ME/CFS research
Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
@paulgarnerwoof.bsky.social
Professor emeritus (public health, infectious diseases, evidence synthesis)
@pricklywave.bsky.social
@theogpooch.bsky.social
✝️♒️ • 🏳️🌈🇧🇷🇬🇧 • 22 • med student • reformed twitter debater
@redchickn.bsky.social
Writer/editor and ad hoc political activist proudly from Oakland, CA, raising awareness about chronic illness and disability. Fight the Trump-Musk dismantling of the fed govt— now is not the time for defeatism.
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@momoperry.bsky.social
Writer, editor, health journalist, theater artist. Contributing editor at Experience Life magazine, co-founder of Logosphere Storysmiths.
@janeogden.bsky.social
Professor in Health Psychology (38 yrs!) who is keen to get out of the ivory tower! Still interested in critical thinking and mind body interactions but love good telly, coffee and chatting about politics. And I really love writing for the i news!
@awgaffney.bsky.social
Pulmonary & ICU doctor, assistant professor at Harvard Medical School, past president PNHP, author "To Heal Humankind", dabbler, tweets my own. Webpage: https://dradamgaffney.com/ Google scholar: https://scholar.google.com/citations?user=KChlDTsAAAAJ&hl
@cmnotesandviations.bsky.social
Community Notes and Violations research team.
@tatianamcirvin.com
Ahead of the curve IT Professional. 🇧🇷🇺🇸 NB, Poly Spouse, Neurodivergent, Chronic Pain Sufferer, Avid Crafter, Board Gamer, Rock Aficionadx, Vaxxed, BLM, ACAB, Socialist & Anti-Predatory Capitalism, Pro-choice, Gender Affirming, Weight Neutral, Body Positive
@fighting-4-me.bsky.social
Advocate for disabled people, campaigning for change for those with MCAS, cPOTS with mutli-systemic Dysautomnia, EDS, SevereME, Haemophilia, Gastroparisis and the list goes on. Trying to make change within the health care system!
@derickwaderehab.bsky.social
Doctor, rehabilitation expert, researcher and teacher. Interested in systems, organisation, and questioning evidence, especially behind orthodox beliefs. Oxford, UK. Website: https://rehabilitationmatters.com
@davidlewisperez.bsky.social
Clinician-Scientist, Neurologist-Psychiatrist at Harvard Medical School | Chief, Mass General Brigham Division of Behavioral Neurology | Director, FND Unit & Research Group | Views My Own https://connects.catalyst.harvard.edu/Profiles/display/Person/8655
@decodemestudy.bsky.social
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 https://www.decodeme.org.uk/
@mattburkemd.bsky.social
Cognitive Neurologist specializing in Neuropsychiatry at Sunnybrook Health Sciences Centre and the University of Toronto
@sorrywrongplanet.bsky.social
Very late diagnosed #ActuallyAutistic, still trying to make sense of it.
@defineimaginemj.bsky.social
Author of Fantasy. Gamer, cosplayer & tall ship sailor. Autistic Bi-alterous demi-nonbinary asexual. Thrives on sarcasm & sass. FB http://bit.ly/2gDj5pE Enquiry DMs only. They/them + she/her. NO MARKETING PLOYS.
@carriwithfnd.bsky.social
FND is hell. Diagnosed with Functional Neurological Disorder in March 2022. I do my best to advocate and educate when I have the energy. Main: @carrifjell.bsky.social
@taraf.bsky.social
Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer Tampa, FL 😷🌈☮️📊📚🫂🩼♿️🗣️ #Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD
@jonstoneneuro.bsky.social
Professor of Neurology, University of Edinburgh. FND Research. Creator of http://neurosymptoms.org. President Elect of http://fndsociety.org
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@matthewhotopf.bsky.social
Mental health researcher and Executive Dean of Institute of Psychiatry Psychology and Neuroscience, King's College London. Views my own
@flippinpain.bsky.social
Award-winning public health movement. We share the (often surprising) science behind persistent pain to the public, patients & professionals. Knowledge = power!
@lounicholls.bsky.social
Homeowner, Brighton Marathon finisher 2017 & 2018, Auntie & friend. Living with CFS/ME 🦋🏳️🌈
@drphilparker.bsky.social
Health and happiness researcher. Brain/mind/body innovator. Lightning Process. PhD in psychology of health. Long term side hustle -Recording artist and producer. Loves dogs and Americana.
@alancarson15.bsky.social
Neuropsychiatrist Royal Infirmary of Edinburgh. Professor University of Edinburgh.
@jeshyr.bsky.social
Geek-Creative-Writer-Disabled-Bedridden-Queer-Agender-Internet Citizen. Severe ME/CFS since 1994. They/them
@feeblebeable.bsky.social
@leoistdp.bsky.social
Psychology for Functional Symptoms - Devon Partnership NHS Trust 🏥 Intensive Short-term Dynamic Psychotherapy - Teacher & Supervisor Researcher and Functional Symptoms Specialist. #FBPE www.ISTDPHealth.com