Ben H
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
@douggreigyyc.bsky.social
Caring for loved one with complex infection-associated chronic illness incl. #MEcfs. Decades-late biomedical research funding means no end in sight. #Calgary #YYC, #Alberta, 🇨🇦. #Treaty7. #CanadaSky
@colleensteckel.bsky.social
Advocate for #MyalgicEncephalomyelitis using ME-ICC. Contracted ME in 1989 Substack: https://colleensteckelmeiccinfo.substack.com/ Volunteer at www.MEadvocacy.org Aspiring writer of paranormal fiction
@swastrosarah.bsky.social
Speaking up for everyone affected by severe/very severe #ME. Medical science has everything to learn about human biology from the post infection disease ME. #MEKills backstory https://x.com/swastrosarah?lang=en-GB
@therealmecfs.bsky.social
Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
@millionsmissingfr.bsky.social
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche. Entraide & soutien 🤝 www.millionsmissing.fr. #MECFS #EMSFC #pwME #paEM #MillionsMissing . Member of the World ME Alliance.
@mewarriorau.bsky.social
ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease #ME (not CFS) for 28 years. #MyalgicEncephalomyelitis #pwME #MyalgicE (#MECFS #CFS) #LongCovid #ChronicIllness
@bshuell.bsky.social
Husband to a wonderful wife, father to 2 amazing kids, advocate, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Dog Dad. Occasionally bipedal. Twitter/X refugee. #mecfs
@dxrevisionwatch.bsky.social
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
@mecvsvereniging.bsky.social
Patiëntenvereniging die zich inzet voor mensen met ME/cvs en hun omgeving. Op naar meer erkenning, kennis, steun en zorg voor ME/cvs patiënten. www.me-cvsvereniging.nl
@cateye0611.bsky.social
#ME #MECFS science & research nerd. Focus: medical neglect & misinformation of/about infection driven severe #ME (Myalgic Encephalomyelitis) 🦠 22yrs 🛏️ 🏠 🤢 ♥️ but 📛: 🚶♂️+🐕, 📚, 🕺🏻💃, 🎶, 🍹, …
@dsavannah.bsky.social
~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014 ~ #LiveInBedButIAintDead ~ When brain & body behave: Chronic Illness Advocate ~ Discworldian, Browncoat ~🐱(x3)🐢💐🌻🌷📸📚🖼️ ~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷 https://linktr.ee/thedsavannah
@simonmcg.bsky.social
Sometimes try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
@bmhughes.bsky.social
Concerned citizen • Prof Psych • Writer • Galway • he/him A blog: https://thesciencebit.net/ A bio: https://brianmhughes.com/ A book: https://bloomsburycp3.codemantra.com/viewer/63721f10ee35880001aafadc 📷 https://www.photoblogism.net
@macanders.bsky.social
Mild-mannered author of several novels | ME #pwme | https://henryandersonbooks.com
@longcovidlad.bsky.social
Long covid since April 2020. R 50 participant. Trying to navigate a plethora of health conditions without any NHS support. #ME/CFS #POTS, #Long Covid, BBB dysfunction, #SIBO, #Leaky Gut, reactivated infections, #MCAS, Clots
@mmissingholland.bsky.social
Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
@cyruxime.bsky.social
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
@meactmaryland.bsky.social
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
@d2p.bsky.social
Paediatric Radiologist, Aotearoa New Zealand Following more immunologists than radiologists #MECFS #LongCOVID and a bit of #MacDev #iOSDev he/him https://ddp.nz | https://dysimmune.nz
@tapanuiflu.bsky.social
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious Grandmother | Ex social scientist | Mostly housebound | On welfare Website: tapanuiflu.blog Aotearoa | New Zealand
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. https://rfh1955.blogspot.com/
@alyssaharad.bsky.social
Writer. Reader. I live in a box of paints. She/her. Banner: a detail from Remedios Varo’s Vampiros Vegetarianos. Three vampires in fantastical golden outfits sip fruit through extra long straws.)
@bookhaven.bsky.social
Neurodivergent library ghost 👻 Napping instead of making lemonade 😴 ♿🦓🛏️ 😷 📚🚀 Don't share my posts on other platforms without asking. Header: Will Santino 🍋🥛 PFP: Pies Are Awesome 🥧
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
@tilmanandris.bsky.social
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
@halcionandon.bsky.social
Welcome to the back of my head. Human biology experiment running on limited energy🥄 Collecting diagnoses like Pokémon. #SevereME #LongCovid #Migraine #POTS #NeisVoid & more. #FBLC 🙅♀️No hookup or spam DMs Beem: @halcionandon
@vladvexler.bsky.social
Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003. youtube.com/vladvexler (main channel) youtube.com/vladvexlerchat (chat channel) youtube.com/@vladvexlerphilosophy
@stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
@mareksjf.bsky.social
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ http://mecfs.de/was-ist-me • EN ‖ PL ‖ DE
@kschnickelfritz.bsky.social
Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme
@danwyke.bsky.social
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
@kittybrewster.bsky.social
Tennis, science, comic and sci-fi fan. Politics junkie. Spoonie. Loves all things crafty. Can be found under a duvet in Cornwall #millionsmissing #MECFS
@fstevenchalmers.bsky.social
Retired person, was in tech industry for 37 years Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
@remissionbiome.bsky.social
Community Science Project http://RemissionBiome.org
@paintingsbysam.bsky.social
@birbsarereal.bsky.social
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her. Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
@sassyauntiek.bsky.social
Science nerd, show me the data. she/her 🏳️🌈-ally, 🏳️⚧️-ally, BLM, pro-choice, ME/CFS, chronic illnesses & Endometriosis suck. what I say ≠ advice
@owasow.bsky.social
Asst Prof, UC Berkeley, Political Science. Study protests, stats & race: 1/ Agenda Seeding http://j.mp/agenda-seeding 2/ Race as a Bundle of Sticks http://j.mp/bundle-of
@dysautonomia.bsky.social
We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
@lifeanalytics.bsky.social
Data Scientist, Patent owner of Artificial Intelligence-assisted methodology for Medical Research Discovery. Tweets are mine/not medical advice or endorsements.