@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@nofutureforme.bsky.social
#EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
@raadakar.bsky.social
A panoply of #CI & lovely acronyms. Trying to make my life the best it can be with the limited time I have. #pwme #fibro #POTS #NEIS #NEISVoid
@handle.invalid
Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie. 🏳️🌈 they (🇬🇧), elle (🇫🇷) Currently residing in Portland OR. Always a Mainer. Blog at my username!
@neuroweaveratl.bsky.social
GSU • UNG Chronic Disease Researcher ME Action • Board Member #Neuroscience #ChronicIllness *views my own*
@drsarastyles.bsky.social
Academic. #Nutrition + #Behaviouralscience 🥬 🍰 Has chronic fatigue syndrome (#mecfs #pwcfs) Upstate New Yorker living in #Ōtepoti, #Aotearoa. #Dunedin, #NewZealand. She/her.
@sassyauntiek.bsky.social
Science nerd, show me the data. she/her 🏳️🌈-ally, 🏳️⚧️-ally, BLM, pro-choice, ME/CFS, chronic illnesses & Endometriosis suck. what I say ≠ advice
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@annakwood.bsky.social
Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@erictopol.bsky.social
physician-scientist, author, editor https://www.scripps.edu/faculty/topol/ Ground Truths https://erictopol.substack.com SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
@cateye0611.bsky.social
#ME #MECFS science & research nerd. Focus: medical neglect & misinformation of/about infection driven severe #ME (Myalgic Encephalomyelitis) 🦠 22yrs 🛏️ 🏠 🤢 ♥️ but 📛: 🚶♂️+🐕, 📚, 🕺🏻💃, 🎶, 🍹, …
@edyong209.bsky.social
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him 📷 Canon R6mkii + RF 800mm Edyong.me
@stardust949.bsky.social
Aspiring to write for stage & screen. Dyslexic ball of chaos. She/ her. #pwME #MECFS #POTS #BLM #TransRightsAreHumanRights. Twitter account: @StarDust949
@phoenixme.bsky.social
Bed-bound activist with severe ME/CFS. ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own. If I had any spoons, I'd be dangerous. Boonwurrung country, Australia
@klazell.bsky.social
Artist, Long Covid, ME/CFS, POTS, EDS, previously Data Scientist. Life on pause due to #longcovid. Climate collapse aware.
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment. Toronto, Canada Ally of #pwLC #pwME #LongCovid #POTS #MCAS #MEcfs
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
@chronicmyalgice.bsky.social
Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
@normalness.bsky.social
We're all normal to ourselves. I write. I hate hustle. I love shiny objects. Can't even influence an ant. Anthropology & sociology graduate. Author of books. Spoonie. And much more. www.normalness.com
@rebellionista.bsky.social
Single mum. Expert napper. Pet wrangler. Severe ME/CFS. My son & I are AuDHD. Former gifted child. Reformed TV producer. Live for horror movies. Life is a roller coaster.
@fioname.bsky.social
Victoria, Australia. Former professional wordsmith. 14+ years living with the hell of myalgic encephalomyelitis (ME/CFS). Prone to so-called left-wing views & bingeing good TV 🤓
@koparafallskid.bsky.social
Movement As Medicine advocate. Follow my writing on Limberation.com Rheumatoid arthritis patient. Previously diagnosed Psoriatic arthritis patient. Probably both! 🤔 Ex-pat Kiwi in Kangaroo land (Melbourne). Arrived (on Earth) at 313.7 CO²
@bendyhedsandco.bsky.social
For Awareness & Support of #Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co. #PANS/PANDAS & #LongCovid ally #MedEd for EDS/HSD & co 🔗 conditions go to:- 👉 https://gptoolkit.ehlers-danlos.org/ 👈 #NEISVoid
@slooterman.bsky.social
Disabled disability and aging reporter at The 19th. Opinions are my own. Signal: slooterman.18 Email: sluterman at 19thnews dot org On parental leave. Will be back at work July 30.
@keristars.bsky.social
I love museums and history. ★ bed-tethered disabled! AuDHD, POTS, MCAS, and ME/CFS. ★🧑🦽★ I miss traveling and being in nature and sewing. location: Jacksonville, Florida (agender ace ey/em/eir)
@midcatecrisis.bsky.social
Chronically ill, autistic, demi/greyace (mostly in bed, mostly homebound) ME/CFS and probable LC 😷😷😷 Interests: climate, COVID, disability justice, nature, parenting, socialism Ltd cog energy, don't tend to follow back. Toronto, Canada She/her/they
@vvictormanuel.bsky.social
that (formerly) homeless trans kid. 26. queer. aspec. german. latino. charrúa. jewish. disabled. EDS & co. ADHD & autism. he/ him. 💉 7.11.17 | 🔪 1.3.19 from the river to the sea 🇵🇸🇵🇸
@roxiqt.com
Extremely online internet gremlin & plague banisher 🥄💜 @roxiqt on Twitter & TikTok 🦝 roxiqt.com ✨🇨🇦 Toronto, ON
@plaguepoems.bsky.social
A record of the plague years. Z”L. https://librarianshipwreck.wordpress.com/plague-poems/
@migrainechat.bsky.social
Education researcher turned migraine advocate #MigraineChat host Vermont maple syrup aficionado 🚫 Unsolicited advice She/Her/Dr (PhD kind) Header: Dinosaurcouch MigraineChat Resources & Discord: https://campsite.bio/migrainechat MC feed/starter pack👇🏻
@sarahlerner.bsky.social
Big yapper & napper. Loves: disability justice, feminism, music, pop culture, etc. COVID conscious progressive. Trying to find the light while navigating severe chronic illness ☀️
@shematologist.medsky.social
Peds hematologist oncologist, mother, dreamer, pacifist, justice seeker. Retweeted by Wonder Woman #HemeSky #MedSky #CakeForBreakfast #IronMatters http://www.HCWvsHunger.org
@jtrebach.bsky.social
ER doc. Toxicologist. 🏳️🌈 I post about poisons & cats & fighting misinformation. Posts/DMs = my own (not employer’s) & not medical advice. contact = ToxTrebach@gmail.com
@beingcharis.bsky.social
Disabled. Queer. Living in forced poverty. Cat theydy. Urban farmer. Punny. Free Palestine. (@BeingCharisBlog on Twitter) Profile image alt text: a headshot of a white person with short brown & bleached hair wearing glasses, smiling
@erinsandersnp.bsky.social
Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
@wholesomememes.bsky.social
We post memes, comics, wholesome stuff & anything we like.
@raccoonhourly.bsky.social
All images belong to their respective owners, for problems/concerns/submissions contact @stonesec.dev
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@dualiejulie.bsky.social
(She/her) In LongCOVID/M.E. hell looking for a way out! First wave Longhauler. Former engineering student. Trying to get my personality back from the disease. Very cute dog.