Open Medicine Foundation (OMF)
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@mhparent.bsky.social
Mariée, 4 enfants, 2 chats, 1 corgi, TDAH et atteinte d'encéphalomyélite myalgique. Married with 4 kids, 2 cats, 1 corgi, ADHD and myalgic encephalomyelitis. Gatineau, Québec, Canada
@peony386.bsky.social
früher auf Berggipfeln und am Meeresgrund nun in den eigenen 4 Wänden #LC #MECFS für saubere Luft und Schutz für vulnerable Maskenträgerinnen
@billa.bsky.social
#ME/CFS G93.3 ist eine eigenständige Krankheit. Hauptmerkmal dieser Krankheit ist PEM (Post-Exertional Malaise) - Zustandsverschlechterung nach Belastung.
@aqem.bsky.social
L’AQEM vise l'avancement de la connaissance et la reconnaissance de l' #EMSFC et au mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc #EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
@twoshaws.bsky.social
#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷
@mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
@cherylbenson.bsky.social
#SevereME 1991, #LongCovid Need medical for 3 strokes & 3 dystonic #ABI from malpractice & collusion Abused in 5 Toronto hospitals #Aphasia #VideoJourno @M_B_News Progressive #Film #PWD ♿️ 🇨🇦🏳️🌈 #Egalitarian 🇵🇸✌🏻#AntiZionist
@jessicaklowe.bsky.social
Author, historian, law prof @UVA Law, on leave; OH/KY native, part-owner of a KY holler. Web: https://www.law.virginia.edu/faculty/profile/jkl4h/1517188 Book: https://a.co/d/fRe9crB
@oevie.bsky.social
fan van: strand & zee 🌊, soul & jazz 🎧, 🍝🍷 ooit: fanatiek 🥾,🚵🏻♂️🚴🏻,⛵️,📷 ,🌃,📖 nu: energetisch ♿️
@jskovner.bsky.social
Amsterdam-based Software Engineer. I explore the neurodivergent currents of curiosity—films, music, books, my health issues (dysautonomia, BAV & TAA, upcoming open-heart surgery, suspected MCAS), food, sports, and culture as a whole.
@cathyedwards24.bsky.social
@careerconsult.bsky.social
Holistic Career Counselor, Trainer & Author of Nourish Your Career. Specialize in social good people & orgs. Animal Advocate. She/her. https://careerconsultmd.com/
@asavageallison.bsky.social
Mom (2- and 4-legged varieties), Organic Gardener, Birder, Creative; Rare Diseases & Chronic Pain Patient & Advocate. Kindness always matters. Ally/safe space for LGBTQ+, POC & Disableds. She/Her. F'd up cranial nerves, keep your C19 away from me! ☮️🌈😷
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@thecombatwombats.bsky.social
Simple wombats navigating a complicated world. They/them. Puns, opinions, memes. 30+. Anti-harassment. Minors, be gone. Icon by shebalso @ flickr. Banner by Suzy Hazelwood @ pexels. https://throne.com/combatwombats 🍉 https://arab.org/click-to-help/palesti
@purrvert.bsky.social
LGBTQ+🏳️🌈 Neurodivergent🧠Disability🦽Catgirl extrodinaire Crafty, sleepy, autistic , {retired Goth} weirdo ✨Dog Owning Bitch✨💅🏻 Some good things that still exist: 🌯, 🐶🐱, 💐, 🫧, 🧶 things that don’t exist on my page: nazis, ableists, -Phobes (all kinds), racism
@indoor-cat-art.bsky.social
😷 COVID is not over - wear a mask ⛓️💥 Free Congo, Sudan, Haiti, Palestine, Haiti, & all colonized ppl
@n0oneuknow.bsky.social
@moerakijo.bsky.social
#LongCovid #WearAMask😷 books, libraries, histories, dogs she/her Aotearoa New Zealand
@shilohstarpaws.is.eepy.now
25, disabled(fibro, POTS), autistic. he/cloud/star 🏳️⚧️ 18+ please Gamer, furry, crafter, and aspiring game dev Sleep Token's #1 fan 💍 @compositeadeptus.bsky.social
@concussed1.bsky.social
Dad. Terrible painter, former food microbiology professor (UBC) now living with ME incurred from an mTBI.
@waysidecat.bsky.social
#MaskUp SARS-CoV-2 is a BSL-3 ☢️ pathogen LC since March 2020 #covidisntover #VaxUp #CleanTheAir Renewable energy now
@faefindingherway.bsky.social
AuDHD 🇵🇸🔻🇱🇧 𓍊𓋼𓍊 Long Covid. Anarchosyndicalist. Anti-imperialist. Anti-consumerist. Degrowther. ACAB. Land Back. Be Here Now ♒︎ ♏︎ ♒︎
@doodletales14.bsky.social
🍉🍉🍉🏳️⚧️🏳️🌈 #HousingIsAHumanRight #BeKind #WeNotMe #CleanAir fanatic. Believer in Science. #MaskUp #BirdFluIsAirborne #SARSCoV2isAirborne🦠 #COVID19 #BringBackMasks #IAQ #MasksinHealthcare
@mckatt.bsky.social
Long Covid ME/CFS/PEM - Severe - Living in a dystopian world is strange. Humans are crazy. Slava Ukraini.
@amiemmm.bsky.social
Arriving from Twitter (previously @amiemariamarie) Disabled Playwright | The Play About Theresa May (2021) | Scrounge (2022) | https://www.waterstones.com/author/amie-m-marie/4998522
@bettysutor.bsky.social
MA Egyptian Archaeology from University College London, metal & Goth fan, living in Munich, Germany. Made in 1980. Married.
@alitwy.bsky.social
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Editor-in-Chief Evidence Based Nursing. Retired Professor of Children’s Nursing. #FBLC
@madknittrsteaparty.bsky.social
Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️🌈🏳️⚧️🇺🇦
@parkerc13.bsky.social
🌿 Lines/colors/shapes are my medicine 🎨 Tiny Neurographic/Zentangle/Grid/Abstract art 🌀 Navigating Long COVID, POTS & HO one drawing at a time 🫏 Unwavering 🏳️🌈 Democrat in AZ 🐶🐶🐶🐶 mom
@valwen.bsky.social
♿️ Naval Architect & Marine Engineer. I’ll never shut up if I think something is unfair or deeply wrong. I’m annoying, I know! #pwME #MECFS #EDS #Endometriosis #Dysautonomia & long #NEISVoid etc. #COVIDisAirborne! Twitter immigrant. Also on Mastodon.
@jjasondjfmam.bsky.social
Fan of calendars, clean air, and kindness. #StillMasking with N95s helps keep my #PlusLife negative, which helps keep my attitude positive! Avatar alt-text: Image of a 24-hour clock Banner alt-text: Image of a calendar, starting in June
@h2obio.bsky.social
Passionate swimmer housebound due to LongCovid. Interested in biology, biochemistry, systems theory, exercise science and LongCovid/MECFS remission reports.