Dr. Carla, neuropsychiater, post-COVID researcher
I am both a doctor and a patient (other chronic illness than post-COVID). So I know both sides of the bed. Very educational.
@pipkazan.bsky.social
Sometime novelist: Philip Kazan. It’s better to burn out than it is to rust, and I wish somebody had told me that when I chose the rust option.
@kris007tine.bsky.social
Humour, laughs, and sarcasm is my oxygen. Severe ME, one of the #MillionsMissing🩰 #ENDmecfs2025🧬
@me-cfs.bsky.social
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. My ME/CFS News Aggregator: @me-cfs.mastodon.social.ap.brid.gy Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
@medidier.bsky.social
Severe ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
@petitfeu.bsky.social
Still suffering from #MECFS. Life still on hold. she/her 💙 = ME/CFS solidarity #noAfD
@vanadiumzest.bsky.social
we’re still in a pandemic🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋always punch nazis
@tanrangar.bsky.social
Samfunnsengasjert og kritisk tenkende. Setter menneskeverd, rettigheter, kunnskap, mangfold og verdibevissthet høyt.Tidl sykepl, politi/høgsklektor. Har et 💚 for LEAP, #narkosky, 🏳️⚧️🏳️🌈, ME/LC, MDG og kampen for en inkluderende bærekraftig klode.
@roeliek.bsky.social
(Ex)Motorrijder/ leest (bijna)alles/ af en toe in winterslaap/ zwarte filterkoffie/ toerist in eigen land/ mooie luchten/ geniet in 🇸🇪
@moogoonoog.bsky.social
X-Emigrant seit 08/23, Hashtagerfinder, gibt ungefragt seinen Senf dazu, ❤️=thanks for sharing, 🔄=spread the word threema.id/3DN7CKYJ
@ixabil.bsky.social
LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..) Love animals, science, nature, history. Once an active girl; swimming and hiking. Have 2 lady-cats. linktr.ee/ixabil
@kirsties.bsky.social
UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise) as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added https://writingandme.com/
@hoogle.bsky.social
Lost Adding my verified YouTube account to hopefully avoid being accused of being a bot https://youtube.com/@heidibouman?si=IyFtwnLIQbnW2pti Nothing interesting on there though, you have been warned 🤪
@blomechristine.bsky.social
COVID nerd | Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
@ninjazz636.bsky.social
#LongCovid-disabled first waver. Loves gardening and decorating. Cheese addict. Science. Climate. 🏳️🌈 ally. Pardon my French! 💚 Green means hope. #AirborneAware 😷 #FuckTrump #SlavaUkraini 🇺🇦
@f-v-w.bsky.social
@gimbalhat.bsky.social
Introverted, but will obsessively discuss psychology, anthropology, nature, arts, and neo-humanism. Serial-event impaired: can’t tell stories or jokes.
@cbammermd.bsky.social
Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS und assoziierten Multisystemerkrankungen | * Privat gerne alles mit Musik * * Skeets in DE/EN * * TwiX: @CBammerMD *
@corandmecfs.bsky.social
I used to be a person, now I’m a ghost, lingering on in the world of the living. ME/CFS since 2011, severe since 2021.
@davidepike.bsky.social
Teaching. Geography. Urban Planning & Design. Geosciences. Biological Sciences. Climate. Anti-fascism. Anti-racism. Anti-ignorance. Music. Art. History. Basset Hounds. Bicycles. Lichen. Cryptobiotic soil crusts. Pandemics. Books. Reading. Learning.
@bekhonl.bsky.social
Life on hold since 2021 #LongCovid #POTS #ME Psychologist for 25 years CBT, EMDR, ACT. Here to advocate for biomedical research & treatment #PAIS #IACC. Painfully aware of the harm that was done by my profession to PAIS patients.
@torres-amy.bsky.social
Long Covid pediatric advocate/parent/caregiver. #CovidisAirborne #LongCovidKids #pwME Hate has no home here. A life long reader, a sometimes baker and a new gardener. Hospitality is in my blood, kindness too. Views are my own.
@kristinwrites.bsky.social
Poet, Wife, Mom, LongCovid/MECFS Sufferer. Looking to connect and learning to advocate. Cofounder of #CripCoop. EIC, Poetry @epistemiclit.Bsky.social, @whirligiglit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
@naomidharvey.bsky.social
Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.
@julieduzyoga.bsky.social
Spouse, mom, Nana, educator, #WeAreAllDemocratsNow, #KHive, #Decentarian, and Oxford Comma. Minnesota. Clean the air! Union Proud! ,La
@johnamuir.bsky.social
Retired exercise scientist, welfare and public health worker. Primary focus - rehabilitation & sport science/medicine.
@healmenow.bsky.social
#MEICC • abandon "CFS"! "Long COVID + PEM" doesnt exist, that's ME! Posts in 🇺🇸🇩🇪 Instagram: @healmecfs
@eleanoralbaugh.bsky.social
Crafter by necessity to stay occupied whilst dealing with health issues. MCAS PoTS Hypothyroidism (need T3 for life) ME. Please entertain me and lets connect. In a previous life xcountry skier, hen and beekeeper, keen gardener and HCW. Alt text required.
@hen01.bsky.social
AuDHD PDA, dyslexic dyspraxic. Mother to three brilliant multiply ND kids. HSD, ME/CFS and POTS into the mix. Chair of Trustees of a specialist school, ex teacher and currently studying a post grad in Special and Inclusive Ed Autism.
@marafrommars.bsky.social
Chronically Ill, Queer, Artist, Socialist 🇨🇦 Just trying to get by. She/they
@clau-prudhomme.bsky.social
#MECFS #POTS #Fibro patient/atteinte d’EM/POTS/Fibro- since 2008 🇨🇦 New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS 😢😭 Former veterinarian Membre comité scientifique AQEM- ICanCME patient partner- post infectious illness interest
@liesllr.bsky.social
LET LOVE RULE! Talking about my daily struggles and thoughts ‘living’ with Long Covid, PEM & POTS in Amsterdam.
@loopert.bsky.social
Kleine graad in taal , logica en AI, maar nu herstellend van #qkoorts Reïntegrerend en klussend, thuis en in de moestuin, low profile natuur fotografie, samenwonend met T, mijn partner met #longcovid, biljarten is mijn passie en training
@ace9801.bsky.social
ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
@kathrynharrisonau.bsky.social
Long covid since July 2020 interrupting IT career with all the side hustles.
@atanas-g-atanasov.bsky.social
Innovations in Molecular Medicine and Public Health. PI of LBI-DHPS. Prof of IGAB-PAS. Editor-in-Chief #CRBIOTECH and #ExplorDHT. Leader of #DHPSP and #INPST 🔗Web: https://digitalpatientsafety.com/atanas-g-atanasov/
@tootswoot.bsky.social
Ukraine, politics, news, chronic illness, animals, silly stuff Bonk Appreciator🎗 #toonietuesday #FiverFriday #BringTheLight #trenchcandles #NAFO #fellas #florks #UkraineWillWin Happy fella back when 🇺🇦 Wins Donate Boost Repost #RussiaIsATerroristState
@tegeacorymb.bsky.social
Social pattern: Turrell, Graham, Bateson | Metacognitive model: Minoan, Amazigh, Etruscan, Irish urbanism | Chalcolithic Tegean | Maxwell EMIR in DC | SFU Ed.D. | Inst. de géo. | SMR:CEA | sponsor of Clemson CAAC & HACE | design, internal audit, musicology
@scrapplebottom.bsky.social
Sizzle sizzle. The meaning of life is to live with joy for this world. Sizzle.
@andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
@jessie-siobhan.bsky.social
Hi! I'm Jessie. Full time Covid Longhauler surviving in Meanjin/Brisbane, Australia with my fluffy little demon cat, Harry.
@largeboulder.bsky.social
A large boulder the size of a small boulder 🏳️🌈🏳️⚧️ally #WearARespirator #ChronicIllness It’s always a good day for tacos 🌮
@tmsmithrosario.bsky.social
Boricua mom of @gabbs414.bsky.social 🇵🇷 Disabled, cat-loving, Afro-Latina, retired lawyer, SA survivor, queer 🏳️🌈 On journey from inner city to Ivy League to prosecution to bodily dysfunction to Exodus to agoraphobia & onward. Was “MamaBoricua” on Twitter.
@greenwalker92.bsky.social
Sassy engineer advocating for moving our asses to save the climate