C.H. Romatowski
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.8), thanks for your patience.
Starter Packs
Created by C.H. Romatowski (4)
Of interest
A variety of folks to make your timeline worth spending time with.
Disability, chronic illness & health justice
Individuals and orgs involved in disability, chronic illness and health justice work (broadly construed!)
EDS & co
Ehlers Danlos Syndrome and related topics.
ME, Long Covid & co
Accounts and feeds related to ME/CFS, Long Covid and related conditions and topics. (FAQ: if you are hoping to be listed on a starter pack, unfortunately the format has a cap of 150 accounts and this pack has hit that, so I recommend creating another pack to cover more of the community!)
@lifeaccrdingliz.bsky.social
#chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
@adamcancryn.bsky.social
White House reporter at POLITICO. I write about the politics, policy and people shaping Trump’s health and domestic agenda. Tell me what you’re hearing and seeing—my Signal username is cancryn.01
@knibbs.bsky.social
Live in Chicago, write for Wired, got a great attitude Email me tips: kate_knibbs@wired.com / Signal: kateknibbs.09
@maydaymovementusa.bsky.social
Impeach. Convict. Remove. Our CONTINUOUS PROTEST at the Capitol begins TODAY!. We stay until 47 is 86ed. This is history in the making! Site is across from Sculpture Garden. 800 Madison Dr. NW https://linktr.ee/maydayprotest
@nihildev.bsky.social
Banking bro turned developer (Next.js/SQL/TailwindCSS). Humanist, more or less.
@rahallclifford.bsky.social
Global health, medical anthropology, co-design for health equity. @Emory U, working in Guatemala and beyond. Loves sightings of the absurd and compassion.
@popneurosci.bsky.social
Population Neuroscientist | Alzheimer's Disease and Related Dementias | Assistant Professor | OPINIONS ARE MY OWN
@icesheetmike.bsky.social
Dr in glaciology who spends my time mapping coastal topography at a Cooperative Institute. Organizer for disability rights in science, which mostly involves yelling at agencies. Science is the easier part of my work. #T1D
@cdotmcnaughton.bsky.social
Emerg doc & researcher, UofToronto -HTN; HF; health literacy & numeracy; emergency care Views my own Born @CO2 340ppm #DavosSafe for all @NashvegasEM on the bird app "First do no harm" & "Hospes ultimus es" (roughly: “Be the dead-end host”) She/her
@precisionmedicine.bsky.social
Associate Director of Bioinformatics and Software at Illumina. Unleashing the power of the genome through SW and AI. #PrecisionMedicine #Cancer #MECFS #RareDisease
@senategabe.bsky.social
Did stuff in the US Senate for a bunch of years. Fight the fucking fascists. Impeach, Convict, Handcuff. Citizensimpeachment.com Signal: @SenateGabe.33
@lizszabo.bsky.social
She/her. Award-winning independent health journalist covering medical news for The New York Times, NBC News, Scientific American, AARP and others. Loves dogs and cats.
@ellbail.bsky.social
Welcome to the Recumbent Renaissance. Freedom’s just another word for nothing left to lose. Amor fati. ME/CFS, longcovid, Dercum’s. Remission Biome R50. She/her.
@highcountryrose.bsky.social
Flowers are amazing. Pretty sure our humanity is the thing that saves us, not tech. These things are related
@johanvawe.bsky.social
Immunologist curious about viruses, cancer, evolution and all things human Likes all #systems thinking and still working out all the #omics 🤓 #immunosky #medsky #idsky
@shonmcbride.bsky.social
Molecular Microbiologist studying C diff and friends @ Emory University
@drjorgemoreno.bsky.social
Assistant Professor of Medicine at Yale| Obesity Specialist in Primary Care | #Firstgen🇲🇽MD post on obesity care y salud Latinx |Husband. Dad. Mets fan. Opinions mine. #medsky
@realtoddlab.bsky.social
Neurologist and scientist at University of Michigan. We study short tandem repeats in human disease: Fragile X, FXTAS, CANVAS, Ataxia, ALS, FTD, neurogenetics.
@citizensimpeachment.com
We started as Operation Anti-King, and are now the Citizens' Impeachment. 19 reps have joined us; tracker at citizensimpeachment.com. Read why it matters here https://www.msnbc.com/msnbc/amp/rcna200920
@benjaminabarsky.bsky.social
Associate Prof. at UC Law SF, studying criminal health law, behavioral health policy, and disability human rights.
@britshmit.bsky.social
Epidemiologist 📊 • Associate Prof at Harvard Med School & School of Public Health • Founding Director of School's LGBTQ Health Center of Excellence • Views=own• Mom of 3 kiddos • she/her + 🏳️🌈
@emilymullin.bsky.social
Science writer @wired.com, covering health and biotech. Contact me: emily_mullin@wired.com or emullin.06 on Signal
@visibleappchat.bsky.social
To talk about pacing, energy envelope, mecfs, long covid and more using the Visible app, with or without the heart rate arm band
@toddc.bsky.social
Professor Yale University Physicist/neuroscientist - Flexible brain organization Brain-Behavior modeling, functional connectivity, low-field MRI Travel/cycling/snowboarding/hockey
@nightschool-dc.bsky.social
“We have to turn thinkers into fighters and fighters into thinkers." - General Baker. politicaleducation@mdcdsa.org.
@mldavies.bsky.social
Victorian lady invalid, lying in bed surrounded by books. Long covid, ME, other ailments. Bylines in The Sick Times, Electric Lit, Jezebel, etc; cohost of Overinvested pod in absentia; picking away at a novel. she/her https://linktr.ee/morganleighdavies
@cleanairla.bsky.social
https://linktr.ee/cleanairla Mutual aid org providing free masks and filters to people affected by LA fires + educating how to mitigate toxic air and viruses 😷
@happyenduser.bsky.social
Neurodivergent AF ( #AuDHD ) Artist and Illustrator. Cat Dad. Stuck in coastal Florida. Halp. Climate change is my special interest. Democratic Socialist 🌹 Illegitimi non carborundum. linktr.ee/leafmorestudios
@dreanyc123.bsky.social
Black. Lesbian. Immigrant. Cofounder @interruptcrim.bsky.social Author #InvisibleNoMoreBook & #PracticingNewWorlds Co-author #NoMorePolice & Queer (In)Justice bit.ly/NoMorePolice bit.ly/PracticingNewWorlds InvisibleNoMoreBook.com andreajritchie.com
@rmcarpiano.medsky.social
Professor, University of California, Riverside School of Public Policy. Faculty Director, Science2Policy (S2P). Public health scientist & sociologist keen on population health & community issues. Sometimes in the news, often for troubling topics. 🇺🇸 🇨🇦
@mllambrinou.bsky.social
I write on immigration & education, Latinas in STEM. MD Community Schools enthusiast. History buff. Fight fascism. Opinions only my own & do not reflect any institution or agency I may be associated with.
@niaidnews.bsky.social
Leading with science. Engagement does not equal endorsement.
@brainiigroup.bsky.social
The Brain Infection & Inflammation Group are a pioneering research team working at the intersection between neuroscience and infection.
@naomiaklein.bsky.social
New here. Doppelganger. This Changes Everything. The Shock Doctrine. No Logo. On Fire. UBC Professor of Climate Justice. 🔗 naomiklein.org 📬 news.naomiklein.org/newsletter
@cabruce.bsky.social
Previously a psychotherapist. Bedridden #ME 32years Daughter severe ME, eldest son MS. I like art, nature, books, people, music, poetry and podcasts!
@jchodera.bsky.social
Achira | http://achira.ai Research laboratory | http://choderalab.org Antiviral drug discovery for pandemics | http://asapdiscovery.org OpenADMET | http://openadmet.org Employer-mandated disclaimer: http://choderalab.org/disclaimer Pronouns: he/him
@jmichaeldentonphd.bsky.social
Scholar of college students living with Long COVID, HIV, & other chronic illnesses. Also study gay and trans college students. Teach about higher education & student affairs.
@stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
@drruth.bsky.social
Also known as @CatchTheBaby on Twitter OBGYN physician, innovator, baker Weekly newsletter at https://drruth.substack.com/ #Medsky #LongCOVID
@lumiahealth.bsky.social
What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@danieljdrucker.bsky.social
A clinician scientist at LTRI @sinaihealth studying Glucagon, GIP, GLP-1, GLP-2, diabetes, obesity, metabolism and the gut endocrine system
@jesserbnwtz.bsky.social
Comms & campaigns @homeless_law. Jewish justice seeker. Howard MSW, guitarist, veggie lover. Tweets, mine. Alum: @miriamskitchen @weareavodah @ajws. He/him
@iaccsky-updates.bsky.social
Custom feeds for the IACC community (IACCs=infection-associated chronic conditions, such as Long Covid and ME/CFS). Personal account is viralpersistence.bsky.social
@rainbowyeticorn.bsky.social
She/her/hers. Lover of humans, animals, beauty, nature, art, ingenuity, life. Black Lives Matter; accessibility & inclusion for all; trans rights are human rights; abortion is healthcare; disabled lives are worthy; housing is a basic right.