Didier
Severe ME after covid infection Feb'22. Young dad. Bedbound. 🛌 #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
@astridmeyerknutsen.bsky.social
Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
@meforeningen.bsky.social
Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://www.facebook.com/MEforeningen/
@pricklywave.bsky.social
@epihmgu.bsky.social
We consist on almost 30 labs from 17 Helmholtz Munich institutes, committed all to performing ground-breaking research in the field of epigenetics.
@discovimmunol.bsky.social
🔍 New discoveries in cellular & molecular #immunology New #OpenAccess journal from @britsocimm
@mecentraal.bsky.social
Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden. https://mecentraal.wordpress.com https://www.facebook.com/MECentraal mecentraal@gmail.com
@carlarus.bsky.social
I am both a doctor and a patient (other chronic illness than post-COVID). So I know both sides of the bed. Very educational.
@rebellionista.bsky.social
Single mum. Expert napper. Pet wrangler. Severe ME/CFS. My son & I are AuDHD. Former gifted child. Reformed TV producer. Live for horror movies. Life is a roller coaster.
@weiszguy.bsky.social
Lib Dem Disability Association committee/Long Covid and Psychedelic Research advocate/Drake Emergent disabled artist 2024 as Post Viral (https://www.instagram.com/p0st.viral)
@ankijoy.bsky.social
ME/CFS Warrior not by choice but destiny (Profilbild: sick not tired in Schönschrift, große Fahne: moderate ME, darunter ein Haus, vor dem ein Rollstuhl steht, während drumherum alles weggebrochen ist)
@kikicurious.bsky.social
Formerly peripatetic, currently Haligonian. Formerly fierce, still working to suffer fools kindly. Formerly a pharmaceutical market researcher, hope to learn new cool stuff. ME/CFS since 2017.
@drdendunnen.bsky.social
Immunologist and Head of Department of CIMM at the Amsterdam UMC, Netherlands. My team studies the role of antibodies during infection and autoimmune diseases, with a particular focus on post-acute infection syndromes (PAIS), such as Long-COVID and ME/CFS.
@amymooney.bsky.social
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions. http://www.OT4ME.com
@spinalcsfleak.org
We are a United States 501(c)3 nonprofit organization that helps raise awareness, educate, and support research on intracranial hypotension and spinal cerebrospinal fluid (CSF) leaks. spinalcsfleak.org
@drbevans.bsky.social
Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
@buechnerronja.bsky.social
psychologist | phd student @UniLeipzig | psychotherapist in training | my research is on psychologization & stigma of Long Covid
@gvnett.bsky.social
ME/CFS Endurer. Still missing and still trying to send gentle day wishes to all the never well warriors.
@batsyhead.bsky.social
I’m fine. @batsyhead on instagram. Link for store: https://www.batsyhead.store I only permit the sale of my artwork on my own website and do not authorize its sale on any other platform.
@itreallydoes.com
Disabled USMC Vet | Widow | Emotional Support Human for a Staffie named Zoey Living with DDD & #MS | Joomla Dev | Grave Digger | Sarcastic AF (blame the MS) MS Sucks: A snarky journal to track your MS bullshit & snarky MS apparel mssucks.co/links
@h2obio.bsky.social
Passionate swimmer housebound due to LongCovid. Interested in biology, biochemistry, systems theory, exercise science and LongCovid/MECFS remission reports.
@maddyobart.bsky.social
Artist & Photographer. You’ll find an eclectic mix of art including nature, cricket, netball, portraiture, chronic illness & disability. Other account: @maddyoby.bsky.social
@jcontraire.bsky.social
Interests: Civility | Democracy | Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow doesn't imply endorsement
@piengreta.bsky.social
a small chronically ill creature (moderate-severe ME/CFS) from finland, known as piengreta.
@heinkekekke.bsky.social
Bedbound with LC/ME 🛌 Currently still more active on instagram @inmylongcovidera
@biologistbunk.bsky.social
Battling Long COVID for 5 years. Had 2 recoveries early on, still trying for a 3rd! Ran a LC clinical trial exploring two degrees of Intermittent Fasting, will be able to share the results soon! I love science, nature and helping others...
@mecfsresearch.bsky.social
Für mehr ME/CFS Forschung! We promote & finance #MECFS research! 🍋 https://LemonChallengeMECFS.org ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
@peterhotezmdphd.bsky.social
Texas Medical Center (TMC) Pediatrics Professor-Vaccine Scientist-Author; Member, Philosophical Society of Texas "the oldest learned society in Texas established in 1837," TAMEST, National Academy of Medicine, American Academy of Arts and Sciences
@somethingchronic.bsky.social
95% bedbound by ME/CFS, POTS, hEDS, MCAS and more. Chronically hopeful for better days. Determined to rise up against injustice for a world where pwME and LC are treated with the same understanding, kindness and belief as any other serious physical illness
@keristars.bsky.social
I love museums and history. ★ bed-tethered disabled! AuDHD, POTS, MCAS, and ME/CFS. ★🧑🦽★ I miss traveling and being in nature and sewing. location: Jacksonville, Florida (agender ace ey/em/eir)
@sarahcjr.bsky.social
Belfast born, living in the Netherlands. Former English teacher (Brit. & Brit Internat) in Long COVID/ME recovery. Interests: LC advocacy, clean air classrooms, accessible learning & literature as a lens to view the world.
@svillapol.bsky.social
🧠 NeuroScientist👩🏻🔬 Galega en Houston🚀 Assistant Professor 🔬Lab: villapol.hmailabs.org https://sonia-villapol.com/ #TweetsAreMyOwn🦠 #ConSciencia
@iaccsky-updates.bsky.social
Custom feeds for the IACC community (IACCs=infection-associated chronic conditions, such as Long Covid and ME/CFS). Personal account is viralpersistence.bsky.social
@diamondqc.bsky.social
♿ australian living on unceded wadarni noongar land (southwest WA)・she/her・very sweary! #SevereME #auDHD #OCD #cPTSD #CSAsurvivor #AccessibilityMatters #Disability #genXgoth #TechGeek #Linguistics #Straya #AusPol #AusMusic #IndieMusic #AltMusic
@tarpits.org
One of the most famous fossil localities, recognized for having the largest and most diverse assemblage of extinct Ice Age plants and animals in the world. Open 9:30am - 5pm daily, closed the first Tuesday of every month. 🌎 https://tarpits.org/earthmonth
@bharchives.bsky.social
Explore nearly 900 years of history through the archives and objects cared for by Barts Health NHS Trust Archives. Part of Barts Health NHS Trust. Find out more at www.bartshealth.nhs.uk/barts-health-archives
@cartoonart.bsky.social
Founded in 1984, CAM is a San Francisco-based, educational arts nonprofit that has something for everyone—from comic strips, comic books, and anime to political cartoons, graphic novels, and underground comix. Come visit our galleries: cartoonart.org
@lakesuperior.bsky.social
I am the greatest lake of all time. G.L.O.A.T. (she/her) #BigBeautifulWater
@ldnwildlifetrust.bsky.social
Championing nature recovery in London, repairing our lost connection to the natural world since 1981. #LondonWildlifeTrust https://www.wildlondon.org.uk/
@nhm-london.bsky.social
We’re the museum looking deeper into the Earth’s past to shape a new future where both people and planet thrive. Protecting the planet, it’s in our nature. 🌍
@bdcmuseum.bsky.social
Welcome and explore with us some of the treasures from the UK's leading moving image museum, based at the University of Exeter. Free to visit and open 10am to 5pm every day. www.bdcmuseum.org.uk #FilmSky #🎥 #cinemahistory
@wellcomecollection.bsky.social
A free museum and library in London and online. Explore the past, present and future of health with us. wellcomecollection.org
@themerl.bsky.social
We explore the history of the English countryside and its people. Posting hog on main. Chaotic Good. Website ➡️ https://merl.reading.ac.uk/ Merch ➡️ https://merl-shop.co.uk/ Podcast ➡️ https://merl.reading.ac.uk/explore/absolute-units/
@olliecornes.bsky.social
Living in London with a Hungarian, two Russian Blue cats, #MEcfs and a healthy obsession with the art of Keith Haring. 🇬🇧🇪🇺🏳️🌈🇺🇦♥️
@nessau.bsky.social
Vegetation ecologist & research laboratory manager - on pause (MECFS / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats, sunsets. AUS