Chronically Venting #covidisntover #freepalestine
Wife, mother, chronically ill and disabled zebra who is actively anti-racist, demands a free Palestine, believes in abortion, and knows that covid is airborne. #maskup #covidisairborne
@scienceforme.bsky.social
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.
@starseeker.bsky.social
C19 March 2022 caught at work #NHS Specialist || Life ⏸️ || Emotional Health & Longcovid Advocate ~ Life is Precious! 💫💕🪬☮️
@joissummers.bsky.social
Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid. #FBPE #FBLC #PWLC
@ehlersdanlosdaily.bsky.social
Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.
@irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association NB: Posts should not be considered advice Registered Charity Number 20100254 CHY 22039 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@mecfsnanoneedle.bsky.social
Severe #MECFS Patient Bedridden. No energy to speak. #MECFSDiagnosticBiomarkers Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials. https://mecfsdiagnosticbiomarkers.substack.com/
@rgleadow.bsky.social
Plant scientist studying how climate change affects plant toxicity (#cyanide). Born 314ppm. Interested in science, tech, plants. #MECFS ally #botanist 🌾🪴🧪🌱🌿💉 Views my own
@johnthejack.bsky.social
Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs 'Obvious but wrong' Also JTJ on the other place https://johnthejack.com
@sammiemc.bsky.social
Long Covid Kids Founder & CEO Hoping to be on the right side of history. ♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner 🧠🧡🫀#LongCovidKids 🌊#ColdWater 🧜🏻♀️#Swimming 🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷 🫅🏼#CoronationChampion 💥#Volunteer
@isabelrb.bsky.social
CEO | Renegade Research | Project Director of Remission Biome NBC-HWC, AIP-C @remissionbiome.bsky.social
@louiseathome.bsky.social
Patiently (mostly) persevering with pacing #LongCovid #pwME #MECFS #POTS 🏳️🌈😷 cats • science • cats • FPL • cats
@ack025.bsky.social
Links+follows related to: Ehlers-Danlos + Lyme + MEcfs + Autoimmune (Myasthenia Gravis, Sjogren’s, Hashimoto’s) + POTS + Mast Cell + ApoE (4/4) + Bilateral Vestibulopathy + BPPV + SIBO + migraine + mito myopathy + Long COVID + LMCA & Celiac Artery Stenosis
@hedsphysicist.bsky.social
X @hEDS_Physicist | Insta @hypermobile_physicist #Bisexual PhD Physicist & industry engineer journeying and blogging through #ChronicPain with #hEDS #MCAS #dysautonomia. Posts not medical advice. #BLM https://linktr.ee/hypermobilephysicist
@daltmann.bsky.social
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
@bendybrain.bsky.social
#hypermobility (and related conditions) brain-body neuro #research @bsmsmedschool UK | Dr Jessica Eccles | http://Linktr.ee/bendybrain | views own | https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx
@karenlhargrave.bsky.social
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
@immunofever.bsky.social
Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford https://talresearchgroup.mit.edu/
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed) https://ohtwist.com
@investinmeresearch.bsky.social
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org
@resiapretorius.bsky.social
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
@compulsiveobserver.bsky.social
Installation artist. Perfume fanatic. Chronically ill. Concordia University PhD student(disability studies + performance studies + practice-based research.) Ex jammer, current failure. She/her Montréaler in Edmonton. https://linktr.ee/ChloeLum
@karencosta.bsky.social
#HigherEd · Climate Action Pedagogy · faculty & student success · online learning advocate · trauma-aware teaching · ADHD/ND · adjunct · author of 99 Tips https://linktr.ee/KarenRayCosta
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@cgatist.bsky.social
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
@longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
@chronicillness.bsky.social
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com https://mybodyistryingtokillme.com/ https://www.redbubble.com/people/ChronicillnessT #chronicillness
@threadwriter.bsky.social
Write threads in a nice text editor, automatically chops it into chunks of less-than-300 chars, numbers them, and more. Add returns where you want a new post. Click button to publish your thread. RSS feed included. https://this.how/threadWriterForBluesky/
@drmelissageraghty.bsky.social
🦋 CEO of Phoenix Rising with Dr. G 🦋 Clinical Health Psychologist (Complex Medical, Rare Disease, Eating Disorders) 🦋 Medical Gaslighting Sensitivity Trainer 🦋 Keynote Speaker 🦋 #IamRare 🦓 ♿ www.phoenixrisingwithdrg.com
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/ Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com Design | https://emmarubystudio.com/ She / her
@michelleb4.bsky.social
A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own
@otskiff.bsky.social
Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #MECFS, #ChronicMigraine, #HSD, #MCAS & #TeamClots 🫁 AHP Committee @LongCovidPhysio. Swiftie 🫶, F1 🏎, cricket 🏏 fan London, UK
@spcialndsjungle.bsky.social
Parent-led special educational needs and disability #SEND website. UK-based, strategic advocacy, resources, and information to help improve the lives of children & young people with disabilities and their families. Volunteers. #childrensrights
@tinarodwell1.bsky.social
Eclectic Mother and ME Advicate. Bag maker and same with a passion.
@catsmother.bsky.social
Covid-aware cat parent. Former teacher, now working in Mental Health support. Mask wearer and ventilation fanatic. Long Covid since 2023. Motorbikes and MotoGP, skiing, baking, DIY, gardening and kitties of course. Love all kitties!
@hossylass.bsky.social
Here for when the other place implodes. Disability rights. Fair society. Animal rescue. Likes spreadsheets, clean air and FFP3 masks. Reads Hansard. Swears. UBI nerd. Swears - in case you missed it the first time.
@matthewcort.land
🖋️ Lawyer, advocate, writer, public health nerd 🦠 Immunocompromised, chronically ill, disabled Then: SSI, SNAP, Medicaid Now: data & policy, disability, healthcare. 🔗 patreon.com/mattbc 🏳️🌈nonbinary
@morgfair.bsky.social
Actress. Politics, Foreign Policy, Science & RockNRoll. Love animals
@violetblue.bsky.social
Awarded author, journalist: cybersecurity, privacy, digital human rights, Covid. WIRED, PopSci, Spinoff, Engadget, FT, IFJ. Visiting Scholar at Stout Research Centre, NZ. Bio: about.me/violetblue Pod: linktr.ee/raisedbyhorror News: patreon.com/violetblue
@exceedhergrasp1.bsky.social
Scientific Director, #MEAction Stanford Med Université de Montréal TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1 on Twitter
@baddestmamajama.bsky.social
Filmmaker (WHAT LIES WEST) and formerly a little Twitter famous. Married to @sean-a-tiger.bsky.social, writes with @nicksinnott.com
@thesicktimes.bsky.social
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
@betsyladyzhets.bsky.social
editor/co-founder @thesicktimes.bsky.social | journalist covering Long COVID & related crises | she/her/🏳️🌈 email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
@bibicosplays.bsky.social
Abi | She/They | bi/pan | 🇨🇦🇳🇬🏳️🌈♿ | Disabled | BSc. Computer Science |Store: Bibipins.com
@mjnabuurs.bsky.social
Trying to remain human in a world determined to challenge humanity.Extrovert w the need for quiet time, despite appearances to the contrary. Co-host of @theresisters.bsky.social spaces w @coopspeak.bsky.social. Spokesperson for @onschoolsafety.bsky.social.