNER. Believer in hope & holobionts. My W.I.P. is called either LAND OF PLENTY or BANANALAND depending on my mood. https://linktr.ee/mikrosenhofer
@coastalthinking.bsky.social
Sea-creature, shore-dweller, gardener. #LongCovid #MECFS #POTS. Engaged Buddhism. i used to think read write teach (literatures of the South/Africa/Australasia/Indian Ocean & climate, colonialism, environment, littorals, the sea, water, women’s stories)
@sannibenke.bsky.social
Originally a creator of colorful things but all i have left is my sword of words written in the dark. Former psychologist. Mom x 2. Life on hold by very severe #mecfs. Here to join the #pwme community. Sharing #bookrewievs and #liMEricks.
@technodivergent.bsky.social
Information Security Professional | 🏳️⚧️🏳️🌈 Nonbinary Lesbian | #ActuallyAutistic #ADHD | she/they
@beckisliving.bsky.social
22 yo w/ ME, PoTS, MCAS & ASD wheelchair user covid cautious previously severe, now moderate-severe she/he, genderfluid lesbian http://lifeasbeck.wordpress.com
@michaelnobbs.bsky.social
Artist and tea drinker living on a hillside in Wales. Learning to live a gentle creative life and encouraging others to do the same. Diagnosed with #MECFS in 1997. www.patreon.com/gogently https://linktr.ee/michaelnobbs ✍️🧶
@snazzypants01.bsky.social
🦋Resister 🌎Amateur Wordsmith | 🐢Introverted Soul w/ Extroverted Moments | 💜Animals 🧡Music 💚Nature 🩵Photography | 🦚Optimistic Survivor | 🦥 Weirdo, but in a good way | 🏳️🌈#LGBTQ+ | 🦔 #Booster | 🦩Married | 🦒Quirky | 🐳 🚫Crypto 🚫Porn 🚫DMs
@acap42.bsky.social
Surviving on spite & Eurovision hype She/her 💖💜💙 @acap42 on Twitter @chibiusa40@mas.to 😷🛡️🥄🦓
@litsadremousis.bsky.social
ALTITUDE SICKNESS (Future Tense Books). Upcoming: FIRE IN THE HOLE: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. Esquire, NY Mag, PW, The Blvr, NPR, NYT, P&W, The Rumpus, McSwy's, et al. Cohost of PEM Pod. #pwME in #Seattle. https://litsadremousis.com
@themeeplife.bsky.social
#pwME since 2004, when I was 22. Homebound, mostly bed bound. Currently battling breast cancer. #postviral #MECFS / #POTS / probably #MCAS #actuallyautistic I make websites. G+ person.