Irish ME/CFS Association
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association
NB: Posts should not be considered advice
Registered Charity Number 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
@westonmale.bsky.social
Delivering great stuff for the https://MEAssociation.org.uk They're on Bluesky at @MEAssociation.bsky.social Working with the best at https://meassociation.org.uk/gifb
@meactionscotland.bsky.social
@vmatthiesboon.bsky.social
Professor by Special Appointment - Head of Department of Ethics and Political Philosophy, Radboud Uni. Interests: Long Covid, Health Justice, Postviral Ethics, Trauma, Critical Theory,
@chronicaction.bsky.social
Arts, Comedy & Science Social Justice Campaign for chronic illness, chronic pain & disability http://gofund.me/63a9038e
@advocacyire.bsky.social
Free, confidential service supporting you to make a complaint about your care in a public acute hospital or nursing home or after a Patient Safety Incident 0818 293003 [email protected] www.patientadvocacyservice.ie RCN: 2153
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
@lydiafd.bsky.social
Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022
@0slersweb.bsky.social
Hillary Johnson, author of The Why: The Historic ME/CFS call to Arms. 92 pp. Audio, Ebook + paperback at Amazon. Untold morbidity, unspeakable suffering, a pandemic ignored. A case history of what went wrong. "Indispensable." "Jaw-dropping."
@youngemerg.bsky.social
young European ME Research Group - A European forum formed with EMERG to support and encourage early career researchers in ME/CFS research https://youngemerg.com/index.shtml
@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
@sarahoc1.bsky.social
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@irishmedicaltimes.bsky.social
The leading publication for Irish doctors since 1967
@disabilityfed.bsky.social
National support organisation for voluntary #disability groups. RT is not necessarily an endorsement.
@thewheelireland.bsky.social
We are Ireland’s national association of charities, community groups and social enterprises. Charity Reg. No. 20040963 #WeAreTheWheel #WeAct
@mefelag.bsky.social
The Icelandic ME association #MEawareness #mefelag #longcovid #vitundarvakning
@meassociation.bsky.social
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. www.meassociation.org.uk
@astridmeyerknutsen.bsky.social
Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
@criquaer.bsky.social
Queer, humanist, pantheistic Quaker. Politically non-partisan. Disabled & chronically ill #pwME #MyalgicEncephalomyelitis #SevereME 🇪🇺🗣️ 🏴🇦🇹🇩🇪🇪🇸🇫🇷🇵🇹
@thingsdoctorssay.bsky.social
A space to commiserate & heal from ableism - medical gaslighting - medical malpractice from doctors. TW med trauma. . Real stories; use #ThingsDoctorsSay to join the conversation and share your story. Main account on IG.
@clmirl.bsky.social
Community Law & Mediation (CLM) provides free legal information, advice, advocacy, and mediation services; along with the services of the Centre for Environmental Justice (CHY 6359). www.communitylawandmediation.ie
@meactionnc.bsky.social
Support and advocacy group for people with ME/CFS and Long Covid, their allies, caregivers, and practitioners.
@longcovidjustice.org
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
@tinakatsaros.bsky.social
PhD candidate researching ME/CFS at La Trobe University 📍Melbourne, Australia
@lauravictorine.bsky.social
Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
@massmecfs.bsky.social
To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research. https://www.massmecfs.org
@aryback.bsky.social
ME researcher at the University of Edinburgh. Clare Francis Research Fellow, funded by Action for ME.
@ptswithpower.bsky.social
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science 🧐 Patient rights & power dynamics 🦾 I like solving puzzles. #NEISvoid #MedicalGaslighting
@cleanairie.bsky.social
We are a community of parents, healthcare workers, teachers, students and individuals who care about improving indoor air quality https://linktr.ee/cleanairadvocacyireland
@melissabreen.bsky.social
writes about disability and illness and whatever else I'm into that week. Retired music journalist. Tiocfaidh ar lá. sí/í
@grandadalan.bsky.social
Struggling to be average one day at a time. Sometimes I just sit and thinks, and sometimes I just sits.
@coreilly.bsky.social
Awkward cranky unpaid carer Former blogger, old leftie, still curious She/her
@dbkell.bsky.social
Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
@cornellmecfs.bsky.social
Collaborative #research center based at Cornell directed by Dr. Maureen Hanson encompassing a variety of projects on #MECFS. Visit our website below for more info.
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation www.longcovidsos.org [email protected] Charity reg no 1199120
@helfand.bsky.social
UChicago AB '17 in Mathematics. Don't ask me anything about math. 🙃 Severe #MECFS, always the party. Blog: https://www.helfcare.com/
@emergeaustralia.bsky.social
Not-for-Profit Organisation supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome) and long COVID. Education | Research | Advocacy | Support Services Website: www.emerge.org.au Donate: www.emerge.org.au/donate/
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
@virusesimmunity.bsky.social
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
@galen2.bsky.social
Artist, Author, Crafter, Caregiver, Mom to Six adults, a dog, & a cat.
@longcovidphysio.bsky.social
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio
@pillowwriters.bsky.social
Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
@rthm.bsky.social
RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to therapies based on the latest research. https://direct.rthm.com/?utm_source=bs&utm_medium=link&utm_campaign=bio&utm_id=profile&utm_term=web&utm_conten
@angryhacademic.bsky.social
#LongCovid Scientific Consultant PhD Nutrition & Metabolism Hon Research Fellow, Lund Uni Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac Donations: https://ko-fi.com/drsmash Facebook: https://www.facebook.com/LongCovidSC