Disability, chronic illness & health justice
Individuals and orgs involved in disability, chronic illness and health justice work (broadly construed!)
Created by
@chromatowski.bsky.social
@drsubini.bsky.social
DisCrit-Critical Educator-Black Asian Feminist exploring intersections, searching for Justice-Yogini-Tweets=mine. She/Her Author-Pedagogy of Pathologization 🍉
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
@longcovidkids.bsky.social
UK-based international charity supporting & advocating for children & young people with #LongCovid & related conditions. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness
@eustace.justshootme.ca
average Canadian 🇨🇦 he | him read some shit about alt text https://eustace.link download some IOS shortcuts https://routinehub.co/user/eustace
@criticaldesignlab.bsky.social
Disabled artists, designers, and researchers using disability cultural methods to do critical design. https://criticaldesignlab.com/
@drsamischalk.bsky.social
Academic. Pleasure activist. Author of Bodyminds Reimagined & Black Disability Politics. Both open access from Duke University Press. She/her. https://linktr.ee/samischalk
@amberchrist.bsky.social
Managing Director, Health Advocacy @justiceinaging.org Posting on all things Medicare and Medicaid for older adults. Sprinkles of humor, music, & VW Buses. She/her Kansas Citian
@justiceinaging.org
Since 1972, we've used the power of the law to fight senior poverty nationwide. Explore our resources: https://to.justiceinaging.org/resources
@miamingus.bsky.social
transformative justice. disability justice. pandemics. abolition. (she/her) https://leavingevidence.wordpress.com https://www.soiltjp.org
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
@safeairschoolsuk.bsky.social
Committed to improving air quality inside schools for inclusive, equitable, sustainable education. Based in Hampshire, UK 🔗 SafeAirSchools.org 🔗 https://linktr.ee/SafeAirSchools_UK
@aahealthdisability.bsky.social
https://aahd.us/linktree/ AAHD is dedicated to ensuring health equity for children and adults with disabilities through policy, research, education and dissemination at the federal, state and community level.
@covidsafecampus.bsky.social
Disabled academics and advocates with public health and policy expertise, challenging ableism and fighting for COVID safety in higher ed and beyond. Supporting students and organizing since January 2022! https://linktr.ee/covidsafecampus
@cleanairclub.bsky.social
Providing free air purifiers to Chicago artists, organizers, and touring musicians. linktr.ee/cleanairclub
@corsiaq.bsky.social
Dean - College of Engineering at the University of California, Davis. Indoor air quality researcher. Dog lover. Music lover. Acoustic guitarist. Faith in younger generations. Posts are my own.
@cleanaircreworg.bsky.social
#CleanAirCrew #COVIDisAirborne Airborne pandemic tips & tools #COVIDco2 #CorsiRosenthalBox #ClearTheAir
@openmedf.bsky.social
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
@janetdafoe.bsky.social
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 36 years, severe ME 30 years. @IrishMECFSAssoc trustee 28 years 26 publications in peer-reviewed journals Social media: https://me-pedia.org/wiki/Tom_Kindlon
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@ndrnadvocates.bsky.social
We are the national membership association for the congressionally mandated Protection & Advocacy Systems and Client Assistance Programs. #DisabilityRightsNews
@johnsnowproject.bsky.social
Reliable, honest information on COVID-19 from public health, clinical, and research experts. http://johnsnowproject.org
@juliametraux.bsky.social
Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49 Author page: https://www.motherjones.com/author/julia-metraux/ Free monthly newsletter: bit.ly/3Ee9lRO
@amandalhu.bsky.social
Neighbour and pal to children, adults and nature. Pro-treating each other like we live in a society. I communicate about stuff for work and for fun (here, where my opinions are my own). She/her. 📍Mohkinstsis, Treaty 7 (Calgary, Canada)
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.bsky.social Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@nicolejorwic.bsky.social
Connector of People, Issues and Coalitions. Chief of Advocacy and Campaigns @CaringAcrossGen Advocating and organizing for care. Community Living. Disability, Medicaid, Medicare. Opinions are my own. #CareCantWait
@queerspice.bsky.social
Policy at Caring Across Generations | Cat mom, C-SPAN fan, disabled, fat, survivor, human asana | alive because of the ACA | lover of abortion, Medicaid, care, and screaming | views my own| she/her
@careinaction.bsky.social
Fighting for dignity and fairness for the millions of domestic workers in the United States. #CareCantWait Paid for in part by Care in Action PAC, 45 Broadway, NY, NY 10006. Not authorized by any candidate or candidate's committee.
@jennstowe.bsky.social
Executive Director @domesticworkers.bsky.social | Senior Advisor @careinaction.bsky.social | Black feminist | mom ♥️ | #HUBison
@aijenpoo.bsky.social
❤️ National Domestic Workers Alliance, Caring Across Generations, Care in Action, Supermajority. Opinions entirely my own. #CareCantWait
@caringacross.org
A movement of caregivers and care recipients working to better care systems so everyone can live, work, age, and parent with dignity. #CareCantWait
@autisticadvocacy.org
The Autistic Self Advocacy Network (ASAN) is a 501(c)(3) nonprofit organization run by and for autistic people. https://autisticadvocacy.org/
@jamilaheadley.bsky.social
Executive Director @beaherofund | Island-born 🇧🇧 | Posts about change worth fighting for | Views are mine | she/her
@deathpanel.bsky.social
podcast feat. Beatrice Adler-Bolton, Artie Vierkant, Phil Rocco & Jules Gill-Peterson. Stay alive another week patreon.com/deathpanelpod
@lollardfish.bsky.social
Journalist & historian. Pub musician. Dad. Husband. Fishing obsessed. I also do dishes. Preorder: #Oathbreakers: https://tinyurl.com/oathbreakersHC. Subscribe to the Modern Medieval Newsletter: https://buttondown.email/ModernMedieval
@sickandtiredaus.bsky.social
http://heymp.com.au/sickandtired http://change.org/LongCOVIDInquiry http://www.instagram.com/sickandtiredaus https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09 https://www.facebook.com/share/19nSvtGPNz/
@disasterstrat.bsky.social
Disability-Led Response in the US Supporting Fight For Right Ukraine The only U.S. disability-led org with a focused mission of equity for Disabled people throughout disasters. Disability and Disaster Hotline 800-626-4959 https://linktr.ee/disasterstrat
@disabilityvictory.bsky.social
Disability Victory is building the political power of disabled progressives through training, networking, & leadership development. Learn more at DisabilityVictory.org
@disabilityrightsar.bsky.social
Dignity. Respect. Advocacy. Protection and Advocacy Agency for People with Disabilities in Arkansas. Visit our website to learn more: https://disabilityrightsar.org/
@ghmansfield.bsky.social
Disabled lawyer. Disability Rights and Disability Justice. Email: Gregoryhmansfield at gmail
@meryl.bsky.social
I support organizations in their efforts to ramp up disability inclusion and accessibility. Book to speak or work with me info@meryl.net. Deaf 🦻 Professional & TEDx speaker & trainer. #Accessibility consultant.
@rebeccacokley.bsky.social
Politics. Legos. Prince. #YNWA Obama WH. Disabled. Not a werewolf. 🇮🇪
@disabledinstem.bsky.social
We are here to affirm that you DO belong in STEM! This is a safe space for people with disabilities in STEM to connect. Contact: disabledinstem@gmail.com
@disabilitystor1.bsky.social
Historian, occasional anthropologist, working on disability, race and Empire; histories of public health. Eternal immigrant, writer, teacher. Indifferent cook. There will be many dogs on this feed. Luddite, yes, in the best way. Lives with epilepsy.
@meighanstone.bsky.social
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
@mmissingaus.bsky.social
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
@emilyesfraser.bsky.social
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
@vashetc.bsky.social
ph.d. perpetually horizontal. writer, researcher. ✍🏽 v ash e t c [dot] com — vashetc.com profile ID: brown person poses in wheelchair in front of a wall of pink paperflowers. banner: lake & mntn @ sunset. There’s a silhouette of a family in the water
@emilybeitiks.bsky.social
Longmore Institute on Disability Interim Director @SFSU / Co-Director of San Francisco Disability Cultural Center / all-around access nerd
@emilyladau.bsky.social
Author of "Demystifying Disability: What to Know, What to Say, and How to be an Ally." Disability rights activist who lives life on wheels. ♿️
@elenahung.bsky.social
@littlelobbyists.bsky.social Executive Director & Co-founder advocating for children with complex medical needs and disabilities. Fighting for disability justice, health equity, and tater tots for all.
@jenniagitator.bsky.social
Neurospicy AuDHD & dyslexic disability advocate & Co-founder of Neurodivergent Liberation Coalition. Disabled inclusion is a human right. Respect our existence, or expect our resistance. #NeurodivergentRights #NothingAboutUsWithoutUs #RESIST
@nlizaki.bsky.social
#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@rorpreston.bsky.social
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙 #MECFS #LongCovid #IACC #PAIS 📍 https://crunchme.org/
@galen2.bsky.social
Artist, Author, Crafter, Caregiver, Mom to Six adults, a dog, & a cat.
@missingfinland.bsky.social
ME/CFS G93.3 hoito & diagnosointi: 2021 Duodecim https://rb.gy/m9spr 2021 NICE https://rb.gy/h7eok 2021 Mayo Clinic Proceedings https://rb.gy/fd54d
@millionsmissingpod.bsky.social
Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
@kbishof.bsky.social
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org 🔵 Pw/ #LongCOVID, #IACCS, #Disability 🔵 Fmr. Firefighter/Paramedic 🔵 Fmr. Educator, Coach, & Dir. of Athletics 🔵 B.S. (ex science & health promotion) 🔵 #StillCOVIDING #COVIDConscious #Mask
@jimlebrecht.bsky.social
Co-director, Co-producer, with Nicole Newnham, of the documentary Crip Camp. Filmmaker, disability rights and justice advocate/activist, Co-founder of FWD-Doc.org. #Save504
@phicd.bsky.social
Another Australian (Cypriot & Greek) designer existing in Berlin. Been to hell & back thanks to the pandemic. End #prescribedharm #longcovid #MECFS check @sophsoph.psd & @berlin_buyers_club on the gram
@itswhitneywitch.bsky.social
Disability Justice Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more Ambulatory wheelchair user Cozy gamer, lazy gardener, hopeful baker
@covidlonghaulers.bsky.social
Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com #MedSky facebook.com/groups/COVIDLongHaulers YouTube.com/@covidlonghaulers Patreon.com/BrookeLine
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
@wilhelminaj.bsky.social
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
@ellecarnitine.bsky.social
immunocompromised • made & kept sick by the state • 🇵🇸🇵🇸🇵🇸
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org info@longcovidsos.org Charity reg no 1199120
@newdisabledsouth.org
Working to achieve liberation and justice for all disabled people in the South.
@millionsmissingfr.bsky.social
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche. Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@melindaiscomplex.bsky.social
My body has given up but I haven't... ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids. Orioles/Ravens/Caps fan. She/her
@katieklocksin.bsky.social
One of the #MillionsMissing with #LongCovid #MECFS // Once a radio and podcast producer, always a Transom alum 😷 Long covid is common 😷
@wanderingkayli.bsky.social
@wandering on Instagram ✍🏻 Disabled with Long Covid 38+ months Long COVID Researcher @sfu-fhs.bsky.social Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID https://beacons.ai/wanderingkayli
@osayko.bsky.social
Theater/film/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS
@myrabatchelder.bsky.social
Policy. Advocacy. Public Health. Health Equity. SRHRJ. COVID-19. Advocate. She/her.
@sunsopeningband.bsky.social
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
@c19lap.bsky.social
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.longhauler-advocacy.org
@mmissingholland.bsky.social
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
@lymenews.bsky.social
The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
@mefoggydog.bsky.social
Award-winning #socialenterprise in #UK. Working for #socialchange for the #MECFS community. Linktree - http://bit.ly/408o6LI
@peterstaley.bsky.social
AIDS & 🏳️🌈 rights activist; PrEP4All; TAG & ACT UP NY alum; Fall 2016 Harvard IOP fellow; subject in How to Survive a Plague; Author, NEVER SILENT: https://a.co/d/8lPyQjQ
@disabilitylab.bsky.social
DCL is a nonprofit disability media and narrative lab, by and for disabled folks. We exist to dismantle ableism and celebrate disabled community and culture. https://linktr.ee/disabilityculturelab
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@physiosforme.bsky.social
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com
@longcovidjustice.org
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
@longcovidfam.bsky.social
A US non-profit supporting children with Long Covid and their families.
@angelamswinca.bsky.social
🦠😷♿️#LongCovid disabled | 📢Chicané activist | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
@ezra.zone
creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
@bennessb.bsky.social
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her