Crystal M Williams
I am a person with an intellectual disability called Kabuki Syndrome. Writer. Blogger
www.crystalmwilliams.com
@knockaboutmedia.bsky.social
Specializing in creative non-fiction storytelling. We are the makers of Once Upon a Time in Hollywood North, Among Equals, and Story Girl.
@williampotter.bsky.social
Husband, Dad, writer, reader, publishing, book reviews. I support indie authors. I follow back all authors, publishers, editors etc. #WritingCommunity 🍁
@familymam.medsky.social
🛟Public-health pediatrician 💕Mam to Kaly & Jeremy 🐈⬛Puff & 🐈⬛Smoky; grand-cat Muffin🐈 #Humanist #Feminist #ProDEI #ExFed #ExAcademic 💙🇺🇸 #Maryland #MOCO MPH-Harvard, DrPH-UMich, BS-UGA, MD-Medical College of GA FDAAA.org LadyDocs.org 👋🏻👋🏻
@jjunebrown.bsky.social
Author, public health advocate, genetics PhD. Creatively driven, scientifically inspired. Mom of 2 with the rare inherited health condition #PKU. https://jjbrownauthor.com/ is my author site and "When the Baby Is Not OK: Hopes & Genes" my newest book.
@epigeneticspod.bsky.social
The Epigenetics Podcast of @activemotifusa.bsky.social, hosted by @johndillinger15.bsky.social https://activemotif.com/podcasts #epigenetics #chromatin #podcast
@thecrid.bsky.social
https://TheCRID.org More data sharing, less data silos. CRID is a service that enables parents/patients create their own unique universal ID for clinical research.
@rarediseasectn.bsky.social
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
@rdndlab.bsky.social
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions. https://tinyurl.com/rdndkcl
@nordrare.bsky.social
NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.® www.rarediseases.org
@therddr.bsky.social
https://TheRDDR.org RDDR is an invaluable resource dedicated to the storage, organization, and dissemination of rare disease research datasets.
@curesyngap1.bsky.social
SRF, est 2018, exists to improve the quality of life of SynGAP patients through the research and development.
@scn2a.bsky.social
"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and, in every way, to improve the lives of not only the patients, but the entire family.
@curechd2.bsky.social
Patient advocacy group serving those affected by CHD2, a rare developmental & epileptic encephalopathy (DEE) associated w/Jeavons/EEM, photosensitive seizures, autism + intellectual disability. Accelerating research & supporting community www.curechd2.org
@everylifeorg.bsky.social
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
@jcihonline.bsky.social
Leading journal by Taylor and Francis. Publishes research, interventions & perspectives on #healthcommunication in #healthcare #publichealth and #medicine.
@rareireland.bsky.social
@bostonchildrens.bsky.social
📍Boston, MA 💙 Where the world comes for answers
@raising-rareness.bsky.social
Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 Mum of 3 #AAC #AugmentativeAndAlternativeCommunication MA Archaeology UCC Opinions my own 🇮🇪
@kabukisyndrome.bsky.social
We drive research to treatments for this rare disease through collaboration, education, and fundraising. www.kabukisyndromefoundation.org
@gemmsy.bsky.social
Choreographer + becoming a Disability Advocate =🌻♿ 🥄One Step At A Time • Writing an MA Dissertation on the Complex Embodiment Models of Disability • London
@pmittal3457.bsky.social
UVic Student 📖 | Scholar ✍🏾 | Eco Leftist ⬅️ ⚖️🌎🌹✊🏾| Gay 🏳️🌈 #2SLGBTQIARights #TransLivesMatter 🏳️⚧️#BLM | Fan of pop music, drag & #Heartstopper ✨ He/him
@sherrypaprocki.bsky.social
Writer, editor, author. Communications strategist. Past prez, ASJA. Folio Thought Leader.
@estelleserasmus.bsky.social
Author, WRITING THAT GETS NOTICED. NYU adjunct writing prof. Contributing Editor, Writer’s Digest. Freelance Writing Direct podcast host. Award-winning journalist with bylines in The New York Times, Washington Post, Slate + https://EstelleSErasmus.com
@lisacooperellison.bsky.social
Writer, Trauma-Informed Writing Coach, and Host of the Writing Your Resilience Podcast. I help writers craft tough stories that sell. Join my free Substack and Get a Copy of Write More, Fret Less.
@kaitielliott.bsky.social
Vancouver Island 🌊 Watch me share about nature, books & artsy stuff.
@chitgrrl.bsky.social
Author: Homelands, Expecting. Journalist: The Guardian. Restaurant critic: The Times Scotland. Used to be a person whose profile said only 'don't conclude anything without cheese'. Still am, on the inside.
@lilydunn.bsky.social
Sins of My Father ⭐️⭐️⭐️⭐️⭐️ Guardian Non-Fiction Book of the Year. Academic. Memoir lover. #lifewriting Co-founder @londonlitlab.bsky.social Find me here: https://lilydunn.substack.com/
@lillydancyger.bsky.social
author of Negative Space and First Love, editor at Barrelhouse Books
@paulawhyman.bsky.social
Author, BAD NATURALIST: One Woman's Ecological Education on a Wild Virginia Mountaintop, Jan 2025 from Timber Press/Hachette. Website: https://paulawhyman.com Newsletter: https://badnaturalistnewsletter.beehiiv.com/
@ellenblumbarish.bsky.social
Memoirist, essayist and writer’s guide. Seeker and spreader of inspiration.
@elizabethrosner.bsky.social
I write books. www.elizabethrosner.com (Third Ear; Survivor Cafe; Electric City; Gravity; Blue Nude; The Speed of Light) "Let us go forth with fear and courage and rage to save the world." ~Grace Paley
@ronitplank.bsky.social
Stories save us 🧡 𝗛𝗼𝘀𝘁/𝗣𝗿𝗼𝗱: Let's Talk Memoir podcast🎙️ 𝗖𝗡𝗙 𝗘𝗱𝗶𝘁𝗼𝗿: The Citron Review • 𝗠𝘆 𝗯𝗼𝗼𝗸𝘀: WHEN SHE COMES BACK, HOME IS A MADE-UP PLACE • Memoir teacher & editor • 𝗠𝗙𝗔 𝗶𝗻 𝗡𝗼𝗻𝗳𝗶𝗰𝘁𝗶𝗼𝗻, Pacific University
@disabilitybelongs.bsky.social
Redefining Narratives. Developing Leaders. Driving Opportunity. www.disabilitybelongs.org
@melrobbins.bsky.social
Author, Podcaster, Friend Host of The Mel Robbins Podcast The Let Them Theory Book is here!!! Order your copy 📚 ⬇️ letthem.com
@josephlezza.com
Writer. Worrier. Full-time coffee chugger. Eric Hoffer Book Award Finalist. “I’m Never Fine,” a memoir, OUT NOW from Vine Leaves Press 🇮🇹 🔗: https://linktr.ee/josephlezza
@whitecapsfc.com
This is the official account of Vancouver Whitecaps FC. Voyageurs Cup Champions 2015, 2022, 2023 & 2024 🏆 #VWFC #FIFTYTGTHR Single match tickets now on sale! 🎟️ https://bit.ly/2025SingleTicketsSocial
@ctvnews-rss.bsky.social
Not affiliated with CTV News. 🇨🇦 🔁 Reposting from X (formerly Twitter) ☕ Support this project: https://ko-fi.com/drewt20737
@theguardian.com
The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com 🇺🇸 Guardian US https://bsky.app/profile/us.theguardian.com 🇦🇺 Guardian Australia https://bsky.app/profile/australia.theguardian.com
@nytimes.com
In-depth, independent reporting to better understand the world, now on Bluesky. News tips? Share them here: http://nyti.ms/2FVHq9v
@newyorker.com
Unparalleled reporting and commentary on politics and culture, plus humor and cartoons, fiction and poetry. Get our Daily newsletter: http://nyer.cm/gtI6pVM Follow The New Yorker’s writers and contributors: https://go.bsky.app/Gh5bFwS
@markhamillofficial.bsky.social
Believe in yourself! Work hard, never give up & anything's possible! OR: Kick back, relax & aim low: You'll never be disappointed...😜 I IGNORE ALL DMs!